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Tongue Bite

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Hi. I recently had a seizure (i almost never have them unless I drink too much alcohol and dont sleep) & I bit my tongue rather severely. Any advice on how I can stop this happening in future,- what should my wife do? Now it has happened, what advice do you have on how to help my tongue to heal, it is rather painful? I would be very grateful for any help I can get.
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First Helper User Profile AokBC
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replied February 2nd, 2004
Experienced User
What Not to Do????
One if you know theres a possiblitiy of having a seizure you shouldn't be drinking, specially if your on meds....Drinking lowers the effects of the pills. As for your tongue eat lots of popcycles and icecubes. And always make sure you get enough sleep.
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replied February 11th, 2004
Experienced User
Hi
Theres not much you can do ,i use to bite mine alot.It has looked like hamburg meat I couldnt eat or drink unless it was through a straw.What happens when you have a seizure all your muscles lock up and if your tongue is near teeth then it locks down on it.Dont drink if you are taking meds.They dont mix.
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replied June 26th, 2004
I also know the incredible pain and suffering from a severe tongue bite. I am currently dealing with my own injury. Like thomas I have suffered seizures from drinking too much (or little) and payed the price for my weakness. Although my seizures only happen at night after I have gone to bed and are pretty infrequent. This is the first one I have had in over two years. I have been on medication for over 20 years. I was on a sales trip last weak and had a seizure in my hotel room that night after I had gone to bed. I woke up about two hours later with that incredibly worn out feeling as if all of my muscles had been shocked. My tongue was chewed up from the seizure with gashes on both sides and the front. It is so depressing. I had to get up the next morning and work our booth at the trade show all that day and the next. I bought some tylenol and a oral pain relieving gel to try to help with the pain. There is nothing quite like the pain and humiliation of a tongue bite. It hurts to talk, to eat or sit still. God bless all who suffer!
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replied June 29th, 2004
I only have seizures in my sleep as well, and I had one last night, and while biting my tongue to look something out of a bad 80s horror movie really sucks, i'm grateful when I only do it on one side, unfortunately, I bit it on both sides lastnight. I just try to look at the bright side of the situation; use it as an excuse to eat more ice cream! I find it also allows me to actually listen to people more intently, and sometimes I manage to connect with some of them more closely than normal... Of course, it still hurts, and I can't kiss my boyfriend or eat anything too spicy, salty, or sour, so I find advil is a good helper. I find oragel tastes revolting and it wears off too soon too, but give it a shot; it might work for you
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replied June 25th, 2009
Pain med
I only have seizures at night too and am so happy when I only bite on one side of my tongue. It is usually only the left side which is weird. I have used a pain reliever called Kanka. It is the best out there. I have been using it for the past 15 years or so. If you haven't tried it yet, please do. Once again, I love all of you who have the same problem. It's not easy.
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replied November 8th, 2009
Can you all tell me what age your sleeping seizures started? My 4 yr old nephew is in the hospital currently as he had a seizure in the middle of the night and had another last night. We are desperatley looking for answers as he is only 4 and his mom is really not sure what to think or believe. He has not been seen by a neurologist yet and they are trying to send him home with meds and not find the problem. Any advice or help you all can give is greatly appreciated. Thank you so much.
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replied June 18th, 2011
My first neurohypoglycemic event happened 2 weeks ago. A nighttime seizure resulted for me with 2deep lacerations on each side of my tongue. I have been so thankful for a prescription called Triamcinolone Acetonide, Dental Paste, USP, 0.1. It is speeding the healing, God bless your suffering. Thank you for sharing your insights,they've reassured me in this frightening time.
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replied June 18th, 2011
My first neurohypoglycemic event happened 2 weeks ago. A nighttime seizure resulted for me with 2deep lacerations on each side of my tongue. I have been so thankful for a prescription called Triamcinolone Acetonide, Dental Paste, USP, 0.1. It is speeding the healing, God bless your suffering. Thank you for sharing your insights,they've reassured me in this frightening time.
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replied May 5th, 2012
Coming on these forums really helps me. Just to know your not alone, I know people try and understand what your going through but unless they've gone through it themselves then they just don't get it.

I had a gran mal a couple weeks ago and just had another one the other night. The previous one I had, the doctor gave me Oracort (Dental Paste) for my tounge. It helps speed the healing.

