I am a 36 year old adult living a wonderful "normal" life with Cystic Hygroma. I have a career, I married and have 4 beautiful children despite my CH. I am so thankful my mom didn't receive a choice because I wouldn't be here writing this reply. There are other adults living life with this condition, I know because they are members of my online support group. This condition is NOT always fatal, there IS hope and termination is NOT your only option. For more information on the topic of the decision to terminate please go to my friendship page, group and blog at:
myspace page:
http://profile.myspace.com/325172880
CH Group:
http://groups.myspace.com/lmnetwork
As for purple333's comments these are clearly coming from someone who has no experience living with or raising someone with a disability. I speak from experience because I AM raising a son with VCFS. I am not going to pose argument as a pro-lifer simply as a parent experienced at raising a child with a disability. Not all conditions associated with CH mean 24/7 for 50 years. My mom raised me until I was 18 and for my son there are resources as he becomes an adult. What does his condition do for other children you have? Well, I have 3 other children and they have learned what most kids don't compassion. They have learned not to stare and make fun of people for their differences and in fact, my children befriend people with disabilities. They love their brother, embrace his differences and do not suffer emotionally, psychologically or financially because our family has balance. They have learned more about tollerance and respect from their brother than, they ever would have learned without him. I believe it has made them wonderful, caring and compassionate people. I am sure they would have been this despite but, they are even more because of. Clearly with 4 children having a disabled child has not harmed our sex life. If anything it has brought our hearts closer, made our love stronger and enhanced our intimate moments. It's ignorant to think you "stop being a couple". The fact is you become a better couple. I have learned more about myself and human beings in general because of my son. Our family is close and strong because of our son. I would not trade this experience for anything in the world. Please go to my support group you will receive well balanced information there that will help you make the decision that is right for you.