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Period After Partial Hysterectomy

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LouiseV37

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Joined: 03 Mar 2007
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Location: Tampa
Period After Partial Hysterectomy
Posted: 03-03-07 16:04pm

I am 37 years old and a year and a half ago I had a partial hysterectomy because of severe anemia and fibroids. Well since the surgery I have noticed some spotting some months and more recently a near full period. Well I went to my normal GYN and she told me that the doctor that performed the partial hysterectomy left part of my uterus or the lining or whatever which is causing mini periods. I thought all that was supposed to be left was my ovaries. Is this common for a doctor to do this and NOT even mention this to the patient? After all the purpose of the surgery was to stop my menstrual cycle because of my anemia. Please help. I am considering legal action. And I am scared. I do not want to under go another surgery but my anemia is severe and I feel helpless. I can not believe this is not over. Crying
or Very sad
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Kia

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Joined: 23 Jun 2004
Posts: 6594
Location: Planet Tampaxia,

Posted: 03-07-07 11:25am

the fact you know that you had a partial hysterectomy means you were told.

in a partial hyst the cervix and a very small amount of the lower part of the uterus are left behind.
it is possible for there to be some endometrial tissue left in this "pocket" and this can be effected by the hormones produced by the ovaries.

A complete hysterectomy is when the entire uterus and cervix is removed and the top of the vagina is sewn together as a "vaginal cuff".

You really should have seen your surgeon about this when it was just some spotting as it may have been "cured" at that point by a simple silver nitrate treatment.

it sounds as if the endo tissue has now grown more - possibly extending into the cervix.

your surgeon should be able to put it right.

for the record removal of the ovaries is nothing to do with a hyst - not even a complete hyst.
removal of the ovaries is an oophrectomy (bi-lateral oophrectomy is when both are removed).
salpingectomy is removal of the tubes.
the procedure you are thinking of - where the uterus, ovaries and tubes are removed is a hysterectomy (complete or partial) with a bi-lateral salpingo-oophrectomy.
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LouiseV37

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Joined: 03 Mar 2007
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Location: Tampa
Period After a Partial Hysterectomy
Posted: 03-07-07 14:20pm

okay......Of course I was told that it was a Partial hysterectomy. What I was not told was that I could possibly bleed or have a menstrual cycle almost 2 years later. The whole point of the surgery was to stop me from having a period due to severe anemia. Confused

And the initial spotting was dark and it was very minimal. I didn't realize that it was blood. Believe me, I would have gone to the doctor. But there was no cramping or pain and it did not happen often so I didn't pay it much attention.

And I understand that the cervix is left behind in a Subtotal Hysterectomy. The cervix is not my concern. The cervix does not cause a menstrual cycle or bleeding. And if it is just a part of endometrium tissue I am not very concerned about that either. I know there are procedures for that. But if it's not just tissue but a part of the upper uterus was in fact left behind which is what an ultrasound and my normal gyn said, there is a problem. Doctors, especially surgeons are not perfect and can make mistakes sometimes.

I am hoping that it is just something like a part of lining or something like that. And I am hoping that a DNC can fix whatever is causing the bleeding.
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Kia

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Joined: 23 Jun 2004
Posts: 6594
Location: Planet Tampaxia,
Re: Period After a Partial Hysterectomy
Posted: 03-08-07 08:22am

LouiseV37 wrote:
What I was not told was that I could possibly bleed or have a menstrual cycle almost 2 years later.
because it is an uncommon occurence.
it certainly does not happen to many people and many "general" gyn won't have experienced it first hand".
But the fact remains it does happen, and you appear to be in that unlucky minority.

Quote:
The cervix does not cause a menstrual cycle or bleeding.

However, the endo tissue that can be left behind can and does grow in the cervix.
and this can look just like a regular period.
I've been there and while the reason behind mine is vastly different I have gained a wealth of information on the topic.

Quote:
But if it's not just tissue but a part of the upper uterus was in fact left behind which is what an ultrasound and my normal gyn said, there is a problem.

Part of the lower uterus is left behind in a partial. This is because it is easy and less traumatic to cut through the uterus wall than it is to try and separate the cervix from the uterus wall.
hence typically a small "pocket" of uterus is left behind.

Quote:
Doctors, especially surgeons are not perfect and can make mistakes sometimes.

and don't I know it.

