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Subarachnoid Hemorrhage Survivors?? (Page 1)

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Hello.

A close family member of mine had a subarachnoid hemorrhage about a year ago. Followed with a heart attack, and multi-organ failure. She spent 7 weeks in the ICU. Overall, she spent about nine months in four different hospitals, mainly doing physical & occupational therapy, as well as speech therapy. She's back home now, and doing great! She's able to safely stay by herself. She's walking around (with a rolling-walker), bathing by herself, cooking on the stove and oven, doing chores around the house. She's almost back to her old self.

The doctors say that it's a miracle that she's alive and doing so well. I was just wondering if there are anymore people like her out there. If so, I would be highly interested in hearing your story. As well as any tips you may have to help me out in my daily routine...
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First Helper Kraftyk
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replied July 5th, 2008
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Hi Sweetie! Me Fairy*Godmother
Please come back to eHealth....... I'm a survivor and I'd love to talk to you!
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replied July 31st, 2008
Subarachnoid Hemorrhage Survivors??
I am a 1 year and 1 week survivor of a SAH (at age 47). I was miss diagnosed by one ER and then sent home by another ER 2 days later (knowing I had a SAH). 7 days later I landed in an ICU after suffering from vasospasms. One Neuro doc diagnosed me with vasculitis another with Call Flemming Syndrome. My new primary doc doesn't know what to think.

I don't have any outward physical disabilities, but my legs just don't work the same as they did prior to the attack. I suffer from extreme fatigue, confusion and memory problems when I'm tired. I am able to work and take care of my home, bike a few times a week and rollerblade too, but I can no longer run.

I long to be back to normal but, I think this will be my normal from here on in. Oh well, sure beats the alternative.

I hope your family member is doing well.
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replied August 1st, 2008
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I can relate!
Feb 3 1999........9 year survivor! The fatigue, memory problems and confusion are a nightmare. I know people get so mad at me having to repeat things or tell me over nad over again, because I simply forgot. I can ride stationery bike, but hte treadmill is a no no.....throws me off! Did you have crainiotomy and have titanium clip? I can not recall passing out at the wheel of my car, running through two fences and crashing into a tree. I do not remember the accident, I had blacked out because the blood had leaked into my head. I had to relearn to walk, my husband said I was like a 4 year old for about 2 months. Normal?............I was NOT normal before this and I sure don't want to be normal now! Life is precious.......not a minute to be wasted or taken for granted! I can't very well go back into a lab under a fume hood to mix chemicals......cauee I can't remember! I love my life......forgetfulness and all! Oh,I still have headaches......you?
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Users who thank Fairy Godmother for this post: morganna50 

replied August 7th, 2008
Subarachnoid Hemorrhage Survivors??S
Forgive my delay in responding Fairy*Godmother, I've been attending meetings out of town.
I was fortunate in that I did not black out when the first attack happened. I was in the middle of a presentation when it hit and I thought I was having a stroke, but I did'nt have any physical signs of one. I drove myself home (1.5 hr commute) and suffered a second attack. My husband rushed me to the ER where my bp was 210/100. They treated me with pain meds, did a spinal and CT, both were clear. 2 days later during a follow-up visit to my primary Boom, I got hit again. This ER detected the bleed, but sent me home to recover. 7 days later after having an angiogram I ended up in the ICU.

My treatment was high dose prednisone for 6 months (instant 30lbs) along with a low dose of Norvasc, blood pressure medicine.
I still suffer headaches when I'm stressed and tired. I also have two aneurysms (did not cause the bleed) that they are watching with an MRA every year. If they get to be 6mm they will coil them, but for now they are just sitting out there. Some days I just do'nt want to get out of bed and others I can get up and start the day early enough.

My memory is terrible. I really noticed it this evening when I wanted to tell my husband something, but could not for the life of me remember what on earth I needed to tell him. It's like poof the though is gone and just can not retrieve it. I rely on my Franklin Planner to keep me organized and on track.

