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Conditions and Diseases > Gland Disorders Forum > Lump In Neck? How Do I Make Doctors Listen?
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Q: Lump In Neck? How Do I Make Doctors Listen?
asked by: bevs1066 on June 9th, 2006
New User
Hi
up until I had my daughter 4 years ago, I was always slim and healthy. For the past three years my symptoms have continually got worse. I have thinning hair, abdominal weight gain, dry skin, heavier periods, water retention to my face in the mornings, hands and feet in the evenings, no sex drive. More recently a weird sensation in my throat when going asleep, like something moves, also very 'crampy' neck, occasionally feels like food is getting stuck. Dizziness also at various times, which is quite scary.

I was refered to an endocrinologist last year, he was convinced that I had diabetes as I was suffering from boils at the time, tests showed no diabetes, he never saw me again. My own gp admitted that the change in myself was acutely obvious, but she could not think what it could be...Maybe lupus? This was her thought not mine.

I was sent for bloods, these were the results
fbc
wbc's 9.7
rbc's 4.48
hb 14.4
packed cell volume 0.417
mcv 93.1
mch 32.1
mchc 34.5
red blood cell distribution width 13.3
platelet count 299
mean platelet volume 10.4
neutrophil count 6.3
lymphocyte count 2.8
mono 0.5
eos 0.1
baso 0.0serum sodium 141
serum potassium 4.3
serum urea level 2.6
serum creatinine 77
gfr calculated 76.9
serum ferritin 78
serum iron level 19
unsaturated iron binding capacity 45
serum tibc 64
serum totalbilirubin level 8
serum gamma gt level 31
alt/sgpt serum level 25
alk phos 100serum total protein 69
serum albumin 44
serum tsh level 1.50
i was told that the results are normal, being not very happy with this, I have recently changed doctors. I went and saw my new doctor who whilst listened to me, did not offer me any hope of a diagnosis. I told him that I have a lump in the front lower right hand side of my neck, and did he think that this would have any relevance on my symptoms. He immediately felt the lump and told me it was a cyst on my thyroid, but as my tsh levels were okay on the above results (some 7 weeks earlier), then whatever was happening to me was nothing to do with my thyroid!

To say that I was disappointed was an understatement!

I am a blood donor and the above blood test was taken 48 hours after I had given blood.

I know my body better than any doctor, I have gained three stone in three years, although I cycle daily, look after a toddler, main carer for my parents (one is blind, the other has a heart condition), I have a very poor appetite, I am never hungry and can only eat small amounts, ie. Cereal or toast for breakfast, fruit or sandwich for tea, sometimes a bag of crisps or fruit as a snack throughout the day.

My doctor says that it is normal to lose hair, and also maybe I am eating my main meal (a sandwich or fish ) at the wrong tiime of day (4.30)
i would like anyones opinion... The more the merrier.

I want to know what test anyone thinks that I should have...Would an ultra sound on my neck be helpful?

Also should I have my t3 level checked.

Incidently I took my basal temperature every morning for 10 days, on eight of the days it was 96.8, the other two days it was 96.1
any help please, or advice on getting doctors to listen to me...
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Replies(6)
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angie28
replied on August 10th, 2006
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Re
I too have a lump in the lower right side of neck. Dr checked thyroid and it was low so now am on synthroid. That was about a month ago. Now the last three weeks my voice is strained and hoarse but inside of throat doesnt hurt. Still have swollen gland and lump,was told maybe cancer. Ent dr ran scope down my throat and said all was good, had a barium swallow study b/c the feeling of something stuck in throat, and that was good too. I am getting so fustrated with all of this and ready to give up also on paxil too. Hope you find out soon and if anyone can give me advise please do.
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bevs1066
replied on August 10th, 2006
New User
Hi
thanks for your reply, I hope that you do feel better soon.
I changed doctors, this one was very alarmed about the size of the lump in my throat. Had an ultra sound yesterday. Right side of thyroid is enlarged, but of normal tecture, technigian said that this would not be causing my problems, but that he would measure it again in 3 months???
I asked him what the lump was...He said 'maybe muscle mass!'
not very pleased, as now the neck pain is affecting my ears, and swallowing.
Will keep trying though.
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angie28
replied on August 10th, 2006
New User
Lol we sound pretty much the same. Well good luck to you and I may change drs also. Im just tired of hearing well this is ok and this is ok and making me feel like its all im my head when I know its all in my neck. Ty and good luck keep me posted on how your doing
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get well
replied on September 18th, 2008
New User
How are the neck things going? I have mono (and before that St. Louis enchalitis from mosquito bite) and have problems swallowing for over a month-it also feels like I'm being strangled all the time. ct scan revealed a few lymph nodes just slightly enlarged, but shouldn't be causing this problem. I've also had ear pain for 4 months. I think i will be getting an ultra sound soon, and then my infectious disease doc said I should probably go to the endocrinologist. are you guys better and what happened?
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4fromheaven
replied on January 25th, 2009
New User
THyroid
Find a really good endocrinologist - is definitely sounds like your thyroid is the culprit - HYPOTHYROIDISM Test T3, T4 Free and TSH levels - most doctors look at the range - generally they are to go by your symptoms. The lower range is the best for feeling good. TSH of about 1.5-2.0 Good luck and don't give up there's defintely something and you are your own advocate - you know you don't feel right. I had some of the same issues and my regular md kept telling me I was fine and I was not - it was my thyroid.

Good luck and God Bless you!
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flowerchild56
replied on July 12th, 2009
New User
Could this be thyroid related?
I noticed a lump in my throat after I was having trouble swallowing, also while sleeping sometimes I lost my breath. My GP said my thryroid was swollen so went for an ultrasound which showed right side swollen size is 12 and left is normal 10 also have very tiny cyst on right side. GP said nothing to worry about so I went to endocrinologist they also said nothing to worry about because my last blood work showed my TSH only 1.61. The endocrinologist ordered more blood work to see if my TSH has changed since the May reading. I will fing out in a few weeks. I also have 24/7 ringing in my ears, weight gain, brittle hair, thin hair, very very dry skin, right side of body is swollen, arm and leg mostly, elevated blood pressure and sugar. I was always healthy until this started about year ago.
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