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Q: Infant Cystic Hygroma
asked by: kellycornwall on January 16th, 2004
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Hi there everyone. I'm 15 weeks pregnant with my 2nd child and I just found out that my baby might have a hygroma on its neck.I have to see a specialist in feb and if it does have a hygroma on its neck then the baby has to have genetic testing. I'm really worried for my baby.Can anyone share a similar experience or similar problem and tell me what to expect??? Thanks so much in advance
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purple333
replied on January 21st, 2004
Extremely eHealthy
Due to my age (34 at the time & and 2 prior miscarriages I had a cvs test at about 9 weeks which showed that the baby(a boy) suffered from trisome 18; you usually abort before you even know you're pregnant due to the massive physical & mental deformities etc.

There are many who argue that if god gives you a child you must bring it in to this world & care for it - even if that means 24 hours 7 days a week for 50 years. But what would this do to any other children you have or may want to have? What would it do to you, emotionally, psychologically? Financially? Sexually (or do you stop being a couple in that regard)?

Tell me also if ypur child would have no "quality" of life , be a vegetable or similar is that the life he or she would want, is it the life you would want for your child & is it the life that god would have wanted for his child. For me the answer was simple no<>no<>n o!!!!!!

God teaches us right from wrong by not only his words but alsao by what we see & do & how we feel about those things. I wouls not want to live as a vegetable & I would put an animal out of its pain, so why do some people want to inflict torture on other human beings????

But you must go on-line to search endines (yahoo or google) & ask what is
?, what causes it?, can it be cured totally?, what are the chances of a healthy baby being the result? What are the long term affects of infant cystic hygroma?

The moer information you can get, the better equipped you are to ask the right questions & understand them!!!! Then you can decide what you believe yo be the right choice in your situation.

God bless you & your child
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ajay70
replied on November 19th, 2004
New User
Cystic Hygroma
To kellycornwall
a couple of things one don't wait till feb to see a specialists. Go as soon as possible. I am at the moment pregnant with my first child ever and found out at my first ultrasound that my baby had a hygroma on her neck. My doctors sent me to a specialists and gentic counsler within in two days. Reasons being one hygromas can sometimes indicat other things. (like that other lady said she found out her child had trisomy 18.) there are alot of differnet things that could happen trisomy 13 or 18 both of which if you do a little research will find the child niehter lives long nor do they have really any quality of life, others can be 21 which is down syndrome, or 45 which is turner's syndrome(this is what my child has, this is in girls' but I think there is something similar to it with a different name for boys) or it could just be a hygroma.
There are a few different things one depending on your personal views towards terminating a pregnancy, and also for self knowledge and preperation on what to do either way. I hope this doesn't come off negative or scare you. I just had no knowledge of these things until I had to do all my own research, so I hope it is helpful. If you think there might be something else you want to know, just let me know and I will tell ya what I know and or give you a good place to look. But good luck with everything. And best wishes for you and your baby.
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Cystic Hygroma Adult
replied on March 27th, 2008
New User
Cystic Hygroma
I am a 36 year old adult living a wonderful "normal" life with Cystic Hygroma. I have a career, I married and have 4 beautiful children despite my CH. I am so thankful my mom didn't receive a choice because I wouldn't be here writing this reply. There are other adults living life with this condition, I know because they are members of my online support group. This condition is NOT always fatal, there IS hope and termination is NOT your only option. For more information on the topic of the decision to terminate please go to my friendship page, group and blog at:

myspace page: http://profile.myspace.com/325172880

CH Group: http://groups.myspace.com/lmnetwork

As for purple333's comments these are clearly coming from someone who has no experience living with or raising someone with a disability. I speak from experience because I AM raising a son with VCFS. I am not going to pose argument as a pro-lifer simply as a parent experienced at raising a child with a disability. Not all conditions associated with CH mean 24/7 for 50 years. My mom raised me until I was 18 and for my son there are resources as he becomes an adult. What does his condition do for other children you have? Well, I have 3 other children and they have learned what most kids don't compassion. They have learned not to stare and make fun of people for their differences and in fact, my children befriend people with disabilities. They love their brother, embrace his differences and do not suffer emotionally, psychologically or financially because our family has balance. They have learned more about tollerance and respect from their brother than, they ever would have learned without him. I believe it has made them wonderful, caring and compassionate people. I am sure they would have been this despite but, they are even more because of. Clearly with 4 children having a disabled child has not harmed our sex life. If anything it has brought our hearts closer, made our love stronger and enhanced our intimate moments. It's ignorant to think you "stop being a couple". The fact is you become a better couple. I have learned more about myself and human beings in general because of my son. Our family is close and strong because of our son. I would not trade this experience for anything in the world. Please go to my support group you will receive well balanced information there that will help you make the decision that is right for you.
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hopefilledmom
replied on June 10th, 2009
New User
HOPE for cystic hygromas
Having gone through the experience 3yrs ago of having a baby in utero with a cystic hygroma measuring 11mm, I feel compelled to spread HOPE to all who share a similar experience. Please know that there is always hope. My son's cystic hygroma disappeared before my 7th month of pregnancy and today he is a very healthy and active 2 1/2 yr old boy! Praise God!
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