I was diagnosed in 1989 and have had vague chest pain for a long time. However, 4 years ago I awoke in the middle of the night with an elephant on my chest! I couldn't breath. I couldn't stand up straight. I could'nt even get my self dressed to go to the er! I spent 4-5 hours in the er, with them thinking I was a drug seeker. they ran thousands of dollars worth of tests, all to send me home with no explanation.
that afternoon I had an appointment with my pain management dr, told him the symptoms and he said " oh, that is COSTOCONDROITITIS". TOOK HIM ONE SECOND! I went home looked it up on the National library of medicine website, and sure enough it fit the description.
I have had many bouts with it since, but i know what it is and how to treat it.
COSTOCONDROITITIS: IS THE SUDDEN OR SLOW ONSET OF INFLAMMATION OF THE TENDONS AND LIGAMENTS CONNECTING THE STERNUM, RIBS, AND SPINE. THIS CAN LEAD TO LONG TERM SCARRING IF ANTI-INFLAMMATORIES ARE NOT USED TO REDUCE THE INFLAMMATION. this is seen in other rheumatoid conditions as well as lupus. you might want to be checked for other conditions such as sponylitis (arthritis of the spine) or psoriatic arthritis.
hope this sounds familiar and helps you find answers
good luck,
mia