Sexual Health - Men Forum - My True Story.. How It All Started Leading 2 I Cant Pee.

This is just the beginning. I am frequently urinating like 20 or more times a day, for example 2-3 times in a hour in a half or 4-5 times during bedtime. Also it takes like 15 to 25 seconds for my urine to pass. I finally seen a uro & I was diagnosed with interstitial cystitis at the age of 24years old. 7/12/05 the urologist determined this through my first cystoscopy and with pictures taken from my bladder. My bladder looked real damaged and polluted with spots/veins. My bladder has shrunken a bit, too is what the uro mentioned as well. Going back to the cystoscopy, even though I was put under anesthesia and a sleep and didnt feel a thing, the worst part was just beginning. After the procedure was done the most traumatizing experience had just began. Not knowing what a catheter was or even mentioned to me that I would be wearing this tube for 24 hours was a shock. Feeling all sore,groggy and uncomfortable as ever. I looked at the tip of my penis noticing blood on the tip and a whole lot of blood in the urine bag. “what alot of blood“.

Im real sensitive to my body and I felt urine occupying my bladder and it didnt feel like it was draining through the catheter is what I told the nurse, all she said was its draining and explained to my girlfriend how to take the catheter off in the next 24 hours, as I layed there listening feeling all groggy. On the way home im feeling real uncomfortable complaining to my girl that theres urine in my bladder and that it doesnt feel like it draining. My girlfriend drops me off to my home. I go straight to my couch to lie down for several long minutes. Still feeling real uncomfortable with this urine feeling I get up and try to get in different positions hoping it will make a difference, so my urine can pass. Obviously that doesnt work. All frustrated I call my girl and ask her how do I take this catheter off, she tells me that I have to use the syringe they gave me and to put it on the outlet side of the catheter and use the syringe. Not knowing what to do and that at the end of the catheter thats going through my urethra into my bladder there a balloon filled bubble to keep it in place to remain in my bladder. Not knowing, I put the syringe in and sucked approximately 10-ml of fluid out only. I thought this was all I had to do, I was wrong. I slowly pulled the catheter, but it wasnt coming out, so I thought that I must pull harder, so thats what I end up doing. I pulled and I pulled hard/slowly and it was finally coming. It didn’t feel right, though. I noticed that there was a bubble the size of a dime, filled with fluid as it was near the middle of my penis. I started screaming feeling like I was going into shock due to how painful it got. Still screaming as I feel this balloon protruding out my urethra I continued to pull as it got closer and closer to my pee hole. It felt like forever as it finally came out making a pop sound noise while the bubble stays the same. Im still in shock ,but still have this urge to urinate, after a little bit of time I was able to pass that little urine that remained in my bladder. What a releif, even though it burned as hell urinating each time, I urinated for the next 3 hours. I was finally able to get a little sleep on the couch. I noticed I had alot of chills and shivers though.

The next day I called the uro and mentioned what had happened. My regular uro wasnt there so I seen another uro at that place and he didnt even bother to look at my penis to see if anything was damaged. All he did was prescribe me with some type of antibiotic and sent me on my way. As a week passed I seen my uro for a follow up and we talked about diet and taking elmiron for my i-c for a year or two. Everything seemed to be getting better.

Approximately 5 months has passed, everyhing was going alrite, just having urinary frequency and taking about 20 seconds for my urine to pass. My bladder was feeling empty enough to enjoy whatever I was doing or even to get some sleep until I woke up to use the restroom again. I seen my urologist for a follow up on 12/21/05. I explained to him that everything was good and he then gave me another 12-refills for elmiron. The uro told me to come back in approximately 1 year for a follow up. Towards the end of 2005 something mysteriously went wrong with my urinary function.

4 days before the new year (2006) my girlfriend and I were having intercourse/safe sex at first. The tip of the condom keep getting too tight on the head of my penis. Making my penis look like a cone shape. So I decided to put another condom on and the same thing happend. I took that 1 off and put another condom on again, samething happend again. Our main reason for wearing a condom was to avoid pregnancy because we already have a child and we were not ready for another one. By this time I needed to urinate so I used the restroom. Everything was all good when I used the restroom. This time I decided not to wear a condom , as we got in heat of the moment I was getting close to ejaculating, but I kept holding it in because I didnt want it to be over and I wanted to satisfy my girl first before ejaculating. Next thing you know I felt a big sting/pain on or in my penis somewhere and about 2minutes later I finally ejaculated. I never had that feeling in my life during intercourse. After that I had a strong sensation/urge to urinate, but when I got to the toilet nothing would come out and I would be there standing for a long period, but nothing would still come out. I thought maybe if I take a shower ill be able to urinate. Just a little bit of urine came out spraying awkwardly. My bladder was not completely empty as well. I still had a strong urge and nothing would come out. So I waited until I got out the shower to go downstairs to drink a glass of water thinking this would help out. I finally was able to urinate, but it didnt feel right because my bladder didnt feel empty. This is when the misery of this mystery began. Something wasnt right.