Well, it's almost 9pm and I am struggling to keep my eyes open, so I best be going. Have a great evening and hope to hear again from you.
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replied March 13th, 2009
coiled brain aneurysm
I had SAH 3 years ago, and it was coiled successfully. Recently, my MRA showed "a small opening." I don't know just what that means. My doc wants to see me again in 6 months for another MRA. I just wish I had been alert enough to ask questions. NOW, I have a lot of questions. Has anyone been told later that they had a "small opening?"
My short term memory is bad, but I don't suffer from headaches. I tire easily also.
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replied September 9th, 2011
Yep. I have a 'small opening'.
I dont know what it means either. Was in hospital for 3 months last year and still not well with headaches an dizziness. I get so tired but have started to just say no to people who ask me to go out etc. It took me a long time to accept that I would have to change my life and I still struggl. I like drinking and dancing and socialising but have to keep it to a limit and I havnt danced for a year. Keep going.XXX
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replied March 13th, 2009
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HI and welcome to eHealth!
Hi Lousie! Welcome to eHealth. As stated, I have "state of the art TITANIUM clips" up there holding it all together!I love saying that! Always good to meet other survivors. My grandmother had aneurysm exact same location as mine, but hers burst before we could get her to the hospital and she died. That was in 1993. As for your question "a small opening"....if this were me, I'd find another neuro surgeon and get another opinion. There is no way I could go day in day out as you are having to do....not knowing what "a small opening lets keep an eye on)...not in this lifetime...This is your head we are talking about. A lot could happen in 6 months.....a lot could happen in one month....this is not a quessing game. Please keep us posted! FGM
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replied August 28th, 2012
Subarachnoid hemmorhage
Hello, I have a 21yr son in ICU right now because of a motorcycle accident. He did not have a helmet. He hit with his left side of his forehead. They said he had Subarachnoid hemorrhage. He had the breathing tube on for 12 days and finally 4 dys ago they took it off and took off his sedation meds and pain medication about 3dys ago. His eyes are wide open and he see's us and we call his name and he looks at us and he moves his hands and legs and he wants to get up from the hospital bed. But, he doesn't talk and he doesn't pass a swallow test. The doctors say that he should be talking by now. Since it has Been 4dys now. They said the way he is looking now is that he will stay with a full disability status and worse case senerio is that he will be on a feeding tube for long term and probably be in a bed for the rest of his life. I just want to hear from recovering head injuries from a SAH.. Is there hope for my son to recover and start talking and moving and eating on his own again? His vitals and blood work and ct scans are all looking normal everyday. He sleeps a lot why? Is that normal? He has a infection of staf caused by the tube being in to long. So they are giving him a strong antibiotic to kill the infection and he is barely getting a feeding tube this morning. It has been 4 dys without a feeding tube just some liquid for potassium. Are does any reasons for him sleeping so much? Please anyone respond to my question. I'm so scared for my son. But I have hope. And have a lot people praying for full recovery. Just don't know if that's enough for him to return to normal. Please help!!!!
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replied May 7th, 2009
wow! not many of us are there!?
hello !

- i had a grade IV brain hemorrahage around 18 months ago.
recently i have been trying to find a forum - to read about other peoples experiences.
its wonderful to be alive - its this simple thought that keeps me from loosing my mind complelty =)
i pray anyone who has to face this all the love in the world - and also one hell of a speedy recovery.
i will bookmark this site in case there are any replies - to guide me to a forum - it would be just remarkable to finally talk to other people to see how they cope/get through daily life.
the sad thing is only 4-6% survive this kind of accident - so i guess its expected that not many of us left to swap helpful advice =/
God bless !

james.
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replied July 17th, 2011
James,

I just found this site. I am a 3 week survivor of a subarachnoid brain hemmorrhage. The bleed stopped on its own so i escaped surgery. I have a headache daily and weird sensations in my head. I am dizzy, off balance, having vision problems and strong panic/anxiety attacks. I hope u still have this bookmarked cause I would like to see how you have progressed.

