Hello everyone!
I know that there are already a few threads which discuss tle. I didn't want you to think that I was just coming in here and starting my own thing. I'm just very interested in talking with others that have been diagnosed with this. I find it to be both interesting and disturbing at the same time.
I've been suffering from grand maul seizures for about 3 yrs now and was just recently diagnosed with tle. I was kind of happy when I got the diagnosis and did some research on it because for the last 6 months, I thought that I was going crazy and was definitely headed for a mental institution. I was having some sort of "episode" every day until just the last 2 weeks. My neurologist has increased my seizure med. And i've also started the ketogenic diet. Suprisingly, the diet absolutely bites, but it does decrease seizure activity. I have had one, but it was not nearly as severe as usual.
I don't have many people that I can talk to about this, because, well if you haven't been there it's very hard to explain. I don't know anyone personally with epilepsy and living where I live, we don't even have a freaking support group. I'm seriously thinking of starting one on my own.
That may be the only way I ever meet anyone that I can talk to.
A lil about me...I'm 30, single, have 3 cats, (maybe that's why i'm single) ha ha! I'm an artist. I've been painting for as long as I can remember which is funny because in lots of research that i've done on tle, it has said that most people with it are very artistic and tend to like bright colors. You should see my house. It's full of color. I swear, i'd have all pink appliances if I could find them! Hmmm! In my spare time, I read a lot! I write like 100 pages in my journal every day. I hang out in book stores and drink coffee instead of bars and I do volunteer work for a local animal shelter. Oh, and i've just recently started working out like crazy and practicing yoga daily. Yoga really helps if you can get into it.
I'm just here trying to meet new people that might understand what it's like to live with this. I would just love to compare stories both funny and scary. Who knows, maybe I might make a friend or 2 while i'm here. So tell me, what color is your couch? Red, here!