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Q: a Real Hypothetical Situation.
asked by: jenn_smithson on October 28th, 2006
Active User, very eHealthy
Several hundred couples, each year, have children with down's syndrome. Most, if not all, have tests which confirm that their child will be born with this disorder during pregnancy at a time when they can still choose to end the pregnancy with an abortion. Some do end the pregnancy but many more do not.

At birth, some neonates born with down's syndrome experience a congenital defect of their intestinal tracts. They are born with blockages but these blockages are easily removed through a normal surgery that is relatively simple and safe. However, in order for the neonate to survive, the parents of the neonate must agree to allow the operation to take place. Some parents of these down's syndrome children, even though they had the opportunity to choose an abortion after discovering the disorder during the pregnancy, choose to deny treatment for their infant (which is the right of the family in these situations). Because of this, the infant is set aside, given pain killers, and the infant slowly dehydrates until infection and death occur. This process, as the nation saw with terri schiavo, can take several days.

The questions are:
1). If you found out that the pregnancy would result in a neonate with down's syndrome, would you choose to end the pregnancy?
2). If you did not choose to end the pregnancy and, after birth, the neonate was discovered to have an intestinal blockage, would you deny or allow treatment?
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Replies(6)
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Tylanas
replied on October 28th, 2006
Especially eHealthy
Re: a Real Hypothetical Situation.
jenn_smithson wrote:
several hundred couples, each year, have children with down's syndrome. Most, if not all, have tests which confirm that their child will be born with this disorder during pregnancy at a time when they can still choose to end the pregnancy with an abortion. Some do end the pregnancy but many more do not.

At birth, some neonates born with down's syndrome experience a congenital defect of their intestinal tracts. They are born with blockages but these blockages are easily removed through a normal surgery that is relatively simple and safe. However, in order for the neonate to survive, the parents of the neonate must agree to allow the operation to take place. Some parents of these down's syndrome children, even though they had the opportunity to choose an abortion after discovering the disorder during the pregnancy, choose to deny treatment for their infant (which is the right of the family in these situations). Because of this, the infant is set aside, given pain killers, and the infant slowly dehydrates until infection and death occur. This process, as the nation saw with terri schiavo, can take several days.

The questions are:
1). If you found out that the pregnancy would result in a neonate with down's syndrome, would you choose to end the pregnancy?

2). If you did not choose to end the pregnancy and, after birth, the neonate was discovered to have an intestinal blockage, would you deny or allow treatment?


if I didn't abort, then obviously (in my opinion) I wanted the child. So I would do everything feasable to make it survive, including the simple operation.

I cannot understand how a parent could chose to let a baby come full term and be born, and then let it die. That makes no sense. That's not a life.
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paganangel
replied on October 29th, 2006
Experienced User
Re: a Real Hypothetical Situation.
jenn_smithson wrote:
several hundred couples, each year, have children with down's syndrome. Most, if not all, have tests which confirm that their child will be born with this disorder during pregnancy at a time when they can still choose to end the pregnancy with an abortion. Some do end the pregnancy but many more do not.

At birth, some neonates born with down's syndrome experience a congenital defect of their intestinal tracts. They are born with blockages but these blockages are easily removed through a normal surgery that is relatively simple and safe. However, in order for the neonate to survive, the parents of the neonate must agree to allow the operation to take place. Some parents of these down's syndrome children, even though they had the opportunity to choose an abortion after discovering the disorder during the pregnancy, choose to deny treatment for their infant (which is the right of the family in these situations). Because of this, the infant is set aside, given pain killers, and the infant slowly dehydrates until infection and death occur. This process, as the nation saw with terri schiavo, can take several days.

The questions are:
1). If you found out that the pregnancy would result in a neonate with down's syndrome, would you choose to end the pregnancy?

2). If you did not choose to end the pregnancy and, after birth, the neonate was discovered to have an intestinal blockage, would you deny or allow treatment?



i would not abort and yes I would allow the surgery. I could not let my child suffer and die when there is a medical treatment to save it's life.
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Jules
replied on October 29th, 2006
Extremely eHealthy
What on earth is the thinking behind allowing your child to die like that when an operation could save it?!!!

To me, that is worse than abortion. If you bring a child into this world and it has a chance at life as more than just a vegetable (and .Downs people can live happy and productive lives) then you should do all you can to preserve that life. I'm gobsmacked!
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Cambion
replied on October 29th, 2006
Active User, very eHealthy
Quote:
1). If you found out that the pregnancy would result in a neonate with down's syndrome, would you choose to end the pregnancy?


i would end the pregnancy no matter what, even if the fetus was the healthiest ball of bloody flesh the world had ever seen.

I would venture to say the people who let their infants die from intestinal blockage either cannot afford the medical treatment for the kid's disease, they might feel the kid will die during surgery anyway (even if it is a safe procedure), they don't want a sick child burdening them forever, or they feel nature has taken its course and should be allowed to continue. Or, it could possibly be any combination of the above.
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jenn_smithson
replied on October 31st, 2006
Active User, very eHealthy
cambion wrote:
Quote:
1). If you found out that the pregnancy would result in a neonate with down's syndrome, would you choose to end the pregnancy?


i would end the pregnancy no matter what, even if the fetus was the healthiest ball of bloody flesh the world had ever seen.


I would venture to say the people who let their infants die from intestinal blockage either cannot afford the medical treatment for the kid's disease, they might feel the kid will die during surgery anyway (even if it is a safe procedure), they don't want a sick child burdening them forever, or they feel nature has taken its course and should be allowed to continue. Or, it could possibly be any combination of the above.
the interviews that I have read (and they are few and far between because most parents do not want to be known as doing this), the parent(s) either a)did not believe in abortion for any reason but do believe that they have the right to deny treatment b)did not realize the severity of their child's disorder until the birth and then could not deal with a child who would require so much additional care c)in one case, thought they would be alright with a child who had down's syndrome only to see it once it was born and couldn't have anything to do with it after that.

I have to say, and answer my own question in the process, that I have family members who have had children with down's syndrome and I know, without a shadow of a doubt, that I simply could not do it. Even a mild case, because I will be working and traveling to care for the family, I will not have the time or energy to devote to a child who needed so much additional attention and care. I would choose to obtain an abortion should the fetus be diagnosed with down's syndrome.

What strikes me about these cases, however, is that these parents had the opportunity to obtain an abortion during pregnancy and chose not to. Then, after birth, they suddenly did not want to claim the child and thus, exercised their familial legal rights to deny treatment to have the child dehydrate and die. I don't quite understand the reasoning behind this decision.

I could understand it if the neonate were vegetative or severely mentally challenged to where no normal life would ever occur for them but as has been said, people with down's syndrome can lead relatively normal lives these days. So, i'm still struck with not understanding the positions of these parents and I am always on a quest to understand.
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bthomas
replied on November 1st, 2006
New User
For me, a reason to abort has nothing to do with the child, and more to do with my life. If I had a wanted pregnancy and something was "wrong" with the child, there would be no reason for me to abort, just a reason for me to prepare. Once a child I wanted came into the world I would do anything at all to make sure that child had the best chance of survival and the best care possible.
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