I have a 5 year old that has been diagnosed with a seizure disorder. He has been having seizures since he was a baby without a known cause. It was initially believed that he would grow out of them, and actually went 15 months without one (on no medication), then out of the blue a few months ago started having them again. In a matter of 30 days he was hopsitalized 4 times with multiples of: febrile, clonic-tonic, focal and partial seizures. At one time during his hospitalization he had to be moved to the icu and quit breathing during one of the focal seizures. On top of the seizure problem, he is also adhd. By the time he came home from the hospital he was on 6 different medications (depakote & trileptal for the seizures). It has been almost 3 months since his last "major" seizure (classified as one that has actually been seen) and now, out of the blue, he is showing the affects of having seizures without us seeing any (constant trembling, constant headache, upset stomach, tiredness, vision problems where he cannot control his eyes). After a trip to the nuerologist and the pediatrician (an an emergency room visit) we were told that there wasn't anything they could do. He has had every test they could give him and nothing ever shows up. He is in kindergarten and because of all these problems won't succeed to first grade.
What other options do we have!