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Sacroilitis - Is This Completely Treatable ? (Page 1)

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Does anyone know if sacroilitis is common for a 24 yr old woman.
What kind of doctor does the person need to go for a good treatment ?
Is this treatable ? My wife had a whole body bone scan and the scan results indicated a case of sacroilitis.
Thanks.
Any input would be appreciated
kk
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First Helper QIZ
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replied July 21st, 2006
Experienced User
Inflammation is every body's natural reaction to try to heal what has been damaged.

Sacroilitis is because of ligament damage. And that damage is better known as sacroiliac joint sprain, sacroiliac joint dysfunction, sacroiliac joint dislocation/subluxation,...

And because that subluxation is not well seen on x-rays or other pictures, and because medical doctors don't even believe it exists, they don't understand where it comes from!!!

Try to find a pt (or osteopath/chiro) who understands what sijd is. But the biggest problem is that many of them say they understand it fully, but they don't! Only like 10% of pts say they understand it. And from that only 2% really knows what it is all about...
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replied August 9th, 2006
Expatient is right about this one. You need to go see and osteopathic doctor first and get yourself sent to the right therapy clinic. This is a specialized area of treatment and not every therapist knows how to manage it. The osteopath will surely have a recommendation on the right clinic to go to and perhaps will fix it himself/herself as they are often quite skilled in realignment themselves. I am not sure where you live, but I might be able to refer you to a good clinic in the northeast.
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replied September 6th, 2006
Sacral Iliac Joint
I am 49 and have had this since I was in my 20's. I finally found out what was wrong with me after I began work at an osteopathic hospital. In some people the joint goes out of place and sticks. Its not serious but it does cause alot of agony. The longer it is out of place the more the joint becomes inflammed. The best treatment is finding a chiropractor that is good at putting it back into place or an osteopathic Dr. I did the initial course of treatment with a chiropractor. Three times a week times 4 weeks then 2 times a week and so forth. I now go only when the joint goes out of place and stays out of place for longer than a week or 2. Most times it goes back into place itself but I can never duplicate the move myself when I need to. A physical therapist showed me a few things I could do to try and put it back into place myself. They are resistive excersizes. Pushing and pulling my knee against my husbands hands while lying on my back with my legs bent . Then pushing my thighs together then out against his arms that create the resistance. Taking some type of anti inflammatory helps too, along with hot baths.
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replied January 26th, 2009
sacroilitis
i am adoctor and suffering from lt sacroilitis rt side started it has made my life miserable iused to be so active now at times icant move one inch even cant take side in bed no walks i am hypothyroid from last 21yrs adoc in delhi gave me two injections in epidural foramena after which ihad so many problems bcoz of high doses of steroids can anyone help can some trial with stem cells can help
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replied January 27th, 2009
Active User, very eHealthy
I reckon as well as some kind of sacroiliac joint dysfunction and or an alignment problem being the cause of your wifes problem its also possible that your wife suffers from some kind of rheumatological condition like ankylosing spondylitis these types of conditions have recently become much easier to treat due to the use of new drugs i copied and pasted this.


Sacroiliitis is an inflammation of one or both of the sacroiliac joints, which connect your lower spine and pelvis. With sacroiliitis, even the slightest movements of your spine can be extremely uncomfortable or even painful for you.


Sacroiliitis can be difficult to diagnose, and it may be mistaken for other causes of low back pain, including sciatica, herniated disks and strained muscles. Sacroiliitis may be associated with a group of diseases called spondyloarthropathies, which cause inflammatory arthritis of the spine.




Treatment for sacroiliitis may involve a combination of you resting, receiving physical therapy and taking medications.


and this.




The inflammatory arthritides included in the category of spondyloarthropathy (ankylosing spondylitis, psoriatic arthritis, reactive arthritis, undifferentiated spondyloarthropathy, and arthritis associated with inflammatory bowel disease) may cause significant, progressive morbidity. Therapy with nonsteroidal antiinflammatory drugs and traditionally used disease-modifying antirheumatic drugs, such as methotrexate, often fails in patients with more severe peripheral arthropathy and axial involvement, and alternative treatment options have been limited. With increased understanding of the pathologic processes involved in these disorders, new therapeutics have arisen and are being investigated in the various subtypes of spondyloarthropathy. This article reviews recent progress in disease-modifying therapy for spondyloarthropathy, including new biologic response modifiers, such as the tumor necrosis factor- inhibitors etanercept and infliximab.

