Joined: 06 Aug 2006 Posts: 3 Location: mississippi
Temporal Lobe Epilepsy (what Color Is Your Couch?) Posted: 08-06-06 15:09pm
Hello everyone!
I know that there are already a few
threads which discuss tle. I didn't want
you to think that I was just coming in
here and starting my own thing. I'm just
very interested in talking with others
that have been diagnosed with this. I
find it to be both interesting and
disturbing at the same time.
I've been suffering from grand maul
seizures for about 3 yrs now and was just
recently diagnosed with tle. I was kind
of happy when I got the diagnosis and did
some research on it because for the last 6
months, I thought that I was going crazy
and was definitely headed for a mental
institution. I was having some sort of
"episode" every day until just the last 2
weeks. My neurologist has increased my
seizure med. And i've also started the
ketogenic diet. Suprisingly, the diet
absolutely bites, but it does decrease
seizure activity. I have had one, but it
was not nearly as severe as usual.
I don't have many people that I can talk
to about this, because, well if you
haven't been there it's very hard to
explain. I don't know anyone personally
with epilepsy and living where I live, we
don't even have a freaking support group.
I'm seriously thinking of starting one on
my own.
That may be the only way I ever meet
anyone that I can talk to.
A lil about me...I'm 30, single, have 3
cats, (maybe that's why i'm single) ha ha!
I'm an artist. I've been painting for as
long as I can remember which is funny
because in lots of research that i've done
on tle, it has said that most people with
it are very artistic and tend to like
bright colors. You should see my house.
It's full of color. I swear, i'd have all
pink appliances if I could find them!
Hmmm! In my spare time, I read a lot! I
write like 100 pages in my journal every
day. I hang out in book stores and drink
coffee instead of bars and I do volunteer
work for a local animal shelter. Oh, and
i've just recently started working out
like crazy and practicing yoga daily.
Yoga really helps if you can get into it.
I'm just here trying to meet new people
that might understand what it's like to
live with this. I would just love to
compare stories both funny and scary. Who
knows, maybe I might make a friend or 2
while i'm here. So tell me, what color is
your couch? Red, here!
|
mty
New User, Becoming EHEALTHy
Joined: 06 Aug 2006 Posts: 3 Location: mississippi
Posted: 08-08-06 10:48am
Hi there!
Yes, I have talked with my doctors about
the diet. My neurologist suggested it.
You are right, it can be dangerous. I'm
having my blood and urine tested weekly
until my body is used to the diet. The
diet that I am following is very close to
the atkins diet. Actually, it's a bit
too close for me, but if it can help I
guess I can learn to eat more meat and
less fruit, yuck! I do like that for the
last few days I have been drinking up to a
gallon of water and really cutting back on
the diet sodas. My body just feels
better and suprisingly, I haven't had any
headaches. Yet!... The only problem
that my doctors are concerned with as of
now is that I started this diet at 96lbs
and it took me a year of weight gaining
meds and eating like a maniac to gain the
weight. I weighed 78-80 forever. I
just could not gain weight. Anyway, i've
lost 6lbs since starting this diet. I
feel like I can't win no matter what I do.
It's like, if you go on a "special"
diet, it could help seizures, (hooray!)
but you could end up looking like a sick
little sack of bones in the process.?
Oh! Cwe, I just wanted to thank you for
the link so "thanks". Very cool! I know
that it will come to be very useful.
