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Conditions and Diseases > Epilepsy Forum > Taking Several Seizures a Day
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Q: Taking Several Seizures a Day
asked by: baccalynnwv on December 29th, 2006
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I work with several clients, all of which who have various levels of mental retardation. I have one client who takes anywhere from 6 to 40 seizures a day. It's very random but the amount on the average day is close to 30. On good days it is less than ten – which may only happen a couple times a month.

During her menstrual cycle she takes fewer seizures.

Her seizures usually last less than a minute and range from just stiffening up and staring to stiffening and jerking all over. When she is finished she takes gulps.

She is on medication and has had a magnetic thing placed in her chest. I can't remember what it is called right now but I can almost say for certain it is not being used properly or monitored properly by her doctor. Her family said it never really worked anyway.

She sees a neurologist, but the doctor does not seem to be doing anything positive.

My question is this. Does anyone know of someone with a similar condition who has found successful treatment? When I do my visits with this family it bothers me to see her take so many seizures in one day. It is also very hard to find staff to be with this client as most people are intimidated by all the seizures.

Any help, advice, or suggestions would be appreciated.
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Serena10
replied on January 19th, 2007
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Hi,

i worked in a special school for a short time and observed what you have described. For that particular young girl the conceptive pill was very effective as it was suggested that her seizures were related to hormones. Also as heat was a factor for her, we avoidied to much change in temperature.

Good luck, I hope something can be done to assist her.
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shorty1825
replied on May 23rd, 2007
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Excepting Seizures As "way of Life"
Hi, I'm not a doctor or anything. So I really cant help you from a medical stand point. What I may be able to do is to shine some light on the "patient" side of things.

I have had Seizures for about 25 plus years now. Mostly I have Complex Partial Seizures; but, I have been known to have Grand Mal, Petit-mal, Simple Seizures as well. Anyways, I can remember days having 40 to 50 Complex partial Seizures during one day. It's can make a person go crazy! On these days, I would call my neurologist and cry, telling him how many I already had and that I wanted to "commit myself to a Physic ward or something because I didn't know how much more I could handle. I was a mess on these days. My Neuro would adjust my meds to try to gain better control. This took many years to do. Some of the Meds used to "gain control" of seizures, have side effects that make Seizures seem like a "Walk in the Park". For example, my Neurologist placed me on Klonopin to see if this would help. I took this for 1-week. AT the end of that week I was on the phone to my Neuro asking for something else because dealing with the (Heckle and Jeckle type) side effects was worse than dealing with Seizures. This was one Med that (for me) caused 24/7 severe PMS mood swings. One minute I would be a sweet mommie and the next minute I would be out of control.

I say all of this to say that in some instances, dealing with what ever number of Seizures per day is better that adding side effects of some Medications used to gain control of Seizures.

I am now taking Felbatol and Keppra. Felbatol was my last hope before brain surgery. If this med didn't provide some type of control, I was headed for brain surgery. Thank God Felbatol has had some control. I still have Partial Complex Seizures but, more often I experience "Simple Seizures". My day of endless Seizures have been replaced by a 10-day period in which I may experience 10-40 Seizures [from Simple to Grand Mal]. To me, this is exceptable (better than it was, anyhow).

Good luck with your patient.
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