Introduction
The spondyloarthropathies are a group of rheumatic disorders distinct from rheumatoid arthritis that involve chronic inflammation of joints, with or without extraarticular features. Included are the clinical syndromes of ankylosing spondylitis (the prototypic disorder), psoriatic arthritis, reactive arthritis, undifferentiated spondyloarthropathy, and arthritis associated with chronic inflammatory bowel disease. Because of the overlapping clinical features of these disorders, clinical presentation often determines treatment strategy.

sorry its so technical i cant find anything that is more straight forward at the moment.
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replied March 17th, 2009
Help
I am 29yr old female and have been diagnosed with grade 2 sacro-ilitis.. It is making my life unbearable. I have constant pain in my lower back, gluts and significant pain down my right leg. After scans and xrays they finally came up with this diagnoses Chiropractors bring some relief for short periods of time, as does physiotherapy, acupuncture and ultrasound. I am on courses of pain killers anti inflammatories, steroid anti inflammatories. I try and sleep certain wys with pillows postitioned between my knees or with my legs propped up. I use a heat pack on my back and leg. I Have also tried ice packs. I take natural remedies for joint inflammation. I have been to a number of oesteopaths, physios and chiros.... I have put on almost 20 kilos in 5 months because i have gone from being very active in a physical job, to constantly being on light duties. My pain subsides occasionally on some mornings but returns once I have been on my feet for a while. Sitting down for too long causes pain. I dont have anyway that is taking me seriously. This pain is constant and I am desperate for help and/or advice. As you can see i will try anything as this is destroying my life at the moment.
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replied March 17th, 2009
Active User, very eHealthy
Hi aussie29f have you been to see a rheumatologist sacroiliitis can often be an early sign of a family of rheumatological conditions commonly known as spondyloarthropathy one that is particularly nasty is ankylosing spondylitis but the good news is they have recently discovered an effective treatment for this a type of drug called TNF blockers that are used for the treatment of cancer if you have not already i would seek specialist treatment from a rheumatologist also it may be a good idea to read up about these things on the net
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replied March 19th, 2009
Yoga does miracles
I was diganosed with sacroilitis and AS a couple of years ago. I have had issues for a while but there were days I could barely sleep 2 hours and could hardly walk. My hips were almost totally locked up, but I started doing a beginners yoga tape and it did miracles! As long as I do yoga 3 times + a week and take a little Naproxen, I have no pain and complete mobility. Yoga can save you thousands of dollars in prescription pills and chiropractor visits.
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replied April 27th, 2009
YOGA?
I have both the diseases sacroilitis and coccydnia which means pain and sweeling in hips and coccyx bones iam taking a lot of Naproxen and heating.It is really working but imust say that within 3 months i've recovered only 50 %.If u say yoga tell me which exercise and also gimme links so i can see the pictures and videos of yoga.
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replied April 28th, 2009
Yoga Zone
I have never been a big fan of classes and I was VERY unflexible at the start. My sister actually gave me the intro video several years ago, its great because they describe step by step and show alternates for people who are very inflexible. Nothing crazy, just basic stretches. After just the first couple of times, I noticed a difference and Naproxen afterwards can keep inflammation down. I hope this helps!
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replied July 29th, 2009
scalr ilitis
scalar ilitis- Im 50- female- working- computer job-body pain- MRI scan review- scalar ilitis with lumbar spondilitis.Was RA +ve.- Now -ve. Can that happen? Will medication cure the disease or continued medication required?
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replied August 25th, 2009
Sacroilitis Is there any help?
My husband was diagnose with sacrolitis by the disabiltily doctor. My husband is always in pain it has change our lives. There is no more motorcycle no more walks no more camping. There are nights that he is up every hour . we have try everything. Now my husband has been unable to work since last June and The disability dr. stated that he couldnt stand sit or walk without breaks and that he could only work 4 to 6 hours in day with mutiple breaks but who going to hire him He was over the road truck driver he cant handle riding. So any suggestion would be greatly
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replied April 30th, 2010
I am a doctor and suffering from sacroilitis with slip disc ofL5S1 from last 3yrs.no medicin works.personally i think if any thing can help in moving is your will power and meditation.infact its meditation which increases ur will power,then only u can move,otherwise even slight mov is not possible.any news of any recent research on it by anyone will be highly appreciated
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replied April 30th, 2010
Extremely eHealthy
i have sent a message to you.....
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replied November 17th, 2011
I hate my new life
Hi, Im a girl of 21 years old from Spain. I was never in hospital because I was a girl 100% healthy. The problem began when I have 20 years old, in summer of 2010. I did swimming in a very cold river and each day that happens, I was worst than before. My pain is in the left ass, and I am a lot of days visiting medics, who dont explain me what is that I have. I am with this problem 1 year and 4months ago. First, they said that I had 'ciatica, lumbalgia, protusin, hernia de disco, sindrome piramidal (piriforme)' or that Im crazy. A week ago, they said that I have a hernia discal (L4-L5) and sacroilitis. They said too that could be treated at a 'reumatlogo'. I 'eat or drink' a lot of medicines like: enantyum, zaldiar, myolastan, lyrica... And I had rehabilitation (ultrasonidos,hot,fisioterapia,acupuntura, pilates...). Nothing is correct and nothing cures me... Now I heard very bad with an ear because of the Lyrica medicin. I cant do anything in my life... I will never have a youngest. I will never go to a party with my friends, and I cant support this... I cant walk or stay not sitting for most than 30 minutes. The only thing than do that I was better is repose. When I stay in a sofa I was well, but I cant put my body in hard solid sites. I walk everyday slowly among 20minutes and I dont do things that could be unhealthy for my body. I wish you very luck for all people that are desesperate with this... And sorry for my english.
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replied March 17th, 2012
Multiple asses
You have two asses? If the pain is just in your left ass have it removed, problem solved.
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replied February 17th, 2013
Can relate to aussie29f experience. As well as pain the biggest challenge with this condition is the total change of life. Same as many other people i too was very active and am struggling with inactivity and extra weight. Don't know myself anymore.
I'm 33 and was considering trying for a baby. Altreadt high risk due to age & hypothyroid disease, have read pregnancy can make sacroilitis worse. No point having a child if i can't move. I see alot of other younger women with this condition. What are your thoughts? Have you had a baby?
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replied February 20th, 2013
I am 30m who is now typing in a reclined chair. I am in pain everyday and have barley worked for 2 years. My rheumy diagnosed me after 1 year with spondyloarthropathy. possibly reactive arthritis. I have it throughout my body inluding stomache but mainly my spine which stopped me from working because of sacroillitis. It is calmed down since the first stages with nsaids, accupunture, chinese herbal medicine. I basically tried everything and I can now lift weights(in pain), skip, swim etc. But I still cannot sit in a prolonged position at a computer to work. My job requires me to do this and no body understands. A lot of people think I am faking now cause I look so normal. I am going insane that it mainly attacks me when I am sleeping or sitting or standing still. If I walk for too long it will go into my knee or groin. Couple of things I noticed is that when I don't sleep it can get worse or if I drink. I exercise and eat healthy everyday but it does not cure it just makes me feel better. I can feel normal at times then suddenly get a lot of pain. It is the most unpredictable condition and I cannot work unless I work for myself which I do now starting my business but I struggle for money. It has ruined a lot of my life but I had to create a new one. I can only pray for a cure as I studied and received High destinctions at university. I am a clever guy and I cannot find a definite cure because there is none. If doctors have to live with this condition it proves that we need to learn to live with it best we can. You can only try your best to cure yourself and keep it under control. try to live with the pain as best you can, It is best to keep moving as much you can otherwise it gets worse in my case. good luck people and hope they find a definite cure for this crippling condition. wish more people understood it because sometimes I feel so alone with this condition. I will check back to see if anyone finds some cure but they might put me on disease modifying drugs soon which I am scared of as I went crazy on nsaids. They affected my mind and made me angry/aggressive so be careful of medications. good luck everyone
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replied September 11th, 2013
Hi, you are not alone my friend. I am going through the exact same phase as you are. Maybe we can talk on it.
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replied March 31st, 2013
sacroiliitis
I have a hard time standing still and sleeping. Basically, I live horizontally and get up every 10-15 minutes to make a little walk. Even when lying down, I have to change position every 3 to 5 minutes. Sleeping is a nightmare, in spite of Imovane and muscle relaxants. I wake up every two hours and have to go for a walk and sometime, a hot shower. Since the beginning, Ive been on Naproxen, Fentanyl and morphine (Dilaudid). Since I had a herniated disc, I had a discectomy and a laminectomy but that didnt change much, I still cant sit! This has ruined my life. Every day feels like a sentence. I wake up in pain and know Im going to go through torture for the rest of the day. I wouldnt wish it on anybody. I have done PT none stop, seen an osteopath and a chiropractor, tried acupuncture, done yoga, only to get brief moments of partial relief.

