This is my first time here, I was
wondering if any knew if some one could
have ms but it not show up in the tests
like the mri and spinal tap. I have been
having some symptoms that could go along
with ms but the nuerologists did those
tests and said that every thing looks
good. Is it possible for someone to be
just starting the symptoms but not yet
show up on the tests. All of my symptoms
really do worry me, but doctor says the
only thing he found so far is arthritis in
the neck, but that would not be the cause
of my symptoms. I really do not know what
to do now. Almost beginnig to wonder if
this all in my head or not.
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san54
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003 Posts: 227 Location: Virginia
Posted: 01-15-04 19:45pm
There are so many autoimmune diseases that
mimic ms. And an mri is not always
conclusive. There is a new blood test
that doctors can do to diagnos ms. But I
don't think many doctors know of it. Go
to aarda.Org and you can get info on it.
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Lynda
New User, Becoming EHEALTHy
Joined: 18 Dec 2003 Posts: 19 Location: Australia
Symptoms? Posted: 02-08-04 08:05am
Hey,
just wondering what kind of symptoms u
have? I have also been experiencing some
symptoms & have had ms in the family.
I went to a neuro- he doesnt think I have
ms but is still sending me for an mri to
make sure I dont have it. Good luck in
finding out what u have!
Keep smiling
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litekpr2
New User, Becoming EHEALTHy
Joined: 20 Feb 2004 Posts: 23 Location: USA
Posted: 02-20-04 02:25am
Ms is such a mysterious disease and has so
many turns and twists that each case is
viewed on its own merits. In other
words, what marks one person's diagnosis
of ms can be completely missing in another
person. While it is true that the
primary tests can come back as negative
and the person will still eventually be
diagnosed with ms, that is not always the
case. Are you taking any meds to relieve
any symptoms you are having? Sometimes
that's the best treatment - treat the
symptoms as they occur, and continue to
have periodic testing if the symptoms keep
presenting problems.
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shortychim84
New User, Becoming EHEALTHy
Joined: 27 Jun 2004 Posts: 2 Location: FL
Ms And Strokes Posted: 06-27-04 13:05pm
I am 25 and I had a stroke almost 2 months
ago. A doctor had mentioned ms to me but
then no further discussion took place with
me after I was hospitalized, because of a
severe headache and lost of vision. I am
now 100% blind in both left sides of my
eyes. After the mri came back showing I
had a stroke I was scared there was
something wrong with me other then a
stroke. Can strokes be caused by ms and
or can ms cause strokes?? Please someone
give me some advice because I am suffering
from alot of the syptoms of ms. I have
sharp shooting pain in my muscles and have
tremors that I can not control at times I
also am tired all the time. I am afraid I
have been mis dianoised. Can someone give
me some advice on what to do next? I also
noticed my short term memory is not the
same, I forget little things like when I
am in the shower I cant remember if I
already washed my hair things like that I
forget. Thank you to anyone who responds
to this message
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litekpr2
New User, Becoming EHEALTHy
Joined: 20 Feb 2004 Posts: 23 Location: USA
Ms Related to Strokes? Posted: 06-28-04 23:40pm
I have researched and studied ms
extensively since I was diagnosed with it
in june 1998. All my readings show
absolutely no connection between the two.
Ms does not cause strokes; the damage
that is incurred in a person with ms
concerns their nerve (neural) pathways.
The insulation around the nerve pathways
gets attacked by "something" which causes
scar tissue to build up in that attacked
spot (sclerosis means "scarring"),
blocking messages from the brain that
would ordinarily go down that nerve
pathway. In turn, the lack of whatever
the brain's message was may cause
something bad to happen to the body.
For example, if the hand is reaching
toward an open flame, with the assistance
of the nerve pathways, a feeling of heat
is recognized by the brain. In return,
the brain sends out the message by means
of the same or a different nerve pathway
to withdraw the hand because an injury is
imminent. If that message is blocked
because of scar tissue short-circuiting
the warning, the person could end up with
a nasty burn.
Ms does not affect the vascular system,
unless it is in an indirect way as with
the hand in the above example. Strokes
are caused primarily because of blood
clots in the blood vessels in the brain.
When the blood clots, there is no blood
flowing past that spot and that means
oxygen is not getting carried to the
"heart" of the brain where it is needed to
carry out normal brain function (including
vision, movement of limbs, speech, and so
much more). The amount of the damage the
stroke causes is dependent upon where in
the brain the blood clot occurred;
different body functions are controlled by
different areas of the brain.
