Bone Cancer Forum - Bone Island Or ????

Cancer > Bone Cancer Forum > Bone Island Or ????

Q: Bone Island Or ????

asked by: mph on February 13th, 2007

New User

Hi there, hoping to get some help here.... Our son is now 18 been going thru this undiagnosed for 9 yrs! Did the x-rays, mris, bone scan, pet scan now weve gone full circle, all the specialities. Now we are back to ortho.... Our ortho took x-rays yesterday & something finally showed, going in for an mri in 2 days. Then bone scan.
Symptoms: bone pain in the one area of lower femur and upper tibia. Severe now, would not be able to walk with out meds. Microfractures in those areas for 5 yrs now. Stomach pain,severe naseau, vomitting... Due to pain? Headaches, found a pituitary tumor. My question: the ortho saw something.... I asked what. He didnt really want to get into it with out a mri, said maybe a bone island. I immediately started researching: bone islands do not cause severe pain & are them from birth? Any ideas, after all this time i'm just glad this horrible thing has raised its ugly head & now we can fight it. Please help & reply..... Thankyou all!

Replies(10)

mph

replied on February 25th, 2007

New User

Found More On Mri.....

had the MRI done, bone scan in 2 days.... Found numerous "bone islands" on the tibia and femur bone marrow....
IF ANYONE has any ideas please let me know!!! thankyou in advance

notsogoodshape

replied on January 23rd, 2009

New User

bone island pain

My Dr. just told me that my shoulder pain is being caused by a bone island. Just to let you know, it does cause terrible pain. Haven't seen the orthopedist yet.

ajagosto

replied on February 18th, 2009

New User

sever hip pain

my pain managment doctor sent me in for my 5th x-ray of my hips and just now found what he said was bone island on the head of my femur. i have experienced sever pain now for over a year and it just showed up now. i'm going to an ortho this month to discuss removing it.

Users who thank ajagosto for this post: mph50

mph50

replied on March 2nd, 2009

New User

Bone islands, let us know results of your surgery

Hi, wow, 2 posts now, thanks. Let us know what the docs say about the islands. Also how the removal goes. Can you describe the pain & how often, when, etc. I really appreciate your answers.

mph50

replied on March 2nd, 2009

New User

thankyou, let me know what doc/surgery says

thanks

Sebley

replied on March 10th, 2009

New User

Lumbar bone island

I have been going through the same thing as your son now for 6 yrs now. I am 51 and have MS and I had an episode of not being able to stand very long because my back hurt so bad. I was hospitalized and found that I have a benign bone island on my L1 vertabrae. I am always having bone scans and when I do they say it is metastisised but the MRI says it is not. This has happened 3 times on 3 different occasions. I still have alot of pain and they say to just wait and see. I also get epidurals in my lumbar if the pain is too unbearable as it makes it easier to stand and walk. Sometimes an Epidural shot can last a year and to me its worth it. You may need to find a good pain consultant to get started but first find out if his bone island is benign. Best of luck to you and your son.

Users who thank Sebley for this post: mph50

mph50

replied on March 10th, 2009

New User

sebley

thankyou, he has bone island on T1/T2. He has herniated discs on L4/L5 and L5/S1. T7/T8 small Schmorl's node? Bone island(s) on the end of his tibia and femur---left leg only.
I thankyou for describing the pain. He is under the care of a pain consultant,thankyou for mentioning it though,he could not walk without treatment. CAN i ask where you are, location? What kind of doc besides pain management would someone see for the bone islands? We are going at the end of the month to a ortho-oncologist. Is there someone else that you have seen for bone islands? Treatment. Your messages go thru to my email. I wish we could "chat" but do not want to post my email for general to see. Please reply! I truly appreciate your help.

mph50

replied on March 10th, 2009

New User

bone island treatments???

Anyone out there had treatment(s) that have taken away the pain of bone islands? What specialist did the treatment? Any in the San Francisco area UCSF, Stanford, UCDavis? Thankyou all very much, from a mom who just wants her son out of pain!

Sebley

replied on March 10th, 2009

New User

bone island

I saw Dr James M. Voci of St Clair Shores and Harper, Detroit Mi. He is a wonderful and very educated Doctor. He specializes in many Neurological disorders and he is the one who found the bone island on my L1 Vertabrae. I am located in Mi. Hope this helps you.

Sebley

replied on March 10th, 2009

New User

treatment for bone island

Hi,
I only recieved Epidurals in my lumbar L1 vertabrae by a pain consultant. You can however request a small biopsy as to relieve your stress. This is what I will be having the next time it brings me down again... and I mean physically. yes, seeing an Orthopedic surgeon is a great idea too.

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