I've had/am having very similar experiences. I got mono in january, 2004. It took a few months for the doctor to figure it out. I am now under the care of an endocrinologist, who says that sometimes symptoms/effects never go away or take many years to go away--it varies person to person.

You should strongly consider seeing an endocrinologist, if you have not already.
Message me back so I know if you have received this.

Alison

I had mono in the fall of 1998. I know exactly what you are talking about with the hurting in your bones. I still remember that after all these years. I wouldn't have any energy, sore throats, etc. I would go to the doctor and they would give me a Z-pack that would make me feel better for another month. Each time I went they did the throat swab for mono and it would come back negative. This went on for 6 months. When I came home for Christmas break that year I went to my regular family sick again. This time she took 6 vials of blood and found out I had mono, said that I had probably had it since about June of that year. After this I finally got better to where I was sick all the time. Growing up I didn't get sick that much; since I had the mono I get sick all the time. The lymph nodes in my neck swell up at the least littlest thing. I catch every thing that is going around. Stress also bothers my body a lot more now. I have developed Crohn's, hypothyrodism, and asthma now as well. When I go to the doctor's with something it is hard for them to figure out what is going on. I jokingly say that I am a medical mystery but I personally believe that it is all related to the mono. My immune system is basically destroyed from the mono. I feel like if the doctor's would've been able to catch it earlier on that it wouldn't be so bad on me today. Also, I have now developed an allergy to the Z-pack and can no longer take it. I guess the doctor's overloaded my system with it back then. I still don't have as much energy as I think a 27 yr. old should. I have always wondered if there was others out there that were having the same long-lasting effects from the mono as me.

I feel the exact same way as the above post. I had mono in March 2003. It took the doctors weeks to figure out what was wrong with me. Ever since then, my immune system has been incredibly weak. I catch EVERYTHING, my lymph nodes swell...and I never feel 100% rested. I long to wake up and go through a day feeling completely awake and well rested. Will this ever go away?? It has been 6 years!

Have u all tried homeopathic treatment? My wife found out 2 months ago and same thing it took conventional doctors some time to figure it out, it was actually my wife that suggested she do the glandular fever blood test... they said since its a virus they can't do much... but she's now doing a homeopapthic treatment to boost her immune system and fight the virus... she still gets tired but she must learn to take care of herself better... when she gets slightly better she immediately does too much and gets tired again... also consider reading the book You can Heal your Life by Louise Hay.

im 14 (almost 15) and i was diagnosed with mono a couple of weeks ago and it mostly went away but just recently (i think because my immune system is down) i have gotten some type of cold and some of the symtoms are back but mostly fatuige. I know what u mean by the feeling of your bones aching and just being touched hurts or feels uncomfortable. For me, i just took it easy, took everything that i could to stop the symtoms or slow them. One more thing, ever since i got mono, i lost my hunger in a way and got headaches every day after 1st period and i couldnt realy do anything about it untill school ended, i hope u get well soon. unless your better (its been three years).

My daughter recovered from her 8 months mono by taking a new anti-viral supplement called Gene-Eden.
it helped her with her fatigue and pain symptoms, she is like a new person today.
Good luck

