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Conditions and Diseases > Arthritis Forum > Joint Dislocations And Pain
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Q: Joint Dislocations And Pain
asked by: Bethanyatg on February 12th, 2007
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I have a disease called ehlers danlos syndrome. I can roll over in the night and my shoulders can dislocate. I have a bag full of different types of braces for all of my main joints. (wrist, elbow, knee, and an ankle foot orthotic)
ehlers danlos is a type of arthritis and can cause serious pain. The pain consumes ever moment of my life but I have a sibling and daughter with totally different issues than I do.
Google ehlers danlos and find info if you have any of the following symptoms.
Pain,
dislocations,
bruising,
swelling
hypermobile joints (double jointedness)
healing issues
tmj
fibromyalgia
hearing loss
one of the major television stations in the us just did a show on eds and they showed a fellow from england with very stretchy skin. He also had this disease but it was a horrible portrayal of this disease because most of us do not have skin like his. That show was intended to help others but no one is going to think they have this disease if they don't have skin like he did. I hope that I can make up for that terrible show by helping someone else.

Bethany
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Heartland87
replied on June 27th, 2009
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There are a lot of symptoms that go along with EDS. There are also a lot of different types of EDS with some different characteristics. With one most people are born with dislocated hips, one involves the heart/aorta, one has the stretchy skin, and there are more. Anybody who wants to read about EDS should visit the EDS website. They have a lot of litarature about it that tells everything you want to know about EDS - well everything the doctors have found out so far anyway.

I have a lot of the same problems you have - especially the joint problems. I roll over at night and dislocate my ankle, knee, or hip usually. But then I can just move wrong and dislocate any of my joints. Everyone who has EDS needs to find out what type they have. I've seen a lot of people on tv that can stretch their skin or turn their joints in a weird way (like the guy on America's Got Talent the other night was able to turn his feet completely around backwards) so I wonder if there's more people with EDS than they say. The numbers have increased from 1 in like 10,000 to 1 in 5,000 I think. I just think there are a lot of undiagnosed cases. A lot of people in my family including my dad and grandmother have symptoms but neither have ever been diagnosed and neither's symptoms were ever as severe as mine have been.

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