Thanks Debbie
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replied October 20th, 2011
Hi Debbie. I am 14 months on and have been for a hell of a ride both physically and emotionally. I am still suffering pains and strange sensations in my head but through a series of doctors have finally...I hope...found medicine that seems to be working. As well as the physical problems the mental problems are a hinderance. I am suspicious of anyone trying to help me and have had to apologise to all my friends for my behaviour but they are all so understanding..and are all still my friends!!! There is light at the end of the tunnel but you need to be patient.My whole life has changed and it is only a year on that I am starting to accept that.
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replied October 26th, 2011
Hi James. Im a survivor...last year had a massive bleed and was taken for dead. The doctors were going to switch my life support of but my partner would have none of it. Seemingly he was screaming and shouting at me to respond. Eventually I moved my toe then they made me swallow. That entitled me to be sent for coiling and here I am today.Its been a hell of a journey with balance problems, short term memory loss, storming headaches and panic attacks. But I am alive and I love life. I treat everyday as if it was my last.I wish you all the best and I know exactly what you are going through. We are the lucky ones...like you say not many survive. So keep going. CAROL XXX
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replied October 26th, 2011
Can everyone please excuse me. Im new to this site and am trying to learn how to navigate it. Its very difficult when you have a memory of a goldfish. So please forgive me if make a mess up and keep repeating myself...Morganna.
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replied June 22nd, 2009
my son had a hemorhage in his left frontal lobe 15 months ago he was at a party
And complained of a headache the next morning his friends found him passed out
On the floor. They rushed him to the er and a cat scan showed a large bleed. They
life flighted him to tulane and did emergency surg. They said the hemhorage was
Very large 6 cm. And didn't know what to expect when he woke up. He was in a coma
For days. This was the hardest thing we've ever gone through. We have 2 other teens
Who are wonderful, but this was the one who excelled at school his grades were at the
Top. School was so easy for him, the other two struggled. I have the full.story and pics
On carepage.com anyway he finally woke up after about a week and didn't know our names
Didn't know or remember where he was even when asked a few seconds after hearing the
Answer. But thank God a coulpe weeks later his memory and everything else almost back.
He did strugle like with finding the right words to things he wanted to say for a few months,
The graduated with his class 4weeks later by doing home bound the teachers were great.
Now 15 months later he still has no perifial vision, seems his personality is a little different
Dosent seem to have any motivation to do anything except hang out with friends. He's just turned 19 took his act last week but is depressed because he says he did terrible. I told him
Not to worry that he can take it again if he chooses. I'm so happy to have him he's a miracle
And is doing great.
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replied June 22nd, 2009
oh I forgot the name of his page on care page is justinsfight
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replied June 26th, 2009
=)

i am so happy you have him back - and even happier he is able to hug you freely =)

i used to have limits on what kind of life i thought was acceptable and what was not.

Unless you are being tortured on a daily basis - i would say anything else is wonderful.... and truly a blessing.
Im ashamed to say that previously in my life i held the view that if i was wheelchair bound with limbs missing - i would rather not be alive.
I am rather more proud - and a little more wiser to know that as long as i can breathe and simply see - or hear... the art of communication and the love between people has shown me that it is the basic humble simple things in life that bring so much joy and happiness - that enrichess my daily life !

i guess what i am trying to say is take one step at a time - take things very very slowly - and be happy - very happy at what you have, every minute, every day,
and love each other - truly.
God bless =)
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replied October 15th, 2009
Hi, I had a subarachnoid Hemorrhage in 2007. I was at work when i was knocked to my knees from the intense pain. I was in ICU for several days and stayed in the hospital for 13 more. They could not coil because it had already bled out. My wife says the Vasospasms were the worst. I remember bits. I tried going back to work but recently gave in to the headaches. I dont sleep very much and take meds for depression. I thank the Lord above for each day I have with my family.
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replied December 28th, 2009
my sister, 12 years old is in a coma suffering from sub arachnoid hemorrhage. Doctors say she has no hope only our prayers. Apparently from these posts some do survive, for all of those who read this, please pray for her safe and quick recovery.

thank you.
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replied May 8th, 2011
God Bless you and your family ...
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replied March 21st, 2010
Hello All,

My Mom 72 had a Subarachnoid Hemorrhage on this Feb 14th. This was due to a 5.6mm dia aneursym. She was in coma for 3 weeks but now slowing regaining conciseness. Since last 2 weeks She is opening her eyes and responding to pain. Though there are no any voluntary movements. Doctors earlier said she will always remain bed ridden as she was in a CVC (vegetative stage).

