I have been diagnosised with the
following....Asthma/emphysema...Epstein
barr disease...Carpal tunnel
syndrome....High blood pressure... High
cholesterol...Migraine...Extreme
fatigue...Muscle/joint weakness and
pain... Very short of breath and emotional
ups and downs with in the last year and
half a lump has developed on each side of
my neck, which are growing, also some
other lumps have popped up on my neck ,
the ultra sound has shown a small non
specific nodule on each side of my
thyroid, but the large lumps on each side
of my neck that sit in my clavicle show
just fatty tissue or muscle tissue over
growth, each doctor I have seen have said
they are no concern.(also itch like crazy
and hurt!) I have also found a lump under
my left arm, in the bend of my right arm
and below and to the left of my left knee.
Behind both knees... On my back on the
left right about where my kidney sits, I
have been weak and getting weaker, if I do
too much one day I pay for it the next, I
will be totally exhausted, just to stand
to do a few dishes is totally exhausting!
I had always been active before all this
started, I exercised daily,(my husband
would always tell me to slow down, cause I
was always busy working on something) but
I can't even exercise any more. I have not
been able to work for over a year now. I
was looking into dercum's disease because
of so many lumps and pain and exhaustion,
but the shooting pain in my legs and
arms,(numbness at times) and the
electrical shocks that run across my chest
are happening more often, also muscle
jumping / twitching in my thighs, and my
right eye lid, the twitching in my eye lid
has became almost constant now. I have
like a spasm inside my head at times, that
only last for about a minute, I am never
sure if I am going to fall into a full
seizure or pass out, but neither has
happen so far. I have pain in my eyes at
times it feels the muscles in my eyes
hurt. My right hip feels bruised but
there is nothing there to see. A lump has
form since the bruise feeling started. To
just stand to do dishes is totally
exhausting and has be painful also. My
finger tips feel numb, and if either arm
is bent at the elbow my hands and fingers
will go to sleep. I was in a vehicle wreck
about 7 years ago, which resulted in whip
lash, ( which I thought I was healed) now
my neck will feel so weak I can't hold my
head up, I have to lie down or I will get
dizzy, and sick, I feel the back of my
neck or turn it side to side and can feel
and hear cracklin popping sounds.........
I have been fighting this for so long,
went thru several neurological test a year
and half ago, nothing but carpal tunnel
was found. Was tested for cushings that
came back negative, lupus was tested a
couple of years ago, so was lyme disease.
I have had every blood test known to man,
or at least it seems like it. Now I have
narrowed down to checking into possible ms
or possible dercum's I use to be the most
patient person alive, now just dropping a
spoon can make me see red! And I do drop
things alot, I have trouble saying what I
want to say or I can't pronounce the word
the way I want to. I can't remember
anything, my mind is foggy , when I am
walking at times I nearly fall because a
knee or ankle with just give way and on a
flat surface, at times I feel like my legs
are like rubber when trying to walk. I
have told my doctor s but no one knows
anything. I know I am getting worse, I
feel at times I am just going to pass out.
Or my head it just going to
explode.......... Please help if at all
possible....... Any suggestions would be
greatly appreciated. I forgot to add, I
have endometriosis and did have a totally
hysterectomy last year, my obgyn told me
the endo was also outside the uterus and
on part of my bowel. Don't know if that is
any significance but thought I might add
it just in case I will be seeing a
rheumatologist next month, if there is any
suggestions as to what test might need to
be addressed, I appreciate any input.
Thank you for your time.