I'm looking for people who have had gastric bypass surgery and are epileptic. If you have had this surgery and are epileptic, please consider posting. It's important to discuss issues related to this since there are no studies or information on gastric bypass affects seizure disorders.
hi i had the gastic bypass 10 yrs ago and i had a grand mal 8/30/ 07 and have been having episodes now i am very upset b/c the docs seem to push it off as depression ( even though i have sharp wave in left temperal lobe i wonder if it is in relation to the loss of vitamins or is it eplipsy i also have developed very poor eating habits and sometime periods of bulima an anorexia (b/c of fear of getting big) please offer and info would be great i want to work and cannot untill this is settled
I had Roux-n-y in 2001, and have also developed Grand Mal seizures. This has been awful - needless to say.
Just yesterday, a nurse suggested that I try taking magnesium twice daily. I have no idea idea if it will help, but I have since found other websites identifying magnesium deficiency as a possible cause of seizures. I will try starting today, and reply in a month or so with an update. Best wished to all.
P.S. I am taking seizure meds, and monitoring my blood sugar in light of periodic (bypass-related) hypoglycemia. Doing so has NOT prevented my seizures.
Connection Between Gastric Bypass And Your Seizures
Shaynlukesmom, I'm sure there is a connection between your seizures and the gastric bypass surgery.
My husband is epileptic and his seizures were controlled for many years until he had gastric bypass surgery. After doing some research, I discovered that high fat diets are successfully used to treat epileptics. Take away the ability to absorb fat--which gastric bypass surgery does--and you have the opposite of a high-fat diet. It seems fat is necessary for the control of seizures.
My husband began having both petit mal and grand mal seizures several months after having his gastric bypass surgery. The seizures began after he had lost most of his weight.
At first, we thought the surgery was causing a problem with absorption of the medication. But blood work showed therapeutic levels of Trileptal, the medication he had been taking successfully for years. Regardless of the therapeutic levels, he still continued to have seizures. The doctors increased the dosage of Trileptal, but this did not help, and his seizures continued. This is when I began doing research and found the link between fat and seizure control. (If you look up the Ketogenic Diet you can more information on how high fat diets control seizures. )
I feel that it's very important that epileptics be warned about the potential seizures after gastric bypass surgery. Right now, gastric bypass surgeons seem unaware of this situation and are telling epileptics that the surgery is perfectly safe for them.
I subsequently posted information on the Internet and started this Yahoo group. In the past 8 months, I have been contacted by five individuals who began experiencing seizures after gastric bypass surgery. What shocked me is that only one of these people ever had seizures before the surgery! Maybe it's that each person has a tendency toward seizures, and when fat absorption was disrupted in their body, their seizure threshold was lowered and they began having seizures. One woman had such terrible seizures after the surgery (a grand mal every day!), she planned to have the gastric bypass surgery reversed.
You won't find anything published on this topic at the moment. Our doctor contacted the surgeon at my husband's gastric bypass center and warned him to be careful about doing gastric bypass surgery on epileptics.
Please contact me if you have any more questions, would like to help with the research paper, or just need to talk.
Are you still reading this post? I too am trying to get my doctors to recognize that I believe this procedure to have changed my epilepsy. I was 14 years seizure free and non-medicated until I had the procedure in 2003. Then on February 20, 2005 I had my first gran-mal seizure. Prior to that I only had petite-mal seizures. They have not been controlled until recently. I have not been able to drive since 2005. I want them to do a study. He said I would have had a seizure long before 2005 if the surgery had something to do with the change. I just think it took that amount of time. Maybe I stopped taking my vitamins or something. I don't remember. I can't hold vitamin B's at all or iron or vitamin K. Lamictal a seizure medication they had me on damaged my immune system to the point I can get pneumonia and not even know it and that can bring on a seizure. I was actually 17 months seizure free and that was the longest I had been since having the surgery when I got the pneumonia and the circle started again. Hopefully I will hear from you.
seizures did not start until weight was loss and 4 months after an iron infusion. I have had 2 iron infusions in the last 3 years only. I had never had seizures before. I do not know if it is from fat malabsorption, menopause or hypoglycemia when I do not eat right that brings it on but I am working on isolating the cause. I do know I can drink no alcohol whatsoever. I have seizures afterwards so I am sure the glucose has something to do with it, but I also have them more frequently right before I start my period. Go figure.
I started having seizures 1 month after bypass.They have been nocturnal seizures until last week-my first one while awake.My old neurologist has written it off to depression..fortunately,I have a good IM doc who is sending me to a new neurologist.We need a national registry to keep up with all the cases.
pls help ppl..my aunt recently had her gall bladder removed due to stones, but after a week or so she seems to have eleipsy lyk symptoms..she faints feels difficulty in breathing,makes noises not undrstood by ne 1 of us,all her tests related 2 the prior operation are ok and doctors are not making a headway, money and time both is bein wasted.....PLS HELP
I Had Gastric banding done 4 yrs ago, and have had two seizures, with no history of any previous seizure hx before. I think it is related to my high level of coco-cola intake as i love coke ( lots of sugar/ caffeine and i really like the taste.
My dr (Neuro) does not know the cause, my dr (endocrine) does not think its coke and my next dr(surgeon re band) flately refuses to consider it may be coke. I'm female in my 50s any suggestions from any banders out there, ive stopped dringing coke, and had my band released to 3 mls.
