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mph

New User, Becoming EHEALTHy

Joined: 13 Feb 2007
Posts: 2

Bone Island Or ???? Posted: 02-13-07 23:06pm


Hi there, hoping to get some help here.... Our son is now 18 been going thru this undiagnosed for 9 yrs! Did the x-rays, mris, bone scan, pet scan now weve gone full circle, all the specialities. Now we are back to ortho.... Our ortho took x-rays yesterday & something finally showed, going in for an mri in 2 days. Then bone scan. Symptoms: bone pain in the one area of lower femur and upper tibia. Severe now, would not be able to walk with out meds. Microfractures in those areas for 5 yrs now. Stomach pain,severe naseau, vomitting... Due to pain? Headaches, found a pituitary tumor. My question: the ortho saw something.... I asked what. He didnt really want to get into it with out a mri, said maybe a bone island. I immediately started researching: bone islands do not cause severe pain & are them from birth? Any ideas, after all this time i'm just glad this horrible thing has raised its ugly head & now we can fight it. Please help & reply..... Thankyou all!

mph

New User, Becoming EHEALTHy

Joined: 13 Feb 2007
Posts: 2

Found More On Mri..... Posted: 02-25-07 23:25pm


had the MRI done, bone scan in 2 days.... Found numerous "bone islands" on the tibia and femur bone marrow.... IF ANYONE has any ideas please let me know!!! thankyou in advance

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