There are numerous threads on this forum about people who have cured their cu and the rather large thread on cu. For those of us who are still suffering, this would be helpful. So i'm going to rummage through the forum and quote solutions that have worked for people as well as provide a faq and basic information for those with cholinergic urticaria/heat hives/ stress-induced hives. For those who don't have this conditon, but are clicking this thread to learn about it. Cu is characterized by red welts appearing on skin, along with an intense itching in affected areas.
From what I have gathered...
Basics:
a)chinese medicine/acupuncture seems to help, but not cure cu.
B)homeopathy doesn't seem to work, although there are advocates for it.
C)antihistamines keep the cu at bay, not a definite cure for cu.
D)exercise/steam room/hot showers and baths will deplete the body of it's histamine levels and keep the body from having attacks for /- 24 hours, varying from person to person.
E)staying away from histamine releasing foods will greatly reduce attacks. Common ones:
* alcohol
* bananas
* certain nuts
* chocolate
* eggs
* fish
* milk
* papayas
* pineapple
* shellfish
* strawberries
* tomatoes
f) for most people, an atomsphere with high humidity will reduce attacks and make sweating easier.
G)some have found taking a multi-vitamin, vitamin e/b pills can make this condition less sevre.
H) not every antihistamine works for everyone, some people will have better results with one as opposed to another.
I) hydroxyzine (very commonly prescribed antihistamine for cu causes drowsiness and a very hard time concentrating, most people who have taken this antihistamine have switched/ gone off it because the side effects are too unbearable.)
j) cu
seems to be stress related (in terms of developing the condition, it usually develops during a time of great emotional stress.)
faq:
1) how did I get this condition?
No one is sure about how or why people get cu. It seems to be affected by stress as many people who get c.U are usually going through an unusually stressful time when they develop it. Personally for me, my family was having financial problems, I was switching schools, schoolwork, etc.
2) what triggers a cu attack?
Histamines in your body, when released, triggers a cu attack. Heat is the stimulis, the actual precipitating cause is sweating (inability to sweat). Red welts begin to appear on areas including but not limited to arms, neck, chest, arms, back and sometimes legs. After sweating is induced, the itching should go away.
3) is there a cure for cu?
There is no sure cure for cu, it seems different things work for different people depending on the sevrity of the attacks and other factors. Cu is a relatively rare disease that effects a small % of the population which is part of the reason why there isn't a definite cure.
4) is cu contagious?
No, cu is not contagious.
5) will cu ever go away?
The average duration for cu is 7 years, cu will spontaneously go away eventually for most people.
6) is there a demographic of people who are more likely to get cu?
I, unfortunately, cannot answer this question. Part of the reason being that cu is such a rare disease. However, I have traveled halfway around the world (i'm in the us) and met someone with cu.
Now for solutions I have found from these forums, from various people.
| cdz19 wrote: |
detergent free method:
1. Get rid of all your clothes. Throw them away or put them in a plastic bag air tight. You'll likely never wear them again.
2. Buy all new clothes. Preferably loose instead of tight. If you are budget strapped, buy just enough full sets of clothes for a 2 week rotation only, or however much you want, it's completely up to you.
3. Buy new bath towels and bed sheets, throw out your old ones. Again, only get whatever is in your power in terms of budget.
4. Before you do laundry, pre rinse 1 cycle with just water.
5. When you do laundry, don't use any detergent. Use baking soda only.
6. Only wear your newly purchased clothes, all cotton. No polyester.
7. Only sleep on the bed with the new bed sheet.
8. To help you along further and getting rid of the cu, I suggest starting off by taking a detox bath to get rid of the existing residue.
9. Wipe any furniture/couch/chair you might have very clean. Detergent residues are practically invisible.
Personally I didn't do #8 until later on, because I was completely unaware of it. Fact is, it actually helped me along even faster. So just know that #8 is really. Me personally, I couldn't stand the pain during workouts, so I thought that i'd take a lot of detox baths to start off and then get to working out.
*note: ask your doctor about detox baths before doing it.*
i havent' had a serious attack in a long time, so I suggest at least starting here and trying this out while you're looking for other cures, should you even need to. |
cdz said his cu is 95% better and hasn't had a serious attack in a long time, he suffered cu for 2 years .
| sean3000 wrote: |
yay!! I no longer have this horrible condition which I have been suffering from for 8 months!
I think theres a number of things that have helped cure me.
I have been taking neoclarityn 5mg every morning and xyzal 5mg every night (both common antihistimines)
i also looked into vitamines that are good for the skin, I settled for a vitamin b suppliment and a multivitamin supplement which I take every morning with the neoclarityn, cost me $6 in total!