I noticed that the tip of my penis was swollen on the left side, I didnt think much of it because I knew as time would pass by it will go down. Which it eventually did in a couple of days. As the new year began I noticed I was urinating more frequently, but I wasnt passing as much urine as before and my bladder wouldnt feel empty. Also it even took longer for my urine to pass. As the days go by, im thinking everything is going to get better, but it just gets worse. I finally see a doctor for a urgent appointment saturday 01/21/06 and complained about my urinary difficulties/feeling ill. My urine test was clean and I was prescribed a medication called pyridium, then sent my way. Saturday night I was feeling real sick like body sick, and decided to take a tylenol. Everything got more worse, I was urinating very little here and there. My bladder really felt full of urine at this time. I would be in the restroom for long minutes now passing very small amounts of urine. It was like this all day. I could not sleep at all because of the urge/sensation of urine so I was constantly on the toilet trying to get the urine out. Now it was very early morning of monday like 2:30 am , I tried taking a bath to relax myself hoping this would work. It was the same. I would be in the bath then to the toilet passing little urine now. I was so miserable by this time. I ended up staying in the bathroom for 3hours this time. Jumping in and out the bath to sitting on the toilet for long, long minutes. I waited for the urologist to open and made a urgent appointment. I was seen 30 minutes later. By this time I am feeling really sick. I tell them my problem and my uro tells me that im gonna have to wear a catheter. Which I disagreed on because of my first experience with that. So that didnt happen. They checked my bladder with the ultrasound and said my bladder was completly empty. I told them straight up I have urine in there. They told me to urinate in a cup for a test. I was in the bathroom for 5 minutes and nothing would pass. I was called back to the room and they decided to insert a self catheter real quick. Next thing
you know, urine starts flowing out the tube all over my pajama pants and into the test cup. From the look on there faces, they were shocked that urine came spraying out dark orange because of the pyridium medication. What a relief for that half hour. The uro mentioned my prostate feels tender and inflamed. He prescribed me to take levaquin (500mg) for ten days. I was sent to the lab to drop off my specimen. Thats when I had another urge to urinate and my body started feeling sick again. I got home and tried to use the restroom , but nothing was coming out. I decided to get into the bath to try to relax then id hop back onto the toilet. This time nothing would even come out. I was feeling extremely ill and misrable by this time not knowing what to do. I called the uro back, and he said, “go to the emergency room.” which I had to do by this time, I knew I was going to have to wear a catheter this time around. I was right, that was my only option. 200c/c eventually came out. To the doctors that may not be much, but for a bladder like mine thats alot. They would not understand that, though. What a nightmare for me to go through this all over again. I ended up wearing the catheter for 4 & ½ days. It releived alot of that uncomforable urine in my bladder. It was very hard to sleep with this tube, especiallly when I would get those early morning erections, it would hurt like hell. 2 be continued.. Sad

gemiinii wrote:

are you some type of doctors assistant or work in the medical field area?

no, I already said that.

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i disagree with your opinion regarding my bladder & the way it functions as to having some psychological issues with urinating. I am not indenial as well.

that is up to you. From this reply I am even more inclined to think that.

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like I said, 10 months ago and before that I only urinated frequently like a total of 20-25 times a day. It also took a couple of long seconds for my urine to pass.

you do realise that is a lot don't you? The average person would urinate 3 - 7 times per day.

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i was trained to urinate at the age of 3 or 4 years old.

this is exactly what I was getting at. 3-4 years old is quite old for potty training. It is during these early years that the bladder learns how much urine it can hold. By being trained quite late the bladder has already learned to attempt to empty when there is only a small amount of urine in there - in other words your bladder learned to recognise the feeling of having some urine in it instead of learning to contain an amount of urine.
This is not a choice you made, this is a matter of circumstance.

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i used to pee all over the toilet seat as well as on the floor. I rarely had any accidents urinating on myself.

a issue many little boys (and indeed men) have. A reason why I will never understand that we teach boys to urinate standing up. It is one of the most difficult things to do is to learn to aim and relax. The urethra and the penis opening are not perfectly round and that means that even with perfect aim the pee won't always go where it is intended. Again not a choice that is made but a matter of circumstance - one where girls have it easy i'm afraid.