I have not been able to get a diagnosis yet but its now been 29 months that Im off work and totally unable to sit. My blood work keeps on showing high level of white cells and I keep getting episodes of pain in my eyes, nausea and extreme fatigue. It basically feels like I have a bad flu once every 3 to 4 weeks and it last around 24 hours. I feel like Im about to run out of courage and abandon on life.
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replied December 1st, 2014
I was wondering if you ever found any relief from your pain? I can sympathize with you I call my pain HELLFIRE and I feel it is sometimes eating me alive! for nausea I take garlic oil capsules that you can get at any pharmacy or grocery store. if that doesn't work I take prescription promethazine. I hope you are doing better! I try to use my kindle while lying flat on my back in bed the only position that helps me I wish someone would invent something for that
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replied January 8th, 2014
QIZ- Have you been tested for septic sacroililiitis? Are you spiking fevers with these high WBC's? DO NOT GIVE UP! I have been in SI pain for 2 years next month, despite physic, chiro and massage therapy the only relief I get is from time walking on the treadmill every day. I never miss a day despite the mental energy to overcome to pain and drain mentally of sustaining but I feel less pain and walk/bend(limited) more evenly for 5-7 hours while I work. I have had to modify my working duties- sit WAY less, stand up and stretch every 20 min if I am stuck at computer. Keep seeking sources of alternative therapy not medications (particularly opioids) they just mask the problem and come with a host of side effects that destroy optimism- stay natural some options:
serrapeptase 120,000u once daily (Enerex)- natural anti-inflammatory
Recovery extra strength (work up to max dose) Purica- Plant source glucosamine
Again, don't despair you have too much life ahead of you- keep walking the good walk!
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