25 is extremely young to suffer a stroke.
Has your doctor found a specific cause
for it? Why specifically are you scared
that you have something wrong besides the
stroke? Since you have already had the
primary test (the mri) that usually rules
out or confirms ms, has a neurologist read
the mri? It is possible to have ms
without anything showing up on the mri
yet. Another test is usually performed
if a diagnosis of ms is suspected. It's
called a spinal tap (or "lumbar puncture")
wherein a sample of the fluid in your
spinal column is tested for certain
antibodies and other data. The spinal tap
can be negative also and you can still
have ms. In my case, my mri showed
"lesions" on my brain (which corresponds
to attacks upon my nerve pathways, but it
does not tell which ones) but my spinal
tap was negative for ms. Yet I was
diagnosed using my symptoms and the
positive mri.
What kind of doctor have you dealt with
already? If it was a neurologist, i'd
suggest talking to him specifically about
what the mri showed in relation to the
symptoms you are having now. If you
aren't satisfied by his answer or if he
just brushes you off, i'd certainly get a
copy of your mri and take it to a second
neurologist, preferably a ms specialist,
to get a second opinion. Ms is
notoriously hard to diagnose and can
sometimes take years to pin down, but
there is no reason you have to suffer the
way you are in the meantime. There are
medications to help out with your
symptoms, which a competent neurologist
would give some consideration to.
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Stacey 66
New User, Becoming EHEALTHy
Joined: 20 Nov 2007 Posts: 1
Help Posted: 11-20-07 16:19pm
I have a partner whom I believe to have
MS. Just recently unemployed there is no
insurance, of course. I am trying to get
testing done in order to maybe be able to
apply for some kind of disability. This
disease is very complicated. I have
become very in tune to seeing an onset of
a flare up. Unfortunately, if I don't
catch it just right and the flare up goes
full blown, before we have a chance to
talk about it a little, discussion becomes
a mute point. Angry and denial on my
partners part is a sure sign it is in full
flare up for me. Is this common for
others? if so how do spouses deal with
it? The person in full flare up that
stands in front of me is not the partner I
know. I don't even know what to say then.
Thanks
Stacey 66
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gasmam
New User, Becoming EHEALTHy
Joined: 18 Jun 2008 Posts: 1
MS and Anthrax Posted: 06-18-08 05:41am
if you've had either the anthrax or
smallpox vaccinations you may want to do
some more research about them. a week ago
i was convinced i had MS but they couldnt
find anything wrong w/ me. ive discovered
that the vaccinations can actually have
side effects that are often brushed off as
auto immune disorders. good luck
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jafar
New User, Becoming EHEALTHy
Joined: 19 Jun 2008 Posts: 1
MS and Anthrax Posted: 06-19-08 21:22pm
Hey Gasman what did you find on those
vaccinations? Because I have had them all
and this past 6 months I have been having
too many symptoms of something and just
recently I woke with a headache that
doesnt go away and blurred vision, the
Army docs are telling me that I am
stressed and probably always had poor
vision, but in 2 weeks I went from seeing
just fine to needing glasses, also have
grainy vision and little light colored
dots swimming around crazily in my eyes,
can only see them if I look at solid
colors, plus some days I am extremley
fatigued more than any normal workday.
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n2coal
New User, Becoming EHEALTHy
Joined: 11 Sep 2008 Posts: 1
MS Testing Posted: 09-11-08 15:31pm
I was diagnosed with MS about a week ago
and I am still trying to get my head
around the whole thing since it came as
quite a shock. This last test that I had
(a spinal tap) was actually my third test
for MS. Since I had already had an MRI and
that came back negative for MS and I had
some blood work that came back negative
for MS I thought it was pretty positive
that the symptoms I was experiencing were
caused by something else. My neurologist
was a little surprised that the first two
tests came back negative for for MS and so
he recommended a spinal tap since none of
the other tests had shed any light as to
what was exactly going on. When he stated
that one of the tests that would be run
from with the spinal fluid would be for MS
I almost laughed.
Approximately three weeks after the test I
was told via phone call that the result
from the spinal tap was slightly elevated
antibodies, however, when I went to the
neurologists' office several weeks later I
was told that the results from my spinal
tap show that I have MS.
I have learned in the past week that it is
possible for some tests to come back as
negative for MS and to go years without a
diagnosis so I guess that I am fortunate
that I only underwent testing for one year
before getting a diagnosis. I am still a
little shocked though and some-what in
denial.