Good luck everyone. I feel your pain.
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replied June 6th, 2012
Tongue Bite due to Tonic-Clonic Seizure
I just had a tonic-clonic seizure, resulting from drinking too much the night before and only sleeping for 3 hours. They occur very rarely for me, I have to combine excessive drinking(8+ beers in a night), along with lack of sleep.(I stopped drinking hard alcohol, as I've found that it drastically increases probability for a seizure) As long as I sleep 8-10 hours the following 2 days after drinking I tend to be okay. I do not take any medication as I only have a Tonic-Clonic 1-2 times a year and Partials 1-2 times a year as well. For the most part I abstain from drinking, but its difficult when you reunite with college friends a few times a year. I understand how difficult it can be cutting 100% of alcohol out of your life as it can have many social impacts. In my case I must combine at least 2 of the following factors to bring about a seizure: 1)lack of sleep 2)5-6+ alcoholic beverages 3)stress(from anything like finances today, and before final exams during college)
Hopefully scientific advancements can be made in the near future to improve the quality of life for so many suffering from epilepsy.
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replied June 9th, 2012
hello,

when i was 15 close to my 16th birthday i was diagnosed with JME. I had been experiencing episodes in the morning related to sleep and one day i had a big one which cause me to black out and fall down the stairs i ended up in hospital and had an eeg which i was diagnosed with JME. So i was put on keppra i am now 16 and i have been on keppra for a short time but i feel as if i already am having some side effects, i get really down and gloom: where i find myself sitting on my bedroom floor for a while.

Ive also notice a change in my temper i get angry alot quicker then i used to at the smallest things. i cry alot and am feeling a lot of anxiety im also struggling with concentration and need sleep all the time! im doing my gcses at present and am really worried about the fact being on this medication is affecting my chances of doing the best i can in my exams.
has anyone noticed this to? or know what i can do to limit this?
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replied August 5th, 2013
epilepsy
I am suffering from a chewed up tongue caused by one of my grand mal seizures. I rinse my mouth out with salt water 3 to 4 times a day to help it heal. I have felt so alone and scared. It's so hard to work, care for my children and live a normal life without insurance. BUT reading all your comments and insights reassures me I'm not alone.,. My prayers are with each and every one of you
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replied August 6th, 2013
Shlyrawls, Just saw your post. My post above I mentioned in there (not sure if you saw it) "the doctor gave me Oracort (Dental Paste) for my tounge. It helps speed the healing."

My last one was a year ago and I actually chewed a chunk off the side of my tongue and this stuff really helps in how fast it heals. I recommend it from personal experience.

I'd also like to say (just regarding some of the posts above where people mention alcohol). I thought alcohol was my cause also, I was wrong. I found out I have Sleep Apnea (my seizures happen in my sleep) 2 neurologists had no idea my cause and then i went to the 3rd and he ended up being a sleep specialist also. Boom there is my cause (as sleep is very important for anyone with epilepsy, sleep apnea can be such a big factor). Was shocked it took 3 neurologists to figure this out.

I know how hard it is going for test after test and no answer so thought i'd share a bit of my neurologists findings in hope it can help someone else.

Such an misunderstood condition. Good luck everyone!
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replied September 24th, 2013
I was diagnosed with epilepsy when I was 27 the first seizure I ever had I was 22 yrs old and 36 weeks pregnant. Then again in 2007 at 36 weeks again I had seizures. A couple months after having my second child I had seizures outside of being pregnant. Thats wen thet finally diagnosed me. They assumed I had eclampsia thats why it was never treated. I have gran mal seizures every now in then most the time when im sleep deprived stressed and menstruating that combination its almost guaranteed. My last one was 3 days ago in my sleep (thats the first) I bit my tongue so bad I now have 5 stitches in it.
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replied March 10th, 2014
Severe tongue bite after Seizure
Just had two Gran mal seizures last Monday where I fell on my rump and bit my tongue severely. I usually seize without incident but this time I was standing getting ready to go to hospital for first seizure when the second one hit me. Was out of work for a week (temp) when I was told after working three months my assignment was ending. Just like that all of a sudden, I can't talk cause my tongue is chewed up so bad it looks like someone else actually took a bite!

To make matters worse it got infected and I had to go back to the hospital for IV antibiotics. And I have ear aches to boot, so on top of heating pad, ice packs, pain & antibiotics I'm looking at this forum for additional healing help. Did the salt rinse but that burns and drinking anything hurts my ear.(bad earaches as a kid coming back to haunt me) I'll try the Oracort, I just hope it doesn't burn as well.

Thanks for everyone's advise.
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