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Bone Island Or ???? (Page 1)

Hi there, hoping to get some help here.... Our son is now 18 been going thru this undiagnosed for 9 yrs! Did the x-rays, mris, bone scan, pet scan now weve gone full circle, all the specialities. Now we are back to ortho.... Our ortho took x-rays yesterday & something finally showed, going in for an mri in 2 days. Then bone scan.
Symptoms: bone pain in the one area of lower femur and upper tibia. Severe now, would not be able to walk with out meds. Microfractures in those areas for 5 yrs now. Stomach pain,severe naseau, vomitting... Due to pain? Headaches, found a pituitary tumor. My question: the ortho saw something.... I asked what. He didnt really want to get into it with out a mri, said maybe a bone island. I immediately started researching: bone islands do not cause severe pain & are them from birth? Any ideas, after all this time i'm just glad this horrible thing has raised its ugly head & now we can fight it. Please help & reply..... Thankyou all!
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First Helper notsogoodshape
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replied February 25th, 2007
Found More On Mri.....
had the MRI done, bone scan in 2 days.... Found numerous "bone islands" on the tibia and femur bone marrow....
IF ANYONE has any ideas please let me know!!! thankyou in advance
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replied January 23rd, 2009
bone island pain
My Dr. just told me that my shoulder pain is being caused by a bone island. Just to let you know, it does cause terrible pain. Haven't seen the orthopedist yet.
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Users who thank notsogoodshape for this post: MawMawVik 

replied February 18th, 2009
sever hip pain
my pain managment doctor sent me in for my 5th x-ray of my hips and just now found what he said was bone island on the head of my femur. i have experienced sever pain now for over a year and it just showed up now. i'm going to an ortho this month to discuss removing it.
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Users who thank ajagosto for this post: mph50 

replied March 2nd, 2009
Bone islands, let us know results of your surgery
Hi, wow, 2 posts now, thanks. Let us know what the docs say about the islands. Also how the removal goes. Can you describe the pain & how often, when, etc. I really appreciate your answers.
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replied March 2nd, 2009
thankyou, let me know what doc/surgery says
thanks
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replied March 10th, 2009
Lumbar bone island
I have been going through the same thing as your son now for 6 yrs now. I am 51 and have MS and I had an episode of not being able to stand very long because my back hurt so bad. I was hospitalized and found that I have a benign bone island on my L1 vertabrae. I am always having bone scans and when I do they say it is metastisised but the MRI says it is not. This has happened 3 times on 3 different occasions. I still have alot of pain and they say to just wait and see. I also get epidurals in my lumbar if the pain is too unbearable as it makes it easier to stand and walk. Sometimes an Epidural shot can last a year and to me its worth it. You may need to find a good pain consultant to get started but first find out if his bone island is benign. Best of luck to you and your son.
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Users who thank Sebley for this post: mph50 

replied March 10th, 2009
sebley
thankyou, he has bone island on T1/T2. He has herniated discs on L4/L5 and L5/S1. T7/T8 small Schmorl's node? Bone island(s) on the end of his tibia and femur---left leg only.
I thankyou for describing the pain. He is under the care of a pain consultant,thankyou for mentioning it though,he could not walk without treatment. CAN i ask where you are, location? What kind of doc besides pain management would someone see for the bone islands? We are going at the end of the month to a ortho-oncologist. Is there someone else that you have seen for bone islands? Treatment. Your messages go thru to my email. I wish we could "chat" but do not want to post my email for general to see. Please reply! I truly appreciate your help.
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replied March 10th, 2009
bone island treatments???
Anyone out there had treatment(s) that have taken away the pain of bone islands? What specialist did the treatment? Any in the San Francisco area UCSF, Stanford, UCDavis? Thankyou all very much, from a mom who just wants her son out of pain!
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replied March 10th, 2009
bone island
I saw Dr James M. Voci of St Clair Shores and Harper, Detroit Mi. He is a wonderful and very educated Doctor. He specializes in many Neurological disorders and he is the one who found the bone island on my L1 Vertabrae. I am located in Mi. Hope this helps you.
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replied March 10th, 2009
treatment for bone island
Hi,
I only recieved Epidurals in my lumbar L1 vertabrae by a pain consultant. You can however request a small biopsy as to relieve your stress. This is what I will be having the next time it brings me down again... and I mean physically. yes, seeing an Orthopedic surgeon is a great idea too.
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replied March 6th, 2010
bony island
ladys i had to have an mri due to a fracture in my knee and the mri found an bony island , my orthopedic said it was nothing to worry about that a bony island is not cancer and will never turn in to cancer . but after reading some of your post one lady said her swas not cancer . now i am not sure what to believe . i always thought that i had nothing to worry about with this bony island .
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replied May 13th, 2010
small bone island
I also have a small bone island in my left hip. I am 29yrs old and it causes a terrible hurt when i am standing or walking for more than 10mins. It's much more terrible when the weather get cold. I did Xray last few days but cant say anything so i need to go to hospital and check it again with ultrasound or whatever it is. I wish that i can get over this as i want to have baby in this or next year Sad
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replied April 13th, 2011
any bone island treatments?
hi, any thing show up? Did you have it treated or removed. Docs are telling us they cannot be painful, funny as the one is excruciating, and cannot be removed. I hope the docs suffer for their non compassionate care.
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replied September 30th, 2010
What exactly is a bone island???
I was just in the ER for 5 hours, I had pain in my right side and it radiated all the way to my kidney are and toward the front. They did a ct and said they found a bone island on my right femoral head. The pain starts just above the hip bone but not the hip itself. They said I have to go for a bone scan! Still don't really understand what a bone island is!
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replied May 26th, 2011
I have had a bone island in my lower pelvis for 20 years...and YES they cause pain!
I feel bad 4 your son Sad
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replied September 7th, 2011
bone islands
Hi JoJo... do you know of any treatment?
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replied September 7th, 2011
bone islands
Hi JoJo... do you know of any treatment?
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replied June 2nd, 2011
Bone Island
Hi I dont claim to be an expert in this area at all but I just stumbled across this forum about your son and bone islands.

