I just read your post from last year and wondered if you ever resolved your problems. It sounds like you are going through exactly what I am not going through.

This sounds familiar to me. I'm 34, and I got mono for the first time in January. It was a severe case, and I tested positive for both the EBV and CMV viruses. The swelling in my neck was so bad that it had to be treated with steroids so I could breathe. I was in bed for three months.

Anyway, I got better briefly, but now the entire right side of my body is wracked with pain, and no one seems to know why. It hurts all the way from my right hip up to my right ear. The neck and ear pain turned out to be an ear infection, but I don't know why the rest of me hurts. One day it was so bad I went to the ER and was diagnosed with appendicitis. They did a CT scan and discovered it wasn't appendicitis. They said they didn't see anything in there that would cause pain like that, and they sent me home and told me to take an Advil.

I am also constantly nauseated, and I've lost 16 pounds without trying. It has been six months since the initial mono diagnosis, and I just feel like it's been one illness after another. Nothing serious, but definitely annoying enough to interfere with day to day activities. I've seen 7 different doctors about this, and they've run various tests but haven't found anything.

Has anyone found a solution?

Thanks.

See my other post. Yes I have had stomache issues after mono and endoscopies galore. Nutrition plays an important role. For the gall bladder attacks I use a combination of 2 Advil and 2 Tagamet (they work different than the others so use Tagamet) it is now over the counter at a low dose. 500mgs/day was what I was taking for a long while. I bend over in gut wretching pain for about 30 minutes but it works every time.

Peppermint and Tagament can help with the stomache ache but controling the drainage from sinuses (or whatever) is what really works. Flonase works for mild case of sinus issues inhalers (steroids) for anything worse.

I didn't have mono as bad as some of you guys. I had a pretty swollen sore throat but it wasn't bad enough to constrict breathing so I wasnt prescribed steroids. I just had to eat soft foods for a while. Anyhow, I have stomach pain on the right side, too. It also feels like it is radiating a bit to the back, but not very much. It isn't crippling but it is annoying. It makes getting to sleep difficult sometimes. I was diagnosed with mono 8 weeks ago btw and all the symptoms but a bit of fatigue and the stomach pains are gone. I also lost about 15 pounds since I got mono. What has happened with you guys? Any results?

Okay, first I think we should all have a mono party and get together and gripe about what mono does do to your system. I was diagnosed with mono in April after a couple of weeks of feeling ill. My son had it before me. No, we did not kiss, except maybe on the cheek =). Anyway, coincidentally at the same time I apparently got mono, I also got GERD for the first time in my life. Since this time the GERD has never gone away and been resistant to most of the treatments they have given me. Prevacid seems to help the most -- I have tried Omeprezole, over the counter Prilosec, Protonix and Pepto Bismol, (I'll explain that one.) Anyway, shortly after being on these medications, I developed arthritic type pain and burning in my fingers and toes. I've never had arthritic pain in my fingers and toes ever. In fact I was told at one point a few years back that I did have Osteoarthritis but it never touched my fingers and toes only my knees. I woke up daily since it started a couple months ago with pain in both my fingers and toes which seemed to be helped a little by moving but would not go away. It is now August and I've been told they have no idea why I would have GERD and arthritis right after mono. Maybe I'm stupid here, but I'm thinking why aren't they connecting any dots here. Every doctor I tell gives me a "hm" response with no follow up. They retested for mono in August and said I still have it but that the levels are dropping. "Flare up of old infection" is what they wrote. Funny because if it's a flare up of the old March/April infection why didn't they run an EBNA to verify that it was active? Okay, to make a long story short. I went to the ER two days ago feeling as if I was having a heart attack. Pain went down the back of my arm and same GERD type pain yet even stronger. Enough that I thought if I don't go in and I die some people might be pissed that I didn't go in. Funny, I know. My blood pressure shot up from it's normal 116 over 65 to 140 over 80. Luckily the ER was able to note the BP difference. To make a long story short, my mother told me the same thing had happened to her minus the mono. She was tested by blood for H-Pylori twice both negative and once by biopsy which was negative. Finally the breath test came out positive. She was treated for H-Pylori and is much much better. When I asked about mono bringing on H-Pylori the docs looked stumped. Let me just say that many people have H-Pylori in their bodies but only some react and they suspect some of those may be immunocompromised. Why is it hard for a doctor to suspect that an immunocompromised mono patient could have already had H-Pylori and when infected with Mono it decided to react. Not only that, once you get on the medication for GERD it can affect your body's ability to absorb B12 and cause surprise surprise neurological symptoms which also explains the arthritis and eventual burning sensation in my fingers and toes which I could not get rid of. If I sound frustrated it's because I am. Either mono is the most ridiculous annoying virus or doctors are missing clues that should be obvious. So I would recommend you get an H-Pylori test and be sure it is the breath test. Also be sure that you don't take antacids 14 days prior to the test because they can skew the results of the blood, breath and endoscopy. The other reason I believe I have H-Pylori is that during the time of mono they confirmed I had a UTI as well. I was on three courses of antibiotics -- Cipro Cipro and then Bactrim I thought it was called -- something like that anway. During this time I have never felt better and never had less stomach problems in my life. This is significant to me considering that 15 years ago they said I had IBS. I have had all the lab tests done, including ESR for Rheumatoid and it all comes back negative. I am headed to the doctor today to ask him to give me a breath test and to treat me for H-Pylori and to also test my levels of Vitamin B12. If this doesn't work and these symptoms continue I will continue to pursue this until I find a doctor who will find out what is wrong with me. We need doctor/detectives which is what I think may be lacking in our health care system these days due to the pressures insurances are putting on our doctors to just get rid of the patient. I could go on and on, but I'm hoping this post might help someone else with the same issues. Good luck! I really hope you all get some help. I think mono is a terrible virus for some people and can cause many things that may not be so obvious to our physicians. I hate being sick. I can't stand to sit still. It's the only time I watch television so I"m not someone to go around trying to find out what's wrong with me. This is enough that I cannot eat well any longer and I don't want this chest pain. I want it gone. (EKG, ECHO and Treadmill were all good.) Something that may help distinguish between the two I'm not sure is that Pepto Bismol has been shown to help to a certain degree with H-Pylori. You can read about it. So I'm trying Pepto right now until I get an answer and I'll probably have to take both the Pepto and the stupid GERD medicine. Okay. Thank you, I'm done griping.

My 17 yr old daughter has had a lot of stomach/intestinal issues for the last 10 months. Has had CT scans, ultrasounds, upperGI w/small bowel follow through, colonoscopy, etc...When they did biopsies on the last colonoscopy and egd they found signs of what looked like Celiac disease, but all of her bloodwork came back negative for this. Her bloodwork did however show that she was in the recovery stage of mono. The pediatric gastroenterologist that she has been seeing at Cleveland Clinic said that mono can trigger many other health problems. They put my daughter on a gluten-free diet and within about 3-4 weeks she was so much better. She has to be on the diet for at least 6 months to give her intestinal track time to heal then the doctor will let her try to add some foods back into her diet.