Dear Billjim, Your post sounds very similar to my experiences. Im female 54 had "dodgy" lapband and band too tight, unable to take in very much food, but able to drink coca-cola, whick I absolutely adore, "I am sure you can be addicted to coke, sugar and caffeine" I work in healthcare which is physically and emotionally hard, and have now had two full grand mall seizures and three abscense seizures, where i was found be be upright but had no idea of what had happened.Very scary. My doctors would and could not determine what was the cause of the zeizures. I feel it is the hypoglycaemia from the cocacola which stimulates my pancreas to make too much insulin which mops up the sugar leading to a hypo event which leads to unconsciousness and then a full zeizure.Also I am constantly very hungry, and have put on heaps of weight. apparently if your insulin is too high you will be hungry. Also I have had injuries from the zeizure activity,tonque biten,two lacerations to skull(fall) and I got some glass in my leg.(fall and broke something) I had no seizure activity prior to lap band. I am really frustated with the doctors I have seen as they cannot marry up my symptons and form a diagnosis.
I have had to be really forceful with my gp and request a ct and ultrasound of my pancrese as i feel it may be a rare condition called an insulinoma.I am very despondent with the negative changes to my health. I will watch your post for a reply.
I had gastric bypass surgery 9 years ago. I had my first seizure 7 years ago, one 2 1/2 years ago and two weeks ago. The ER doc put me on Keppra and it makes me feel awful. I'm also not allowed to drive for six months. I wish there was research being done on this.
I was thinking about having gastric bypass surgery. I have three different types of seizures. My primary care doctor told me that the surgery would be safe. My neurologist told me to forget about the surgery. It was not safe. He had patients that development more health problems after the surgery. Thank you for sharing your stories. I have made my decision to not have the surgery.
2003 Bypass, lost 190 lbs. 2007, first seizure; 2008, Diagnosed with Epilepsy. For me, it's directly from excessive insulin when my pancreas overdoses me; eating very high-glycemic food (mostly on an empty stomach) produces the involuntary jerking and sputtering unconsciousness anywhere from 90 minutes to 3 hours later.
I had gastric bypass about 3 months ago, and have recently begun experiencing moments of disorientation or blacking out. I was wondering if these might be petit mal seizures. I've spoken to my gastric by-pass doctor about it, and he seemed to be completely convinced that this had absolutely no relation to the surgery. I'm now seeing that this might not be the case. From reading the comments above, it looks as if most of the people affected by seizure following their gastric by-pass have experienced grand mal seizures. Is there any information out there about petit mal seizures and gastric by-pass. Can anyone direct me to more information on this topic. I'd aprreciate it. Thank you very much,
I had gastric bypass 3 yrs ago, six months ago I had three grand mals in a row and they chopped it up to hypoglycemia after I was hospitalized. I had another one two weeks ago and was hospitalized again and again, hypoglycemia. Since then, I have seen the symptoms and eaten sugar or glucose tabs and stopped the seizure, hence it is hypoglycemia. I am seeing another MD, but does anyone have any ideas how to stop this? I am only 35 and don't want to have to live like this forever, I have almost had 4 seizures in 2 weeks and I am beginning to get depressed. I would appreciate any help. Thank you!
I had gastric bypass in 1996. Was diagnosed with Epilepsy in 1998. Never had a seizure before then. Started passing out, having grand mal's. Neuro's chalked it up to generalized and no known cause. Also was sent to a Psychologist due to the psuedo seizures. Could all be connected. Seizures never stopped in all that time. Still having them as far apart as 6 months and as close together as a week.
I feel your pain. I have to say though that at this point, with diet and excersize and a few new medications they have me under control. I would be more than happy to share all they have done to help me if you would like to write me. I got lucky that the docs have listened to me and are as up as any of them can be on this side effect.
My mom is in the hospital right now with this. She had gastric bypass in 2006 or early 2007. She is getting transferred to the epilepsy center near Seattle, WA, on Thursday. On Sunday the 12th she had almost 50 episodes of "seizures" I have to say after doing more research online I now have a strong feeling that this could be the issue... Does anyone know if there have been studies on this? If so how do I contact them. We live in Juneau Alaska and I would like to know more before I go south with her.... PLEASE HELP>>>>
i am so thankful to find this site, i had my gastric bypass in 2001, in 2004 i had my frist grand mal seizure due to that i lost my home and new job,cause i lost my lic. for 6 months and i had accepted job and home in rural AZ.MD said it was due to me not eating right or often. second grand mal seizure was in 2007, had 3rd grand mal seizure march 26th 2010 i was in classroom, i am finally seeing nero. specialist 05/05/10. I havent spoken to DR. who seems to think my gastric bypass and seizures have anything in commom. there is no family history, i have never had a seizure before surgery,iam not having seizures due to withdraws from drug or alcohol. iam on dilantin 300mg once a day, it makes me feel stoned w/o the munchies,shaky feeling,forgetfulness. I am thinking this is life after gastric bypass. When a class action comes up please let me know i didnt sign up for this nonsense!!!
See an endocronologist. It is nothinf nuero, it is your blood sugars in relation to the bypass. I have been through all the testing and I am very well aware. I just came out of ICU this weekend for the 72 hour fast, and all my issues are tied into the gastric bypass. It is referred to as reactive hypoglycemia. Look it up and you will see. Let me know if you have any other questions.
Although your post was a while ago, I was wondering how it was diagnosed. My daughter is in the hospital now as she has begun having grand mal seizures - no family history - she had gastic by-pass in 2006. Any info. would be appreciated