my daughter has seizure in her sleep. Yet she doesn't know when they will hit. She gets a really bad headache at times. We are still hoping that her doc will do what needs to be done to help these sz to stop. I hope things work out for you. If you want to chat we can. Have a great day.

Shelbe:

hi i'm new to the forum and saw your question. I previously frequently had seizures in my sleep. Just as you noted, it would usually be within an hour after I went to sleep. I have been on numerous medications in the past, and my seizures were actually under control for a few years. Then, they came back (full force), having more and more, and no medications would control them.

After switching to a new neurologist, many tests were done, and it was determined that I had a small tumor located on the left temporal lobe of my brain. I had brain surgery (partial lobectomy), removing the entire tumor, and have been seizure free since two (2) days prior to the surgery in late february of this year.

Let me know if I can be of any further assistance & good luck to you!

What medication were u taking and how often were u suffering seizures,were they every night?

[quote="josieb"]Shelbe:

hi i'm new to the forum and saw your question. I previously frequently had seizures in my sleep. Just as you noted, it would usually be within an hour after I went to sleep. I have been on numerous medications in the past, and my seizures were actually under control for a few years. Then, they came back (full force), having more and more, and no medications would control them.


After switching to a new neurologist, many tests were done, and it was determined that I had a small tumor located on the left temporal lobe of my brain. I had brain surgery (partial lobectomy), removing the entire tumor, and have been seizure free since two (2) days prior to the surgery in late february of this year.


Let me know if I can be of any further assistance & good luck to you! [/quote

My son is also having Turns of a night within 30 min of going to sleep and all the test and all the doctors still cant tell me what is wrong. They say they hav not seen anything like what is happening to him and have put him on a few different types of medications.

These slow him down but don't stop them from happening. It is becoming a nightly event and is starting to get to his father and me, so if you or anyone else reading this have got any ideas Id love to hear from you.

Hey everyone, I'm new to the forum, and managed to find this topic about seizures in your sleep. I've been having the same problems as well, and can't figure out why. I'll know I've had a seizure and bit my tongue, because my friend will tell me about it, and my tongue will hurt. I remember talking to my Dad about it, and he said we're going to go see a Doctor later this week. If anyone has any advice for me on this problem, please let me know. I need all the advice I can get on this.

hi ya
i am new here and i have sz in my sleep as well

caz xx

Well, I might as well provide some more info for anyone here since I'm unable to see a doctor at this time. Maybe someone here can give me some helpful info?

Anyway, apparently, I've been having seizures more than what I realize. I'll have seizures not just at my friends house, but anywhere actually. A week or two ago, I had one while at a hotel to see a wedding, and ended up going to the hospital. When the doctors drew some blood and did a Cat Scan, they said they couldn't find anything wrong, but said that it might be Epilepsy. I don't think it's that considering I play video games a bunch, and have already, a lot. The Doctors put me on some medicine that they said would prevent the seizures, but so far that's all the help they've really given.

Well, my father's trying to find a Neurologist we can go see, but so far no luck. If anyone's got any advice that could possibly help me out, don't hesitate to give it to me. Thanks.

A lot of people not even diagnosed with epilepsy have small seizures during sleep. That's normal. So it's understandable someone with epilepsy would have more seizures or grand mal seizures even, depending on their type of epilepsy. I bet you just need your medication dosage upped a little.

Hmm, interesting. Do you know what could cause people to have these seizures? I'm pretty sure I didn't have any seizures when I was younger. Then again, since I've only had seizures in my sleep, I could be having these seizures for a lot longer than I realize, since I sleep by myself almost all the time and that's a time for me to have a seizure and nobody to know.

Well, anyway, does anyone have an idea what could possibly cause sleep seizures? I'm kind of worried about it, since I plan enlisting into the Marine Corps soon, and this could prevent that.

Yep, I've had them! That is what my hubby says anyways! I don't remember having anything; but, I can usually tell if I did upon waking up. If I wake up wondering if I had a seizure, I usually have had one. Another way I can tell is by the actions of my hubby. He's real different, He's in Flight mode. When I awake to him already up and dressed for work and heading out the room for coffee without even a kiss, that's a real good indication that I've either had a Seizure during the night or that my legs just wouldn't stop jumping all night. Haven't been diagnosed for RLS (Restless Leg Syndrome); but, I've had alot of the symptoms since I was little. You gotta admit that Since I do have Seizures and sometimes have kicked him during the night (unaware of doing so) - well I think this might give him som reason to be a might upset.