Usually bone islands are asymptomatic and clinically insignificant. A bone island is a sclerotic density on x-ray which means more bone has been laid down which would not fit with the micro fractures. Bone island would also not really cause systemic problems.

You can find more information on bone islands in a book called essentials of skeletal radiology by yochum and rowe.

Also has the pituitary tumour been further investigated as this can lead to a disease called cushings disease, which can lead to osteoporosis and other systemic problems due to excess cortisol?? just an idea

Also the schmorl's node is basically just where the disc inbetween the vertebral bodies pushes into the body slightly causing a lump in the body of the vertebrae. Again nothing really to significant and you can find more about those in the book I mentioned before.

I hope you find the answer soon Smile
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replied June 5th, 2011
hey thanks all.I am sick of arrogant docs saying they are not painful. Well he has 2 that are not and one that has ruined his life. Pain meds, is that the only treatment? I would love one of the docs to feel a tenth of the pain he has had for 13 yrs now! His were most likely caused by an environmental toxin when he was 9 or so. MTBE destroyed 13 of 26 of our towns wells. He swam in it,swim team, showered in it, drank it. I know it has something to do with it. I only want him out of pain... is that too much for a mother to ask for??? JoJo1956 have you had any treatments? Anything that works for you? What caused your bone island? thanks
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replied April 12th, 2012
http://www.wnd.com/1997/07/3114/ I don't know it there's an MTBE link your son's condition, but here's information on the MTBE mandate. I broke bones in my back and neck. Subsequent Cat scan revealed a bony island in T 7 which I wasn't aware of nor ever caused me pain.
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replied November 19th, 2012
Hi I did read that they can be removed via surgery if they are causing pain. The person that replied before did not get to the part that states that some people do experience pain from bone islands and that those that do usually go to an orthopedic as well as work with an oncologist to make sure it is nothing more serious. Bone islands can be mistaken for other more serious things...I just found out I have one on my hip and have not been able to sit or stand due to severe hip pain for 2yrs but everyone kept looking at my bAck no one would listen to me and finally they did a ct of my hip and I have that as well as a growth on top of it aka mass.. best of luck hope this helps you.
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replied June 5th, 2011
hey thanks all.I am sick of arrogant docs saying they are not painful. Well he has 2 that are not and one that has ruined his life. Pain meds, is that the only treatment? I would love one of the docs to feel a tenth of the pain he has had for 13 yrs now! His were most likely caused by an environmental toxin when he was 9 or so. MTBE destroyed 13 of 26 of our towns wells. He swam in it,swim team, showered in it, drank it. I know it has something to do with it. I only want him out of pain... is that too much for a mother to ask for??? JoJo1956 have you had any treatments? Anything that works for you? What caused your bone island? thanks
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replied June 6th, 2011
I don't know how long I have had it, it showed up on a bone scan I had over 20 years ago. I had always had pain in my lower pelvis but it was always attributed to my Endometirosis and adhesions. I aksed the doctor if the bone island could be a contributing to that pain and he was it could. I am on pain meds for years, no doc ever said anything to me about fixing or removing the bone island so I am as perplexed as you...it is just that your son is way to young to be in so much pain and on pain meds Sad I'm sorry I have nothing more concrete to offer...good luck and God Bless you & your son.
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replied April 6th, 2012
I was wondering how your son is and what the latest update is?? My bone island I guess isn't much to complain about. It's in one of my toes. I think I have had it for almost 20 years and right now I have the dull, aching pain and swelling. It was found accidentally when I was being xrayed for RA damage due to swelling and pain in my feet. I hope I won't need surgery on a toe (gees!) when someday I'll need something done with my thumbs or so the hand therapist said.
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replied July 3rd, 2011
What is a Bone Island in L5 vertebre?
I happened across an old MRI this weekend after cleaning my file cabinet and it shows that an incidental note is made of an L4 hemangioma and small bone island is noted in the posterior aspect of the L5 vertebral body. Other than that everything else seems to be okay. I had this MRI back in 2008, a year after I fell and broke my tib/fib. I have a whole list of problems and I am only 33 yrs old...
*arachnoid cyst in posterior fossa/brain cyst
*left tib/fib fracture, re broken, with cadaver bone,screws and plates eventually removed
*right knee cartilage removed
*jaw bone fracture in 3 places
*ACDF surgery with cord compression, titanium plate with screws and cadaver bone

LOTS of Pain in my lower back for 3 yrs now, was told it was DDD, Spondolysis...

Have been on PM since leg fracture, in 2005...
Thanks and ANY HELP IS VERY MUCH APPRECIATED
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replied July 4th, 2011
Especially eHealthy
leelee,

Hemangiomas and bone islands are both considered incidental findings on x-rays or MRI. An hemangioma is a tangle of blood vessels, usually within the body of the vertebra (they can also be found within the skin). The vertebral body already contains a lot of blood vessels anyway.

A bone island is an area of cortical (dense) bone that is in the cancellous (spongy) bone. It is normal bone, just sort of out of place.

There are many anecdotal stories that bone islands causing pain. Most are not substaniated. In extremely rare cases, a bone island may be confused with the early stages of an osteoblastic tumor. But, these have other signs and symptoms associated with them.


So, in the vast majority of cases, these are just incidental findings of no significance. But, if you are concerned, you should discuss the finding with your orthopedic surgeon.

Good luck. Wishing you the best for the future.
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Users who thank Gaelic for this post: leelee_is_me 
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