Oh my gosh! I thought I was the only one! I feel the same way. I had mono twice: once when I was 13 (no, it wasn't from kissing), and once when I was 20 (still don't know how I got that). The first time was very different from the second. The first time, I was very ill, to the point where I was delirious and don't actually remember most of the experience. I was vomiting several times a day and couldn't move. The doctor diagnosed me and said there was not much i could do. I went to a chiropractor, who did work on my neck (took the 'crickets' out- I was a kid so she made it less scary saying that). Anyway, after that I felt better! I really did- she basically cured me- very strange but true. The second time around was different- I had more of the fatigue, swollen lymph nodes, nausea, HEADACHES, body aches, all that fun stuff. I didn't know I had it until a couple of months into it. I took 2 monospot tests the first one came out negative, a few weeks later I had another one that came out positive. I was taking summer courses at NYU Tisch school- the only way I made it through was taking high doses of ritalin (which I've been on for add/adhd for a while). So I finally "recovered" from the mono, but 4 years later I am still experiencing symptoms. I feel like it just comes back from time to time- like some days I'm fine but other's it is debilitating and I have no energy and actually CANNOT do the things I want/ need to do. My headaches are frequent, I often feel nauseous, tired, dizzy, feverish....just 'not right'. It is very frustrating. I have been to many doctors; regular physicians, naturepaths, acupuncturists, and chiropractors. They help, but it isn't permanent. I am convinced there has to be some sort of recurring syndrome. I have not been the same since the mono. I developed food allergies (Celiac disease), I am allergic/ sensitive to everything. I get unexplained rashes, I generally find it very hard to function. I have developed acid reflux, stomach ulcers, I am kinda depressed, I can't keep weight on, basically lost my appetite. I also have brought up possible chronic fatigue with my doc(s) and they look at me like I have 3 heads. CFS is the closest thing I have found online that matches my symptoms. I guess I don't have an answer for you (3 years later), but you aren't alone. I think there is something to this idea of recurrent mono or mono-like symptoms, or even just lasting effects of mono that doctors ignore or aren't aware of or label as somatic (all in your head). All I know is my body has not been the same since.

My son tested postive for mono in the summer of 2007 about the first of July. It took doctors about two months to figure out what was wrong. He had nausea, low grade fever, headache and really tired. They kept telling me it was the flu. As a result it took months for him to recover as his liver and spleen enlarged.
Well, he is 13 now and for the last month he has been experiencing stomach pain and nausea off and on. I never really thought about the fact he may have mono again. I thought once you had mono that was it. We have no family doc so I guess it is off to the outpatients for us......this site was very helpful

Hi Everyone.I am a 22 year old female. I have been experiencing some symptoms off and on for the past few weeks that are making me think Mono possibly, but I had Mono when i was a lot younger(I don't remember much about it. Just that I went to the doctor because on swollen glands in neck and throat, and my neck was very sore and stiff. They didn't know what the problem was then, so I was hospitalized, with a diagnosis three days later of it being Mono)and I know that it is apparently very rare to develop Mono more than once, so I'm not sure if what I'm feeling is that or not(even though I have developed the same symptoms quite a few times growing up ever since I first had mono, so I may have had it a few times actually if it's true you can get the symptoms more than once). For the past few weeks, my glands in my throat, under arms, around ear, and especially in the back of my neck have been swelling and getting a little sore off and on, but they go down for a while, then maybe like the next day or 2 days later, they swell back up again for a day or so. Just today, I noticed that the left side of the back of my neck is hard and a little swollen, and then my ears have been aching a little all day(they have been off an on for a few weeks too) and my whole neck is sore now and feels hard a somewhat swollen. I have also been experiencing cold-like symptoms for the past 3-4 weeks, but it never develops into a full cold, just really stuffy nose, off and on sore throat and flemm in my throat at times(feels like I have a head cold). The past couple of days I have felt really tired and out of it sort of too, but not so bad that I'm in bed all day or anything, just feel like I have to close my eyes and rest a little a lot of the time and my eyes are pretty heavy and tired feeling most of the time right now. I have also felt tiny twinges of pain in my lower abdominals at times too. I am hoping this is just a virus or my body fighting off an infection and not something like cancer maybe, that has been worrying me because I have also had a bump under the skin(not noticable unless felt for) at the back of my neck on the right side under the hairline for like 4 or 5 years now right where I think the lymph node is and it has always caused me discomfort and some sharp pains up into my head but I(and others) always just waved it away as stress or muscle tension or bad posture, but of course it is worse now that I am experiencing these other sypmtoms too and it's somewhat swollen around that area now. But my worry is that it is like lymphoma or something that's just beginning to spread or something, so I am hoping that my symptoms are closer to something like having Mono again instead of that. Anyone have any insight or ideas?
Sorry, I know this was really long, it's just been worrying me a lot lately and my fiance and I don't have enough money for tests if they happen to cost anything to have them done here in Alberta. I don't know how it all works. Any help here would be very much appreciated. Thank you!