Joined: 28 Jun 2006 Posts: 1 Location: South Carolina
diagnosed with scoliosis Posted: 06-28-06 13:24pm
I am a 23 year old female. I have had
back pain since I was about 12 years old,
when I was diagnosed with scoliosis. I
recently moved to a new city and
designated a new primary care physician.
I have been in so much pain in the last
two year... Every night I used ice and
heating pads, I have changed my bedding 4
different times until I found something
that was comfortable, and I developed and
ulcer due to all the exedrin (the only
over-the-count that has worked). He
refered me to an orthopedic surgeon, who
diagnosed me with type 1 spondylilothesis,
a degenerated disc, and scoliosis. He
told me that I was not a candidate for
surgery because each condition is mild,
and sent me to physical therapy. The pt
didn't help much (did help with muscle
spasms due to strengthening) but does not
help with area where bones are rubbing
together!! Before my diagnosis, my doctor
tried celebrex, arthrotec, and flexeril,
only the flexeril gave me any kind of
relief (enough to function at work).
After I was diagnosed, he refused to try
anything else besides pt. Told me this is
something I would have to deal with for
the rest of my life! I am not sure of
what kind of specialist to see. My mother
(who I inherited spondylilothesis from)
recommended a pain management doctor, like
she goes to. All of my conditions are
minor by themselves, but the combination
is crippling!! I have used all of my sick
time (i never used to call in sick), can't
sleep at night, and can't do laundry or
any chore requiring lifting... I am too
young to be this miserable....
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Tamadrummer
Active User, Really EHEALTHy
Joined: 15 Oct 2004 Posts: 710 Location: Zephyrhills,Fl
Posted: 06-28-06 21:55pm
Your mom is correct. You need to see a
pain management specialist! You have been
violated by the doctor that told you to
learn to deal with pain. Pain is a very
real illness and there are many valid and
useful medicines on the market to help you
learn to cope with pain but pain that is
treated not allowed to go unmasked in your
life.
It is a very sad day when a medical doctor
refuses to treat a patient with serious
health issues and pain!
If you can get a referal to see a pain
doc, and also an orthopedic spine surgeon,
you may actually see your life become
livable again.
I am terribly sorry that this is how you
have been treated!
Brian
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expatient
Experienced User , Rather EHEALTHy
Joined: 24 Nov 2005 Posts: 127 Location: Finland
Posted: 07-15-06 15:02pm
Try to find someone who knows what sijd
is...
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Posted: 07-15-06 17:17pm
Don't foget, you always have a right to a
second opinion plus and if you can find a
good primary care physician, he can refer
you to more. I have had several surgeries
and I am kind of against them as I was
told by one that the more you have, the
more arthritis you have down the line and
scar tissue plus with you being young, you
are probably still growing. The only
thing that I do not like about pain meds
is that it does mask the pain allowing you
to put more pressure on the area, making
it worse later, plus wasn't celbrex taken
off of the market due to other health
problems.
I know that the dr's cannot do much for me
now as I am a lot older than you are and I
am in paain 24/7, if I had good insurance
and some money I think I would go for a
pain pump now.
I do hope the dr's can do something with
you! Have you tried accupuncture or
bio-feedback or water therapy? I am no dr
but I thought that I would ask.
My thoughts and prayers are with you!
Please, keep us posted on what you find
out!
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expatient
Experienced User , Rather EHEALTHy
Joined: 24 Nov 2005 Posts: 127 Location: Finland
Posted: 07-16-06 03:20am
For me it took 15 years and I saw over 20
medical experts (+many x-rays, mris, blood
and pee test,...) until I found first one
who understood about human pelvis and
sacroiliac joint functionality.
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kazzii
New User, Becoming EHEALTHy
Joined: 14 Aug 2006 Posts: 1 Location: Wales
Re: So Young, And In So Much Pain... Posted: 08-14-06 09:18am
Just wanted to sympathise with you...I'm
only 20 years old, about to start my
second year at university. I have
schuermann's (sp?) disease, herniated
thoracic disc, mild scoliosis and a
rotated pelvis, problems since I too was
12, but only diagnosed when I was 18.
None of these are severe enough to have
anything done to them by themselves, but
added together I am constant pain. When
I saw my registrar last and I asked him
what to do, he said it was just pain, so
cope with it. I then contacted his
supervisor (the consultant) and she at
least sorted out my medication and gave
the registrar a bit of a talking to,
although nothing can be done apart from
medication (although I am going to try
acupuncture). Problem is, the
anti-inflammatories have wrecked my
digestive system, so i'm now on another
waiting list to see a gastro-enterologist
and am without any anti-inflammatories at
all, aie!
I am trying to get onto a pain management
course, where they teach you how to manage
your pain, appropriately! They teach
things like how to sit down and get up,
and how to get in and out of bed to
minimise the pain, basically coping
strategies, they work on the emotional
side of it too. My friend has a
completely wrecked back and pelvis from a
car accident, and it's improved her
quality of life remarkably.
The point i'm trying to say is that I
understand about having several things
wrong and everyone saying that they're not
very bad and there's nothing worth
treating, all the while being in sometimes
vomit-inducing pain...The thing to do is
to take control and force the doctor to
understand, it's your pain and so they
can't tell you that it's not that bad
because if they had pain like that they
probably wouldn't be able to be a
doctor!
