Joined: 21 Nov 2006 Posts: 1 Location: Coolville OH
Dx W/hl Ib 22yrs Ago - Daughter Currently Hl Iiib Posted: 11-21-06 10:07am
I was diagnosed with hodkins lymphoma
stage ib in 1984 at age 18 and my 22 yr
old daughter has been diagnosed with
hodgkins lymphoma possibly iib or iiib.
(irregularities/soft tissue masses in
anterior mediastinum infiltrating internal
mammary vessels on right, anterior to the
sternum, right axillary, paratracheal
lymph node, left cervial nodes, and
destruction of the sternum. Small
calcified granuloma lul).
She is scheduled for pft, muga scan,
pelvic ct, bone marrow biopsy as well as
node eradication/biopsy and putting a port
in at that time.
I'm a nervous wreck. I still have a
positive attitude beings I am a survivor,
just hate the fact that she is having to
go through this experience.
Is there anyone else out there that has
been diagnosed with this type of cancer
and later had a child diagnosed with the
same type of cancer?
I was given a pamphlet about genetic
testing. What is this? How can it be
helpful? What does it entail? Can it
possibly detect any possibility of my
other children contracting hodgkins?
My daughter and I were both initially dx
positive ebv. Does this have a strong
role in hodkins? Or our genetic makeup
mixed with ebv and then hodgkins?
I thought statistics were highly
unlikely/rare for this to be passed down.
I know it is an increased risk... But
geesh... Statistics are extremely low.
