Hello and thank you for reading this post.
I am a 39 year old woman from norway that is starting to get rather desperate to help my son out of his pain.

My son is born october 1992.
June 2003 my son was bitten by a tick.
January 2004 he developed bacterial menigitis.
The doctors believe this was caused by the tick bite, but has not been able to get it confirmed.

Today september 2006, he is still suffering from tremendous headaches that is worst in the mornings and in the late evenings.

He has more sick-days from school than he is on school.
He cannot concentrate for very long before the headache bothers him to the point where he has to lay down.
The pain is always located in his forehead and tins (side of head) (not sure of the english word for this, sorry).
No painkillers has ever taken his pain away, and the only thing we havent tried yet is morfine.
Noise and too much light makes the headache worse.

After 1 year or so he was diagnosed post menigitis headache, but they were not 100% sure. This was as I understood it due to lack of other plausible diagnoses.

I have asked several if there is anything we can do to ease his pain or to get rid of the headaches, but none has been able to help us.
I have also asked when he will be healthy again, to where none can answere either. The only thing they have told me is that it will go away, but none can give me a time.

During the summer holidays he has grown several centimetres and gained over 1 kilo, and his headache has slowly but surely gone away.
Then school started again aug 16th and it took him 2 weeks before he couldnt go to school anymore due to too much headaches.
He really enjoys school and loves spending time with his friends, so he is getting very frustrated when he cant go to school or spend time with his friends.
This is ofcourse taking its toll on me as well and I am trying my very best to stay positive and strong for his sake.


My questions are:
*are there others out there who can help us in any way ?
*what helps on this diagnosis ?
*what can I do to help him get rid of this pain, if anything at all, and when can we expect it to go away ?
*what can I do to ease his sufferings and to greatly improve the quality of his every day life ?

Any help or advice is muchly appreciated.


* from a desperate mother, lilly *