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Conditions and Diseases > Blood Disorders Forum > Help Please! Behcet's!!
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Q: Help Please! Behcet's!!
asked by: jadeee15 on August 20th, 2006
New User
Ok, im not really sure where to post this.
But ive been told by my doctor I may have behcets.

Im just a normal 15 year old girl,
i dont exercise alot, or have a good healthy diet.
But im very tiny and just 7 stone, I dont think weight has much to do with it though.

Well..
Sinse the age of 12, I noticed it felt rather sore when going to the toilet.
Being 12, my mum was very concerned and took me to the doctors right away, the doctor was also very concerned, and took a look, and thought maybe I had an std.
He said there was a lump on my vigina, by my urinating hole, and said it looked like an ulcer, asked me some questions which shocked me because I hadnt even kissed a boy at that age :oops: . The doctor took a swob and gave me some stuff to put in the bath, said if it was bad they would ring my mum, they didnt, and by about 3 days it vanished.

I got it a second time, at 13. It was horrible. I had it over xmas, I just wanted to cry I couldnt jump around with my little brother and play with hes toys because it hurt enough to go to the toilet, and to walk. Like usuall after a week it gradually went.

I got it a 3rd time about 4 months later. Got down to the doctors, they didnt think much of it, told me to drink lots of cranberry juice and I should be fine.

A 4th time, at 14, last summer I had it, they asked me questions again about being sexually active and I wasnt (which was the truth) they refured me to the hospital in september but I was very embarrest that so many people would see my privates parts, so my mum cancelled. Anyway..I thought it would go and proberly not come back..I had it enough times. But I was wrong.

2 weeks ago, it came back. Now at 15 I am sexually active, but having it the 5th time it cant be to do with sex, I had an std test 5 months ago and was clear from anything.
I saw the doctor last monday who told me to visit the g.U unit, which is a sexual clinic and doctors.
They had a look, and said I may have behcets.
Id never heard of it, so when I got home I told my mum and she looked it up on the internet, and told me blood isnt going round my body properly, I could go blind or possibly disabled, and have lots of problems in the future which are right now uncurable.

I am in so much shock, after 3 years of suffering from it on and off they give me an answer.
I have no family history of it, but I did suffer very bad side head aches a few months ago, and sinse 1st discovering it I was very depressed from my parents divorce and still am.
When they got divorced my phsorices (sorry cant spell - its from stress and lack of sunlight) flarred up very badly, and I still have it, also ive suffered from terrible mouth ulcers for the past 3 years.
They have gone down alot now.

I just want an answer to this. I dont want to think that im going to have this for the rest of my life.
Im taking my gcse's very soon..What if it effects them and I fail?
Im terrified im not going to have a good future..

Sorry for such a long message,
please help me :(. Or give me some advice.
I would appreciate it so much.
Luv jade xx
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monkeygirl22
replied on July 1st, 2008
Extremely eHealthy
I'm sorry you were going through this. I don't have an answer but I am redirecting this to another forum in hopes that you might get the help you are looking for.
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