I was diagnosed with hodkins lymphoma stage ib in 1984 at age 18 and my 22 yr old daughter has been diagnosed with hodgkins lymphoma possibly iib or iiib. (irregularities/soft tissue masses in anterior mediastinum infiltrating internal mammary vessels on right, anterior to the sternum, right axillary, paratracheal lymph node, left cervial nodes, and destruction of the sternum. Small calcified granuloma lul).
She is scheduled for pft, muga scan, pelvic ct, bone marrow biopsy as well as node eradication/biopsy and putting a port in at that time.
I'm a nervous wreck. I still have a positive attitude beings I am a survivor, just hate the fact that she is having to go through this experience.
Is there anyone else out there that has been diagnosed with this type of cancer and later had a child diagnosed with the same type of cancer?
I was given a pamphlet about genetic testing. What is this? How can it be helpful? What does it entail? Can it possibly detect any possibility of my other children contracting hodgkins?
My daughter and I were both initially dx positive ebv. Does this have a strong role in hodkins? Or our genetic makeup mixed with ebv and then hodgkins?
I thought statistics were highly unlikely/rare for this to be passed down. I know it is an increased risk... But geesh... Statistics are extremely low.
Full of questions.
Thanks,
tkmott