I am a 40 yr old female. Hx s/p hysterectomy salpingoopherectomy bilateral in feb 06. Easter am woke with difficulty speaking this happened the next day also. Then teus. Woke to no speech diff. But was off balance. Went to Dr. Then started having leg and arm spasms by the time I got home. Went to er had cat scan and bloodwork. Negative exams. Given klonipan.

Over the last 3 months I have had mri's eegs bloodwork and have been going to pt. I have seen my neurologist and a neuro spec. In boston for movement disabilities. All tests have been negative. Noone had ever seen unilateral spasms rt side and speech diff. They first thought medicine related then thought anxiety.Those have been ruled out. The next suggestion is maybe a virus in my nervous system. The longest I have gone without symptoms is 2 days in a row. I have not had a lum. Punctue yet. But that is the next on the agenda. My primary wants me to go see another neuro and start over. I go to pt 3 times a week for 1 hr sessions. They are using neurofascial on me. I feel that it has decreased the number of severe episodes that I have.

The problem is noone seems to know what to do with me. I have not been able to work since this has occured due it coming on so suddenly and not knowing how long or severe the symptoms will be.

I desperately need to know if anyone else has ever heard of this happening to someone else. Ans if thereare other test to be running. I use a cane most days sometimes a walker and severe times a wheelchair. That is when it gets so bad on the right it starts spreading to the left side.

Any suggestions are welcome
sorry this is so long but it isn't even the half of it.

Thank you for your time
kim :lol:

ps before this I was a very active healthy person 2 years ago I did a marathon in arizona

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