I have now been breakout free for a week and I havent even had the slightest hint of an attack , I havent even itched and it has been very very warm here in the uk the past few days!!
I really hope this gives cu suffers out there belief that this thing will go away and I would strongly reccomend anyone with cu to take vit b suppliment on a regular basis |
sean has been doing much better (90%) and continues to take 5mg xzyal and vit. B supplement everyday.
| spatel wrote: |
| well I tried the urticaria.Com site and received the homeopathic meds which started taking. The thing is that I also started exercising around the same time and begin eliminating alot of things from my diet. My advice to you try to avoid unnecessary preservatives (aka sodium benzoate,etc). I also gave up diet coke which has aspartme in it which is a huge a allergen for some cu sufferers. I carefully look at ingredients and try to avoid stuff that has preservatives in it. Try to eat organic bread, yogurt, milk, etc...I'm telling u I used to think it was all pointless but i've learned from experience it helps! Okay the first couple of weeks of exercising was hell but now my cu is so much better! I used to not be able to sweat and now I do w/out rash! I think the homeopathic meds had some impact but my boyfriend seems to think it was only the exercise and diet modifications that helped my condition. One more thing I have to add for the smokers out there, I hate to say it but cigarettes make it worse. I smoke here and there and I can tell if i've smoked that day or the night before, a mild rash will show up during a workout or stressful warm situation! I know its hard but try to avoid the cigarettes. So take home message from this post, start exercising, avoid preservatives and avoid cigs! Okay well if anyone has any additional questions please let me know via private message. |
| cleo wrote: |
| hi! I have chronic urticaria aswell which gets worse by hot food, heat, sweating, stress etc. I have tried many histamines and zyrlex has worked ok. However if you want to have them removed 90 - 100 % try acupuntcure which is very effective. The other very effective remedy is homeopathic medecines which will make your lives truly bareble again. My remedy (each remedy is individualised) constitues of ribes nigrum, viola tricolor, apis mellifica, histaminum (all 4 3 times per day) and formidium d6 (one 1 ml ampul per night). This remedy keeps the hives and itch away, you wont even believe the state you were in before you started. The good thing is that it is all natural medecines so there are no siede effects. Try it and regain control... |
| jimmi56 wrote: |
ive been breakout free for several weeks now... Which.. Is quite awesome... Heres what I did..
Liver cleanser - cleanse liver which will clean your blood
candida cleanse - yeast overgrowth in intestines creates numerous allergic reactions.
Calcium w/ magnesium - balance your bodies ph so the immune system functions properly.
Royal jelly - good for allergies
apple cider vinegar - good for allergies
shower filter - $20 at home depot
salyctic acid body wash -
no drinking tap water - chlorine and flouride in water = bad.
No flouride toothpaste - many people are allergic to this poison and dont know it.
Hope that helps someone out there... This is the all natural way to go.. I definitely didnt want to have take drugs... Id hope all of you would stray away from them as well |
follow up post by jimmi56
| jimmi56 wrote: |
i had gone to a dermatologist. They only prescribe drugs. I am currently trying to go all natural in trying to fix my body which has numerous problems.
If there is a vitamin shoppe in your area, they have everything on the list. Trader joes, you can find some of the items, not all.
I would recommend getting these items at vitacost.Com (cause its cheap there):
nature's secret ultimate liver cleanse
nature's secret candistroy
any brand coral calcium with magnesium (currently using natures' bounty from rite aid)
any brand apple cider vinegar (currently use gnc brand from rite aid)
any brand royal jelly. (currently use gnc)
you can get the shower filter at home depot for $20.
You can get the toothpaste at trader joes or rite aid. (i use toms of maine brand toothpaste with no flouride)
the body wash, just get something that your skin likes. I use the biore blemish fighting wash with salyctic acid- it has a nice cooling affect.
Oh also.. Do not use deodarant with magnesium and aluminum!
You can get the all natural deodarant at trader joes or rite aid (i use toms of maine all natural deodarant).
All these items are very important. Go all out on these items. Give it several weeks. Your body should be cleansed of almost everything by then. Hope everyone feels better soon! |
many posts have been deleted by mods. I'm not exactly too sure why, but we lost some valuable and informative posts. There is a very bad spellcheck that seems to uncapitalize a lot of things on this forum, meh.
Feel free to correct me if I have gotten any information wrong and if possible, mods, please sticky this thread so that people who are suffering from cu can do something about their lives. Thanks to all of those who have given me hope with their posts about how they have found their cure and hopefully, i'll find mine.