I was diagnosed juvenile myoclonic
epilepsy when I was 14, I would say a year
before that I was having little jerks that
I didn’t really take any notice of.
They proscribed epilim I started off at
200mg twice a day up too 1000mg twice a
day.
I would say for the last year i’ve only
been taking 500mg once a week, I don’t
think i’ve gone longer than a week with
no side affects
is it worth me speaking to my doctor about
this, I last went over a year ago for a
blood test that was the first time they
asked for one the entire time i’ve been
on epilim
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Graham86 Posted: 11-30-06 15:29pm
Welcome to ehealth! I am not a Dr. My
opinion or suggestion is to keep a journal
of what meds you are taking and when you
are taking them. If you are still having
these seizures or jerks and if you are
aware of them, write them down and let the
dr know, your dr might want to change your
meds or your dosage. Do you see a
neurologist, have you gotten a second
opinion, has the situation gotten better
or worse, these are things that you need
to write in your journal and let the dr
know about.
I wish you all the best!
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graham86
New User, Becoming EHEALTHy
Joined: 30 Nov 2006 Posts: 2 Location: UK
Posted: 11-30-06 16:00pm
If I take no meds for a week i'm fine,
i've not tried any longer than that