Quote:
And I am hoping that a DNC can fix whatever is causing the bleeding.
a d&c (dilation and cutterage) won't be for you.
you do not have a uterus that they can fit the required tools into.

you need first to find out the genuine cause. Is it some endo tissue grown into the cervix or is it something else.
Then you need to get the surgeon to discuss your options with you and pick one that is right for you.
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LouiseV37

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Joined: 03 Mar 2007
Posts: 4
Location: Tampa
Period After Partial Hysterectomy
Posted: 03-08-07 09:43am

Thanks for the information. You have been helpful. I go to the doctor in 2 weeks. I will let you know the outcome.
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Kia

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Joined: 23 Jun 2004
Posts: 6594
Location: Planet Tampaxia,

Posted: 03-08-07 09:45am

Good luck and I hope it's something small and simple to fix Wink
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LouiseV37

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Joined: 03 Mar 2007
Posts: 4
Location: Tampa
Period After Partial Hysterectomy
Posted: 03-22-07 07:34am

I went to the surgeon that performed the surgery and he says that it is not lining that is causing the bleeding but my cervix. He did not examine me and after looking at the ultrasound that said that there was some lining still there he said the pathologist did not know what they were talking about. Have you ever heard of this? I am really confused. Confused
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MrsT

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Joined: 22 Sep 2005
Posts: 2
Location: Canada

Posted: 06-09-07 15:06pm

I see this was posted in March but I am just surfing the net now trying to find out what is wrong with me.
I had a partial hysterectomy 9 years ago. My doctor told me he left the cervix and ovaries although he did remove a cyst on one of my ovaries. Well I have been spotting on and off for a few years now and my doctor has since retired and I found a new one that told me it was my cervix that bled occassionaly. I always wondered how you could bleed without a uterus. Well this month it was quite heavy and a brownish colour and lasted a couple days, just like a period would. I have been searching the net for years to finally find someone that has the same thing as I do and I have talked to others that have had partials and nobody has ever had any bleeding. But I think I am feeling a bit more at ease now after reading your story. I really don't like going to my gyn. as she is always in a rush and makes me feel foolish for asking questions.
Anyhow it is nice to finally hear somebody that has what I do.
Thanks.
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yferguson

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Joined: 31 Jul 2007
Posts: 1
Spotting After Partial Hysterectomy
Posted: 07-31-07 23:53pm

I had my partial hysterectomy a year ago after the birth of my son. It was an emergency hysterectomy and part of my uterus was left (a small part). I have been have mini periods also. This does not happen every month but when it does it is brown discharge for a day or two. My doctors says this is normal after a partial hysterectomy following birth.
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westendchik

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Joined: 18 May 2008
Posts: 2

Posted: 05-18-08 21:13pm

i had a hysterectomy 8 weeks ago and have already had two mini periods.i asked my gyn before surgery if i would have these and she said no.i am making an apointment first thing next week to see what we can do.i cannot believe i went through all of this and still have monthly pain, bloating and irritability and bleeding,(which lasts by the way for six to seven days)just like before.i was really looking forward to a life without this, i really hope something simple can be done.. i will keep you posted..
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amp4283

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Joined: 27 May 2008
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Location: , NJ US
getting frustrated after part. hysterectomy
Posted: 05-27-08 08:24am

I had a part. hysterectomy on march 3, 2008. I was so excited that I was getting this done because of years of blood clots the size of a dollar, going thru a bag of 54 pads and 1 box of 44 super plus tampons in a week and a half. I couldn't wait!!! After I got the procedure done, I have been spotting and sometimes bright red! I was getting very frustrated to say the least! Mad I couldn't understand why I was still getting a period. I called the doctors office to see if I was crazy. The nurse told me it can be normal and only to worry if it is bright red for a couple of days. I am not sure if it is from working out too hard or from lifting heavy things or what!! The biopsy from the uterus showed I had this thing called adnomiosis or something like that. The surgeon said that my uterus was growing into my muscles or something like that. maybe it has to do with that? I have no clue. My aunt had a partial done, and she never had any problems of blood! If anyone had this let me know!!! VERY CONFUSED WHY THIS IS HAPPENING!!!
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lmi728

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Joined: 02 Jun 2008
Posts: 1
Spotting after my partial hysterectomy
Posted: 06-02-08 23:35pm

I am 43 and had a partial hyst. last year and two days ago I started spotting w/blood clots and I was really surprised and worried. When I got the hyst. my doctor told me I would never have a period again and I'm having one with all the cramps that go with it. I got scared and went to the doctor today and he told me that this happens sometimes and if it keeps happening then he can use medicine to burn it to make it stop. He did a ultra sound and saw all the blood. I just think it's weird. He did a pap test to make sure nothing else is going on too. I'm glad it was nothing else because my family and friends were telling me it could be all kinds of things. Needless to say I am relieved, but I didn't want periods anymore, although, the good thing is that he can fix it with medicine.
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westendchik

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Joined: 18 May 2008
Posts: 2

Posted: 07-23-08 19:29pm

hi ladies.. i have since went to my doctor about my bleeding post hysterectomy(read my earlier post)at the appointment she put me right up on the bed and she burned the lining inside. it did not hurt , just uncomfortable.she also took some ultrasounds to see if i was internally bleeding from surgery .for some reason my ovaries are covered in blood so i am going through more tests.. but since she burned my lining i do not bleed anymore,and it is great!!!!!!!!!!! this is the way it is suppose to be.so ladies the bleeding is not normal, the doctor has left lining on your cervix and it is easily burned off in their office.so please go and talk to them about this, it is not fair to go through what we went through to still bleed when it is all over.. so good luck
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