The problem with this is that both Seizures and RLS are medical issues that are out of my control. The only thing I can do is to continue taking prescribed meds that are to control these Medical issues. He's gotta deal with his own issues.

I've been having seizures in my sleep but only when I forget to take my medication during the day. As long as I take the meds. I'm O.K. I find that when I dose off on the sofa then that night I'm liable to get a seizure.

I have a seizure disorder at night for the last 9 years. They are no different then day time seizures most of the time, however sometimes there is something that sets them off while in REM. A sleep MRI needs to be done and a sleep study. Meds are need for sure. There is alot of new meds that help control seizures. I know with my seizures, I don't have warning. I know I had a seizure because my tongue is bitten, I have a bad headache, and I feel really sick. I also am very sleepy for a long time and lossed my memory of the day before. I also get depressed.

I know the marine will not take you until you are seizure free for a year. You have to be under meds and seeing a doctor. I wanted to join the marines but I couldn't. I thought it would be fine because it only happens when I sleep, I was wrong. I have lost jobs over this and it has no way effect my work. I wanted to go on the police force but I couldn't because the problem is I have to explain the meds I'm taking and if I don't take them I will have more seizures. And more seizure you have, it will cause you to have them more often and cause other pairs of your brain to be effected. So you can't cover it by not taking meds.

I have been epileptic for 28 years, most of which where controlled by medication (dilantin then changed to depakote), a couple of years ago I started having them in my sleep. I could tell by how I felt when I woke up, bit my tongue, sore from neck down. My neurologist prescribed a 24 hour eeg, basically it is electrodes on head and a little computre you carry and wear it home and they did a sleep study (sleep apnea). They found that I was having seizures in my sleep changed my medication from depakote to depakote er (extended release), I was also on a medication called lexapro which (I found out it promoted seizures) so I stopped taking it. I have been seizure free since.
I hope this helps
Good Luck

Hi, I'm new on this post. I would have seizers when I was asleep. It started that I know of when I was pregnet for my second child. It didn't matter what medication I was on or how much. Stress did bring on more seizers. I asked my neurologist to send me to Mayo in Minnisota. I had the best Dr. you could ever ask for. After a year of test and surgerys I am doing 100% better. I had my final surgery last September. I have been seizer free. I knew from the start I wanted this surgery. It is dangerus. But my brain was deteriating from the seizers and I would have died while having one of my seizers anyway. If no medications are working, YOU want a chance to put a end to it, I feel you should talk to your neurologist about this. I believe other hospitals are doing this, but it's better to go see the hospitals like Mayo that specialize in this. Your not another number. My 2nd child has seizers too. She has them when awake and is on lamectal.

Within the past year I have started to experience seizures in my sleep. I'd be
just getting to sleep when they occur. They would come on like a bad nightmare. Except I would be shaking all over. Often I would be covered in sweat. Like all my seizures I'd have a bad headache afterwards.

I read your post and I think you have the same problem as I do. I have seizures only at night while i'm asleep. I don't even know about them until the next morning when i wake up and realize i bit my tounge which occasionally leaves blood on my pillow. My seizures happen once every month or two usually shortly after i fall asleep. How often do you have yours? Also i noticed you mentioned you play video games a lot, I too play PC games a ton and have noticed that going to sleep immediatly after playing for a long period can trigger them to happen after i fall asleep. Are you currently on any meds? i've been taking Depakote but its not seeming to stop them completely so i've been prescribed Keppra. Tonight will be my first night taking Keppra....wish me luck.

had seizure in may 2006 while asleep,bit tongue ,bleed but never hurt,at any time. ask dr. why,he said i don't know. has this happened to anyone else. on dilantin 330mg. no seizures as of this date.

Ive had them for a while. Sometimes I can tell ahead that I'm going to have one and sometimes not. Zan just a note, video games can cause seizures too. I found this out after I bought my son a game cube and my seizure activity went way up. I cant be in the same room when he plays them. Two things I have found that help my seizures decrease are a reguar bedtime and no caffeine of any type within an hour of bed. If I can be of any help let me know.