I've posted some history of mt daughters allergies here before but did not get a response. We have began food trials (at home and at the drs. Office). Last night she had wheat pasta (uncontaminated with other allergens) and this morning here eyes are swollen and bruised. We now know wheat is a culprit of her allergies. Until we can determine egg, soy, sesame and peanut we are avoiding them all.
Anyone have wheat allergy and had/seen/heard of this kind of reaction to it? I think we may have an answer (one we did not want, but at least it's an answer!)
The doctor has received your question. To confirm, he says:
"i know that those types of food are alergens but I am not sure from the question if the allergy tests for those foods were negative (-) or positive (+),
it is not clear from the question what were the allergy test results. He says: âcame back with-wheat,corn,soy,peanuts,tree nuts, sesame, egg, and milkâ
if this means negative result then there is nothing to be worry about and they can give their baby what ever food it want. They can even consult another allergist if necessary. "
Her tests (skin prick test and rast (blood)) all came back positive to egg,wheat,soy,corn,sesame,rice,peanut and tree nuts. We are doing a "food challenge" in the office in 2 weeks for egg. Then we will do soy after 3 weeks, and then sesame after another 3 weeks.
The wheat had bad results so we will keep her off of that until age 2-then try again. She eats corn and rice with no problem so this is where the confusion comes in. Her "numbers" were higher for corn and rice than for wheat, but she reacts to wheat and not corn or rice. Very confusing. It does not appear to be a real "scientific" method of testing. We were told that the numbers are only indicators that she could be allergic. She almost died at 9 mos. Old so we are very cautious. The Dr. Said he has never seen that reaction to wheat with a person with such low numbers. I don't know which direction to go. Her diet is extremely limited due to the foods she is allergic to and it is difficult to keep her interested in eating because of the monotany. Any advice? We are in idaho and there are very limited resources for doctors and nutritionists. The nutritionist and doctor said she had no suggestions to help with new foods to try. We are exhausted trying to mix up her diet and buy food from out of state- very expensive and time consuming. Does this help at all?
hi hunnie, i've had tons of allergy tests and none of them are 100%. the best way to do things is to go by the reaction. it's not a nice way of doing it but it's the only way that's effective. i know what i'm allergic to by keeping a strict food diary of every single ingredient i eat. have recently found out that i['m allergic to the chemicals in tap water! who would have thought! wheat free won't be too easy to handle, there are a lot of replacements these days. i live off of pasta made from rice and millet instead of wheat. you can also buy wheat free flour and make things from scratch. if you need and ideas of recipes please pm me. xxx
I feel for your daughter and your family, believe me! I am 19 yrs old and have had multiple allergies since infancy. i have been diagnosed with 17 food allergies and several digestive disorders. My diet is quite bland and incredibly monotonous, though I ensure that I am receiving adequate vitamins & minerals. I became a nutritionist myself just to better help myself. As far as the monotony try using herbs to create variations of the same food; such as potatoes which are also surprisingly tasty when made sweet with honey & such. It really is imperative for her long term health to avoid the foods that cause her such difficulty. I understand the drain of the emotional roller coaster, hopelessness, & financial strain that this has inflicted on your family. It is hard when it seems like we can't bring relief to the ones we love. You must get creative and forgive me, but stop relying on the drs so much for answers, they probably don't have any. All I can say is that life will be very much about reseach, trial, and error, for a long time. I hope you are able to find some balance & peace.
I have celiac disease so I can't eat wheat rye oats or barley. Some of the grains I eat are Quinoa, Kasha (buckwheat), Amaranth, Sorghum, flax, and potatoes. There are some tasty Quinoa pastas out there. PM me if you would like more information on some of the brands.
Ener-G foods are actually pretty good and free from many allergens, but I am unsure about rice. that is a really hard one to be allergic to.
Food For Life is another brand that has many "allergy free" foods.
My nephews are also plagued with pretty nasty food allergies, as is my sister. Unfortuneately, none of them are allergic to the same foods. I am not sure what exactly they eat at her house.
I would encourage you to try some of the more non-traditional foods,like sweet potato chips, amaranth cereal, etc.
Potato starch can be used to supplement recipes that call for cornstarch.
Are these allergies she may grow out of, and can she be on a rotational diet?
Thank you both for the encouragement. I have come to the realization that drs. don't know much about allergies (just too broad of a subject). We do use both companies you recommended. She loves her *special* pasta with pure butter and parm. cheese. We have found a gluten free bread she can tolerate and now make grilled cheese for her. We are hoping that she will out grow the wheat and egg allergies (statistically she has a good chance). The peanut and tree nut one- probably not. But that seems to be the 'easiest' one to avoid. She is a happy baby (wow she's almost 2!) and very good natured. It's getting harder when my other kids sit down and have cookies or granola bars and she wants some too. We give her her 'special' cookies so it helps alot! We are training the other kids to not snack in front of her so it doesn't create a look what you can't have scenario. I think we are doing well-it's just hard because we cannot go out to dinner or a play place or fun places where food is server because of all the contamination. Keep posting here and hopefully we will all help each other! Thanks again guys (and gals)