My 14 year old son had been having these very unusual sleep episodes since October last year. They started spasmodically and have increased in frequency ever since, becoming nightly for the last month.
He falls asleep easily and within 15 min of him going to sleep he starts tossing and turning, throwing himself around the room. Not like a siezure, but floppy and we cannot rouse him at all. He falls off the bed and squrmes around the floor, or just kiks out or throws his arms out. He does this so hard, he has bruised his limbs, but remembers nothing the next day. This can go on for up to 5 hours, and he becomes very strong and almost imposible to contain in his bed
We have taken him to the Doctor and he has been taken to Hospital in an ambulance on several occasions because he has hurt himself during these episodes. He spent 2 weeks in Sydney's Childrens Hospital, and none of the Doctors can give us a diognosis. They have put him an a medication that sedates him, but it hasn't stopped the episodes. All they can say is that they havn't seen anyting like it in the past.
He has had eeg's and a sleepstudy, which was inconclusive. He also had a sleep deprived eeg, but he slept through this without any movement at all.
If anyone out there has had any experiences like this or know of someone who has had anything similar, I would be truly glad to hear from you
Desperate mum.