SOOOOOO happy I found this thread I could cry!!!!!! I thought I was alone! Let me start with my story... I'll try not to leave anything out. I've dealt with this since a child! I remember waking up in the middle of the night... hearing loud noises, almost voices it seemed, everything was extremely fast, even though it wasn't, and I'd start screaming and balling my eyes out. I couldn't take the feeling... the fast feeling. My mom/grandma/grandpa would wake up tell me it was okay that I was dreaming... but it wasn't okay... I wasn't dreaming... it was happening... and I never told them. Till this day I never told anyone. How do you tell someone you feel fast? It sounds kind of goofy doesn't it? Feeling fast doesn't cover the fear, or feeling, you get while having that episode though. It's like there are 15 voices in my head all whispering extremely loud in my head, although I can't make out one word, every breath... movement... heartbeat... feels like it is going 1 BILLION miles a minute... and honestly I feel like I could hurt someone or myself if the feeling doesn't go away soon. I try to calm my breathing, relax, walk, move extremely slow (although it still feels like the world, me, everything, is going 10,000 miles a second) and think of something else.
I did have asthma extremely bad growing up and took an inhaler nightly. I also had a bad double ear infection as a baby, but it was treated. My last episode as a child was when I was 8 at night... I remember because it last for 5 minutes, my grandpa came out and held me, and I was scared to go back to bed. Well now I am 23, on TOPAMAX, and have had my 2nd "fast-feeling" attack" the first one was about 3 weeks ago and was very quick that I thought nothing of it. But I just had one last night that seemed to last forever. I was freaking out, tried calling my boyfriend at work a million times although he didn't answer, thankfully he didn't because what would I tell him?, and eventually it went away. I told him later it was a panic attack. I've seen a few people talk about Topamax and their fast-feeling coming back. I wonder if it brings back these attacks in people who previously had them as children? It scares me that they could be seizures. But how could they be seizures when I'm on an anti-seizure medication? By the way, I take Topamax 50 mg at night time once a day for migraines. I don't for a second believe this is in anyway related to Alice in Wonderland Syndrome, although I love Alice, lol, the symptoms don't fit. I never feel big, or small, or distorted, just fast. Like someone has me on a tv, and pressed fast-forward on my life, body, and brain. It's the worst feeling. For those of you who say "you miss it" BE CAREFUL WHAT YOU WISH FOR. I was balling my eyes out scared to fall asleep.
It makes me mad that no doctor will take any of us seriously. And doing more research, there are more forums, people just like us, talking about the same exact symptoms, all starting in childhood! Something is wrong here!!!!! I have been peeing a lot at night, so I'm interested about it being possibly related to hypoglycemia. Thank goodness it happened at night, alone, while my daughter was asleep, and while my boyfriend was at work, because the noises and voices? were already so loud, and everything around me was so fast and quick if they were up I would of flipped out curled in a ball and cried. He would of thought I was nuts. I wanna tell him, or at least my mom, but I'm always so sick this will just be another thing on the chalkboard for him and he'd probably think I was legit nuts. I'd like to know what we have because what if there were other symptoms, or complications involved? What if its genetic?
Too bad we can't all come together and have some kind of tests run on us. I would do it if it meant answers. We're not alone, they're are lots of us out there, and I wouldn't even of found this group if it didn't come back up again, so imagine the people that had this happen as a child and still have not said anything!
I really hope this thread keeps going. It gave me hope and relief when I was freaking out. Thank you.