I am 38 years old. October 2002 I was diagnosed with epilepsy. Some kind of "adult onset". I have had almost all the testing done and still no answers as to why I have seizures. I was on a case study that is over (recently). I have been taking lamictal since 10/2/02. Works but I know that if I forget to take it I can tell.
History: I was diagnosed with hypoglycemia when I was 20 years old. I had passout episodes from my sugar level being too low. More recently (a few years now) it has become more noticeable that I hwas having seizures. I thought it was because when I induce sugar into my system that it would shock it. But we found by testing that I have been keeping my sugar level stabilized.
When I talked to my ex about it he told me (we divorced 10 years ago); "i told you to go to the doctor to have them check you for epilepsy, don't you remember? They just told you that it was your sugar level and to keep it stabilized and sent you home. You dont' remember that?" I told him that I didn't remember.
I of course wasn't aware that the shakes (thats what I called them) were actually seizures.
So anyhow, out of the blue (so I thought) on 9/30/02 I went into a weird seizure fit. Then another. Then I lost my ability to speak and was not able to move. Then I had another. These were grand mals. Scared the crap out of me. Since then I have had one at least every week. Unless I get enough rest, and all of the other stuff that will cause it with me I will have one. Being home helps because I can lay down if I feel it coming.
So is there anybody else that has been diagnosed but there isn't a known cause yet? This is scary and I don't understand it. Help!!