I just wanted to see something posted here in case anyone is looking for information on hd and to make sure harvard knows there is an interest in hd out there!

There is a ton of information on the internet, plus a lot of excellent hd discussion groups! I have a website, called hd for families, url http://clix.To/huntingtonsdisease if you're looking for an hd chapter, support group or hdsa center of excellence in your state, go to the index and click on "hd state info" then click on your state. This site also links to information on juvenile hd, genetic testing, and lots more.

If you have a young adult living with hd there is also a link to the hdsa national youth alliance. I am one of the adult advisors to this dynamic group and I would encourage any young person living with hd to join.

Don't forget, the hdsa [ www.Hdsa.Org ] national convention will be held in st. Louis, missouri june 11-14, 2004. A national convention is not only the place to learn about the latest research in hd, and an opportunity to attend various excellent sessions to get information you need, but is the one time a year where you can be surrounded by people who, just like you, who understand whether you are at-risk, have hd or are caring for someone with hd. Check out the link to the hunt-dis convention scholarship fund to learn more about the convention and pre-convention activities!

Welcome....And thank you harvard for establishing this forum!

Love
jean

ps - the forum is removing capital letters in this message, not me!