i'm sorry I can't
help - but I know how you feel. You've
explained alot of what I have been going
through. I've had a ton of tests and
other than the tumor they found on my
spine - there is "nothing wrong" i'm
tired of doctors telling me there's
"nothing wrong" bull crap. I wouldn't
feel like I just got into a car wreck if
there wasn't anything wrong! My main
concern is trying to explain to doctors
about the weird "pressure" feeling I get
in my head, like it's going to just
explode. I feel like i'm being
strangled I guess. It's a very hard
thing to explain. I, too have been
tested for lyme's, west nile, and a dozen
other problems. I do have endometreosis,
and will probably have to have a
hysterectomy eventually - but I have to
have this tumor out first. I'm worried
about ms or a heart problem or whatever.
Another thing I have is severe joint
aches. All I know is i'm tired of it and
we need some help here huh? If you find
anything out please let me know and i'll
do the same. The symptoms you describe
hit it on the head - weakness, fatigue,
eye problems, I can't think of what I want
to say, and I am very spacy, tired and
feel like I don't sleep - although I know
I do. Among other weird stuff. Anyway
I hope we can find out what this is......I
wish doctors would stop looking at all the
"normal" problems and start trying to
figure out this stuff.....I'm tired of
them looking at me like i'm dreaming. Or
trying to prescribe prozac, lol. Good
luck, honey. Oh and something else i'm
not sure if you've had checked out - i've
had these symptoms for about 2 years now
and when they first showed up I didn't
have health insurance. So I took it
upon myself and did a full blood panel
(normal) but also did a ana panel - that
came back abnormal. I started to feel
better - sort of- so I didn't persue it.
Now that I have insurance my doctor seemed
to think that was significant and that I
should get more tests. We'll see - I
have a follow up with him next week. So
if anything shows up for those tests i'll
re-post. This is getting worse and it's
scaring the hell out of me.
|
chrystalpony
New User, Becoming EHEALTHy
Joined: 08 Jan 2007 Posts: 4 Location: Arkansas
Posted: 01-14-07 19:00pm
Thank you so very much for you input!
Yes we keep in touch with each doctor
visit if anything else new is found. Jan
30 I see a cardiologist because of the
chemical stress test showing some ischemia
in the front of my heart and I still have
chest pains, I told my gp about dercums
disease , he looked it up on the internet
and decided to refer me to a rheumtologist
that appointment is on valentines day, so
until then I just sit and wait. But if
there is any changes I will post here too.
Thanks again for you input.
|
san54
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003 Posts: 227 Location: Virginia
Multiple Symptoms Posted: 01-14-07 19:41pm
Have you been tested for multiple
sclerosis or thyroid disease. There are
so many auto-immune diseases that it could
be. I hope you find an answer soon.
|
bessent
New User, Becoming EHEALTHy
Joined: 18 Jan 2007 Posts: 1 Location: phoenix
Posted: 01-18-07 14:42pm
Chrystalpony, have you been tested for
toxic unbound metals?
There's a home-test if you're not in the
mood for a clinic.
Have you tried any heavy metal detox
products or treatments?
|
chrystalpony
New User, Becoming EHEALTHy
Joined: 08 Jan 2007 Posts: 4 Location: Arkansas
Posted: 01-22-07 23:02pm
I did have mris done and thyroid was found
to have a "nodule" one on both sides but
the endocrinologist said there was nothing
to worry about, I was tested for cushings,
the 24 hour urine came back negative. I
will check out the toxic unbound metals
test. Haven't tried anything like that,
I will be seeing a rheumatologist next
month. And a cardiologist in a couple of
weeks
|
chrystalpony
New User, Becoming EHEALTHy
Joined: 08 Jan 2007 Posts: 4 Location: Arkansas
Posted: 01-22-07 23:08pm
I am not positive if I was tested for ms
or not, I seen an infectious disease
doctor and neurologist about 3 years ago,
they both put me through all kinds of test
from mri to shocking my muscles, they
didn't find anything at that time. I
can't work at all now. So I am
desparately going back to doctors trying
to find out what is happening, I did find
some information on a disease called
dercums, which I do have fatty lumps
popping up all over me. Who knows,
I am just worried it is going to be at
autopsy when they finally find out what is
going on.
|
chrystalpony
New User, Becoming EHEALTHy
Joined: 08 Jan 2007 Posts: 4 Location: Arkansas
Posted: 01-22-07 23:32pm
bessent
wrote:
chrystalpony, have you been
tested for toxic unbound metals?
There's a home-test if you're not in the
mood for a clinic.
Have you tried any heavy metal detox
products or
treatments?
i am sorry but I can't get the link to
work, and I want to say I am sorry for
repeating myself, my mind is such a mess,
I didn't realise I had repeated myself
until I was reading it again. Sorry
i'm sorry I can't
help - but I know how you feel. You've
explained alot of what I have been going
through. I've had a ton of tests and
other than the tumor they found on my
spine - there is "nothing wrong" i'm
tired of doctors telling me there's
"nothing wrong" bull crap. I wouldn't
feel like I just got into a car wreck if
there wasn't anything wrong! My main
concern is trying to explain to doctors
about the weird "pressure" feeling I get
in my head, like it's going to just
explode. I feel like i'm being
strangled I guess. It's a very hard
thing to explain. I, too have been
tested for lyme's, west nile, and a dozen
other problems. I do have endometreosis,
and will probably have to have a
hysterectomy eventually - but I have to
have this tumor out first. I'm worried
about ms or a heart problem or whatever.
Another thing I have is severe joint
aches. All I know is i'm tired of it and
we need some help here huh? If you find
anything out please let me know and i'll
do the same. The symptoms you describe
hit it on the head - weakness, fatigue,
eye problems, I can't think of what I want
to say, and I am very spacy, tired and
feel like I don't sleep - although I know
I do. Among other weird stuff. Anyway
I hope we can find out what this is......I
wish doctors would stop looking at all the
"normal" problems and start trying to
figure out this stuff.....I'm tired of
them looking at me like i'm dreaming. Or
trying to prescribe prozac, lol. Good
luck, honey. Oh and something else i'm
not sure if you've had checked out - i've
had these symptoms for about 2 years now
and when they first showed up I didn't
have health insurance. So I took it
upon myself and did a full blood panel
(normal) but also did a ana panel - that
came back abnormal. I started to feel
better - sort of- so I didn't persue it.
Now that I have insurance my doctor seemed
to think that was significant and that I
should get more tests. We'll see - I
have a follow up with him next week. So
if anything shows up for those tests i'll
re-post. This is getting worse and it's
scaring the hell out of me.