I love my mom very much and cant see her pains. I want to get her out of this at any cost. I would like to know from any of you with this deadly experience on how I could help her get out of this.

I certainly believe she knows whats going around her. Her pulses also grow when I hold her hand and talk to her. The expressions on her face changes when I talk to her about certain good memories. I believe her brain is not dead as doctors say. Please help me to save her.

Thank you.
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Users who thank Yosista for this post: sunshinemoon2010 

replied February 14th, 2012
Hi. My mom is 75 and suffered a SAH exactly 2 weeks ago. She's been, what doctors explained, "waxing and weening". She hasn't spoke a word since this occured, but she smiles when she sees my kids. My heart is also broken and I'm desperate to find answers. I know the doctors can't give us a prognosis, but I'm trying to remain hopeful that I'll have my mom back again. This is the hardest thing I've ever had to go through in my life. Please let me know the outcome of your mother's health. I pray for your mom and her situation. I'm anxious to hear some survival stories, but I'm aware of the grim possibility. God bless you and your family!
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replied April 8th, 2010
hi i had a sub hemorrhage 18 months ago and thankfuly made a full recovery.I now suffer from memory problems and some days i feel really down and others i feel great,does any body know do you ever get back to how you used to be.I cant sleep much even when i feel i need to as i write this its 4 in morning.Im glad i came across this site as any one i speak to just doesnt understand.
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replied April 15th, 2010
Hi, I suffered a sub arachnoid haemorrhage on the 13th March 2008. I am grateful that I survived but left with disibilites which I can live with that. My biggest problem is the constant balance and dizzy spells along with the nausea.
I think that I lost the person I once was I have never been the same again and it's only now that depression is setting in and too much frustration.
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replied May 13th, 2010
I suffered a SAH in Nov 2009, I have started to get more frequent dizzy spells the last week or so. I also have a headach which feels a bit like brain freeze and prickly feelings in my head. Can anyone tell me if this is normal.
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replied May 15th, 2010
SAH in 1994
I too had a SAH in 1994 I spent approximately 2 months in the hospital. Mine was in the occipital lobe because of the area it was in I had vision problems requiring new stronger glasses. It left me with short term memory problems and headaches along with speech problems through diligent doctors and speech therapy I regained most of my speech but the memory is still a problem. I had a light problem so going out into the sun was not happening it is still there but not as bad. I also have PTSD so depression is a major problem. my savior was the lord a lot of prayers and total faith I woulg get through this.

to all who read this may god bless you.
Walt
a servivor
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replied June 21st, 2010
Subarachnoid Hemorrhage
My dad is 51 and suffered this horrendous cruel act of nature about 3 weeks ago. i have been scouring the internet trying to find some answers as to what the future holds and how i can help him....
They told us that there was no hope but then informed us that the blood had got to the part of the brain responsible for the movement of muscles and that the personality part of the brain seemed to be in tact. he was in a coma for the first week and has now been moved to a high dependency ward.
he can open his eyes now. and seems to move limbs when we touch them but not always on command. he can't speak at the moment due to a tracheotomy. he's so sleepy all the time Sad
am i asking these questions too soon as to how well he'll recover? the doctors don't seem to know how it will go...
does anyone else know of someone who has suffered this sort of devastation?
many thanks in anticipation....
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replied June 22nd, 2010
I know what you are going through.
To any of you that are suffering from a loved one going through this horrible experience, I too went through this when my mother suffered a ruptured aneurysm SAH and would be willing to answer any questions any of you may have. Trust me when I say I KNOW EXACTLY what you are going through, and may be able to provide some answers about the process going forward for your loved one, yourself, any of you.
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