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Q: No Diagnosis After 5 Years
asked by: Jeanietx on April 11th, 2007
New User
My 24 year old daughter has these symptoms. Constantly dizzy, faints 4 -6 times daily. During this time it could last 1min. to 1 hour, at this time she does not respond to pain stimulus, or anything. She cannot hold food,water, meds down. Thus she will become dehydrated. She was on a feeding tube for a while but this had to be removed. She is very tall but weighs very little at this point. Because of fast weight loss and other factors she now has a pacemaker.
We have been to numerous Hospitals and Doctors all over the United States. She has yet to be diagnosed.
This is her 5th year of being ill. She had to drop out of school and cannot drive she cannot hold a job. She can walk to her mail box only because she knows her neighbors and if they see her on the ground they know she will wake up and will wait by her for her safety.
If anyone has heard of these symptons please let me know.
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Replies(9)
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Akkette
replied on April 17th, 2007
Experienced User
I havent heard of there symptoms but i am sorry its something your daughter has to go through. Seeing a Dr would be my recommendation however i can see you have been to numerous.

Good Luck

Natalie
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exodus_152
replied on May 20th, 2007
New User
Answers to
I assume she has unexplained low blood pressure?

Low bp can be from a number of things very hard to cover all with so little info on your daughter. Have the docs checked her thyroid ie tsh, t-4, and free t-3 levels --were they at the low end of normal?

Low bp can result from shock, very few doctors are aware that food sensitivities can result in shock and lower bp. Get a blood pressure cuff i prefer the omron available at walmart, and stay setting with some one helping start testing different foods one at a time leaving 45 minutes between. Take a control (starter) reading, eat test food, wait 30 to 45 minutes and check bp for a change. The most likely culprit is a favorite food or one that is craved. Once you find offending food just eliminate it permanently. Two or three grams of vitamin C can help relief symptoms it acts as an anti-histamine.

If this does not help find cause, seek out a Naturopath trained at a four year on site university. Our families favorite is Dr. Ian Nesbit in Missoula Montana.

Good luck and God bless!
J.D. Wolff
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Jeanietx
replied on May 21st, 2007
New User
This has all been addressed, but thank you for your info.
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exodus_152
replied on May 21st, 2007
New User
Another Thought
Has she tried a low physiological dose of t-3 the active form of thyroid hormone? Dr. Denis Wilson wrote a book on reverse t-3, in essense not all t-3
is created the same, in chemistry there is a term for this, but i'll save you the details. Normal lab tests won't distinguish the difference and will show everything in normal range, however reverse form is not active in the body. Does she exhibit other signs of low thyroid function?

The naturopath that I previously suggested teaches physiology at the college in missoula, he might be a worth a try.

God bless your efforts!
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gsrobertson
replied on October 14th, 2007
New User
Addisons Disease?
Sounds like a lot of sympoms of Addison's Diesease:
------------------------------------------ ----------------------------------
Signs and symptoms
Signs and symptoms of Addison's disease usually develop slowly, often over several months, and may include:

Muscle weakness and fatigue
Weight loss and decreased appetite
Darkening of your skin (hyperpigmentation)
Low blood pressure, even fainting
Salt craving
Low blood sugar (hypoglycemia)
Nausea, diarrhea or vomiting
Irritability
Depression
Sometimes, however, the signs and symptoms of Addison's disease may appear suddenly. In acute adrenal failure (addisonian crisis), the signs and symptoms may also include:

Pain in your lower back, abdomen or legs
Severe vomiting and diarrhea, leading to dehydration
Low blood pressure
Loss of consciousness
------------------------------------------ -----
Just a thought.
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Jeanietx
replied on October 15th, 2007
New User
Re: Addisons Disease?
Thank you all for your input. Unfortunatly all of the items you mentioned have been checked. Thanks again
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sooolaso
replied on October 29th, 2007
New User
Re: Addisons Disease?
Jeanietx wrote:
Thank you all for your input. Unfortunatly all of the items you mentioned have been checked. Thanks again



hi jeaniet i m new to this forum, i read your post , i was wondering if there is any new situation for the case?
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Jeanietx
replied on October 29th, 2007
New User
She has a new symptom now. She has weakness in her legs mid-thigh on down. She will be walking or standing and she will have to stop and sit down even if it is on the floor or street they will not hold her up. Dr. is now going to do CT scan of her spine. Nothing new other than that.
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Leila911
replied on February 7th, 2009
New User
I hope she feels better!
I'm so sorry for your daughter and yourself for going through this! However, I was wondering what her first symtoms were? How did it all start? Thanks
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