Well i'm back here again.I'm back having
seizures again .They even got me
taking diastat now,does anyone take that
too.Someone has to give that to me
though,it's rectal though,ughhh,i hateeee
that
.Even though I have done had surgey for my
seizures they have done started back up
again,the Dr.Had a very very very hard
time,trying to get it settled in the first
place.Now here we go again.This time,it's
like I walk around in circles,they (dr.'s)
are putting me back in the hospital,the
23rd. I pucked all over myself the other
day,from a seizure,i have also peed on
myself too,just when I though it was
getting much better for me,hell hit me
hard.I can't watch my grandkids
anymore,like I use too.I always watch what
I eat,and I take care of myself.I don't
drink,or nothing,i'm doing everything I
can not to have a seizure,and I still have
one.I always take my medicine,and get lots
of sleep.I'm taking zonegrane 4 pills
@bedtime,lamictal 1in the morning&one
@bedtime.Seems like I have tried all the
other medicines too. I just need some
support right now,i'm sooo lost,cause they
are coming back,and it's hurting my
feelings..Cyncyn
|
Alice in Wonderland
New User, Becoming EHEALTHy
Joined: 07 Feb 2004 Posts: 46
Posted: 02-08-04 22:12pm
I'm sorry to hear that you're having a
hard time.
I had surgery in 1988 and it took 5 to 10
years before the seizures finally got
under decent control. I still have
simple-partials, but they're not too bad.
(much better than before surgery).
A few months after surgery, however, the
seizures were actually worse than they
were before the lobectomy.
I hope you are able to have similar
luck.
Aiwl
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Cyn Posted: 02-11-04 15:29pm
:d hi cyn I have'nt heard from you. From
what I read about you, sounds like your
really trying!!!! Do you still have that
implant in you? I'm so sorry your having
a hard time. But just keep going. We all
have to keep going no matter how tired we
get. Love you jamie
|
MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 02-14-04 17:53pm
Cynthia,
take it one day at a time, its hard not
letting it getting to you. My seizures
have never been controled. I do have days
that are not as bad as others, but, I it
stinks when you cluster a couple a times a
day.
I just keep hopeing that the doc will find
the magic med or combo for me. (i'm not a
surgery canidate)
good luck, and keep smiling
jill
|
Amy
New User, Becoming EHEALTHy
Joined: 31 Jul 2003 Posts: 22 Location: Ontario
Epilepsy Sucks!! Posted: 02-14-04 21:22pm
Hi i'm amy and i've had epilepsy for 14
years. I guess i'm one of the lucky
ones. I'm controlled well. I'm on
900mg of tegretol and 10mg of clobazam.
I'm pregnant with my first baby and
everything is going well. To all of you
who live with aweful disease and who
aren't candidates for surgery and meds
don't work, you're in my thoughts and
prayers.
|
SeizureMan
New User, Becoming EHEALTHy
Joined: 17 Feb 2004 Posts: 1 Location: CHINA-TOWN
Posted: 02-17-04 12:24pm
This will cure it
www.Sezuirerobots.Com
<====.. It worked for me.. I stared
at it for about 30 minutes and it doesn't
affect me anymore
|
Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 02-18-04 19:38pm
seizureman
wrote:
this will cure it
www.Sezuirerobots.Com
<====.. It worked for me.. I stared
at it for about 30 minutes and it doesn't
affect me
anymore
real frigging funny person. I checked it
without the "i" in it. We have frigging
epilepsy here. We don't do strobes well.
I am glad you think you are funny. Did
you come on to this site to try and hurt
somebody? Or did you come here to make
fun of people that have seizures.
.They even got me
taking diastat now,does anyone take that
too.Someone has to give that to me
though,it's rectal though,ughhh,i hateeee
that 
.Even though I have done had surgey for my
seizures they have done started back up
again,the Dr.Had a very very very hard
time,trying to get it settled in the first
place.Now here we go again.This time,it's
like I walk around in circles,they (dr.'s)
are putting me back in the hospital,the
23rd. I pucked all over myself the other
day,from a seizure,i have also peed on
myself too,just when I though it was
getting much better for me,hell hit me
hard.I can't watch my grandkids
anymore,like I use too.I always watch what
I eat,and I take care of myself.I don't
drink,or nothing,i'm doing everything I
can not to have a seizure,and I still have
one.I always take my medicine,and get lots
of sleep.I'm taking zonegrane 4 pills
@bedtime,lamictal 1in the morning&one
@bedtime.Seems like I have tried all the
other medicines too. 