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i did wet the bed sometimes until I was like 8 or 9 years old. It was nothing to be embarrass about.

woah, steady I am not critising, far from it. Bed wetting is never someting to be embarrassed about. A healthy child will not choose to urinate in a place of comfort (which is what a bed usually is). Bed wetting is a symptom of an underlying cause. That cause may be medical or it may be psychological. Either way it is a very real symptom and not something to be mocked.
Some children try to hold pee in because they are afraid to cross the dark hallway to the bathroom and then they can't hold it. Others might be afraid to get out of bed incase they get told off for getting up. Yet others might not have that physical control of their bladder while in the deep reccesses of sleep.

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me urinating in the bed eventually stopped around 10 years old. I did hold my urine alot in middle school until the end of tenth grade.

see whether you are concsious of it or not, there is a reason why you would have tried to hold on.
My partner will hold on for as long as he can because there is only 2 places where he is comfortable about peeing - at home and at his parents house.
He won't use the rest rooms in restuarants or serivce stations. He doesn't know why, he just can't bring himself to urinate in a public place.

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the slow flow began this year with all the other complications I was going through.

Unable to completely empty my bladder, retention, interrupted flow and only passing small amounts of urine.

this still makes me think your bladder doesn't know how to behave, not that you don't know how to control it, but that your bladder doesn't send the right messages to your brain. Not something you can control, but something that can be improved with bladder re-training, over a period of time - it is not a miracle case of think this and you are cured.

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i do know the difference with having a little urine in my bladder to having a full bladder.

you know the messages that your bladder sends. If your bladder is sending messages to your brain constantly saying "i have urine in me" over and over again, you can not control that. That is a real problem and that is what I am trying to address.

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my bladder does not work like everyone else bladder. Even with just a little urine I have a urgency/sensation which is very hard to ignore. It is very hard to relax.

ok that is my point. Even with a little urine your bladder is saying "hey empty me I have urine in me come on". Your bladder is sensitive to any amount of urine - again not a conscious decision but a learned behaviour of the bladder.

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like I said, before 10 months ago even if I had a little urine to a decent amount in my system I was always able to urinate it out with no difficulties. So I dont know what you are talking about, I focus on my bladder to much even with a little urine.

no, exactly, more like your bladder makes it self noticed, makes it self the centre of your focus. Because it is so sensitive to any amount of urine it sends messages to your brain constantly demanding attention.
With having had interstitial cystitis, amongst other things you have mentioned this is not suprising.

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its easy for you 2 say than to do.

yes, I know these things are easy to say. Yes, I know the doing is difficult, that's why there is no overnight cure.
That is why I am putting in the research for you, to find options that might help you, things you can discuss with your uro and see what they think.
I would never advocate someone trying something I suggested with out first talking it over with their doctor.

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also with me going to the e-r for retention, I didnt go all of a sudden each time I couldnt urinate. I waited it out until my body started to feel very ill. Do you think I like feeling this way? Do you think I like going to the docs/uros and having them insert instruments in my little pee hole? Do think I like to insert a self catheter in myself daily? Do you think I like waking up 4-5 times everynight to pee? You think you know, but you dont!!!!!!

no, you think I am working against you but I am not.
I can't imagine anyone wanting to go through what you are.
That is why I am prepared to research and offer suggestions for you to discuss with your doctor/uro before trying them.
You came looking for help and I am offering it. So far things aren't exactly looking like they are about to improve dramatically are they? So just accept a different slant on things. These are not a criticism, so don't take them as such.
A little background can often help. It's quite obvious that the whole problem did not begin 10 months ago. It began way before but then it was at a stage where by you could cope with the situation. That situation is now worse and I am supposing you would like to see an improvement?
Things only improve when you treat the root cause. Treating the symptoms will possibly give temporary improvement but will not do anything in the long term.

I have a personal medical interest in the genitourinary system and providing I pass the right exams, one day I will be a specialist in disorders of the reproductive and urinary tracts in human beings.
Until such time I am person with a wealth of research available to me, that I am willing to delve into and make suggestions for people to discuss with their own doctors.
It's a bit like men who can't get an erection. Sometimes what happens is they have a couple of bad experiences (maybe too much drink) and they either can't get or can't maintain an erection on that occassion.
That in it self is not a problem. However, commonly, the brain then registers that last time it tried to do that it failed - the man may not even realise that the process occured in his brain.
And hey presto you suddenly have an erectile dysfunction. This can be overcome.
You have a bladder dysfunction. The first step is to find out the sole cause of why you have a bladder dysfunction, the second step is to work out how to treat that dysfunction, while trying to relieve the symptoms to make you more comfortable.

I imagine the last thing you want is to end up wearing a catheter permanently and I highly doubt you wish to continue trips to the er just so you can pee? Am I right?