Hey guys wanna ask you does someone have atopic dermatitis?I got this dermatitis only in july or august...my skin is peeling on the top of my right fingers...and that lasts about 3 weeks and then it stops...and i got this since ive have polyps...never before.So anyone have similar situation?
Quick update - Now over 3 months on Colon Green and the polyps have completely shrunk - full nasal breathing restored. I eat every food, nothing up my nose, no steroids or antibiotics and have cancelled surgery. This is after 30 years of suffering! Has anyone else tried this yet?
My first visit to any Forum, found whilst googling nasal polyps/alternative treatment. I have polyps and a deviated septum. The doctor wanted to operate in 1999 but I declined as I knew they would grow back. Forward to Winter 2010 and I had a bad fall on the ice and ended up with 3 bulging discs in my lower back, stenosis and trochanter bursitis (hip bursitis). The pain in my hip has been unrelenting so in July 2012 I went to my doctor and he gave me a cortisone injection in the hip area.
Within a couple of days I was pain free, although it only lasted just over 4 weeks. However, an amazing side effect - I could smell! I haven't been able to smell anything for over 15 years. It was such a shock that I didn't know what was happening. I kept telling my husband something was wrong, there were strange smells in the house. To me, the smell of cooking dinner was strange! My sense of smell has now disappeared again but I agree with a earlier poster who said that inflammation was the key. So how to get rid of the inflammation?
I am English but now live in Sweden where it appears alternative medicine is very much frowned upon. So I am reliant on the internet for my research. Some weeks' ago I bought Serrapeptase tablets but have been reluctant to take them. However, I took the first one today. Serrapeptase doesn't appear to have been mentioned on this Forum so I just wondered if anyone else has tried them?
Its all about the inflammation,trust me.How to get rid of it?Well anti inflammation Omega 3,Vitamin C,lots of sleep,lots of water,training,no junk food,no fast food,no food with aditives,avoid omega 6 as muc as possible.Focus your diet on fish,chicken,legumes and brown rice.Yoga helps too.Avoid high salicylate food too.And Serrapeptase is very interesting.Serrapeptase is a proteolytic enzyme,and i think the enzymes play a very important role in inflamation.I do lot of research and i know that your GI tract is 80% of body's immune system.So maybe its problem with digestion.I think combining digestive enzymes and probiotics is the best thing for GI tract.It will be very interesting to see how you react on it.Ask if you have some questions.Cheers
Clinical trial and maybe new ideas for nasal polyps?!
This is a great site, and lots of you have been commenting on problems with alcohol, which thanks goodness my doctors in Boston warned me about. Just stopping all wine has helped my symptoms (i have Samter's Triad or what my doctors call AERD ), and lulckily for me, the aspirin desensitization and 4 tablets of aspirin a day worked for me. My polyps used to grow back after only months after surgeries before. Then I had a (hopefully) final surgery and 3 weeks later did the aspirin desensitization. It has been a couple of years on aspirin every day. Lots of bruises, but no other side effects. And my polyps are NOT back! And sometimes i even have a sense of smell, but not always. And not more than one sinus infection per year for the last 2 years, which is a major improvement from before i was on the aspirin.
There is a website the allergists at the Brigham and Women's Hospital made with information about the disease and about the aspirin desensitization, if you want to check it out: Aspirin Desensitization
And i don't qualify for it, but there is also a new research trial going on in Boston, and the aspirin desensitizations and treatments are free while on the trial (in case getting insurance to pay for it is a problem). Clinical Trial
If my fancy try at making links donât work, the two websites are: http://aerd.partners.org and http://clinicaltrials.gov/ct2/show/NCT0159
I'm new to this forum, but sadly not at all new to polyps. You all have my deepest sympathy - it really is a horrible chronic condition to live with...
But reading through the endless pages of comments has actually inspired me! I really think that together we stand a chance of learning a lot more about them, if not hopefully finding a REAL treatment.
Surely if we're all systematic, scientific and fair in our approaches and research we stand a good chance of solving a few problems. Let's face it the majority of doctors and people in the medical profession have little knowledge and/or interest in nasal polyps. I have actually diagnosed myself everytime and had to inform my GP that it needs attention, whilst being fobbed off with antibiotics.
Here's a very quick description of what I've gone through (probably all sounds familiar!)...
* Had recurring polyps for at least 10 years
* Also have chronic asthma, allergies to dust, pollens, eggs, etc (my polyps were tested and found to be as a result of allergies. I suffer from constant rhinitus and congestion.
* Medication I am currently on include... Bricanyl and pulmicort inhalers (have also been on serevent) nasonex nasal spray, antihistamine: cetirizine hydrochloride and another nasal spray. Have been on prednisone in the past, as well as montelukast.
* I've had FESS surgery 3 times in the past.
* All in all, it makes for a very frustrating, embarrassing, sleepless, uncomfortable and often miserable existence. I'm very bored of this now.
So, I'm approaching the probability of a fourth opperation. Something that doesn't really fill me with joy or hope. It's such a short term solution. A few months (if I'm lucky) being able to breath then back to square one. So I've decided to really make a concentrated effort to find a genuine alternative. I think we could all help eachother here.
Obviously there are quite a few factors involved as most of us will know. There's also people who claim to have success with certain treatments. There are frauds, fakes, charlatans and money grabbing schemes that prey on peoples illnesses. There are placebos and patients that have misguided and bias opinions. I think we have to plough through these, conduct fair tests, using ourselves as guinea pigs, remain open minded, but not blindly trying every possibility under the sun, all at the same time in despairation (which I know from personal experience is all too easy to do, when you're suffering). I've dabbled in lots of possible treatments; prescribed medication, I tried a herbalist, (which cost me a small fortune and did nothing I might add) and made my own 'brews', etc.
My first 'experiment' is going to be Tea Tree Oil, which was mentioned for a time earlier in the forum. Some claimed it was a wonder cure, others said it did nothing. I'm curious as I remember my grandmother saying she washed her face in tea tree oil and her moles fell off. I've looked into this further on the net and it apparently can be used for just that. So, if moles, why not polyps?! It's worth a try. I'm going to do 7 -14 days and see what happens. Anyone who cares to join me is more than welcome. Let me know how you get on.
If this fails, then I intend to try gargling with Nystatin, Pulmicort, and a host of other things. Maybe, with a bit of luck, I wont get that far! who knows?!
One thing I did do after my last opperation was use epsom salts as a nasal wash, which possibly prevented the polyps returned quite as quickly. Maybe a coincidence, but worth mentioning.
Anyway, I will do my best to let you know how I get on over the coming weeks.
Wishing you all the very best of luck with your own personal polyp battles!
I had FESS about 2 months ago after 3 years of these polyps. Still doing great, wonderful smell/taste, and transformed living. My ENT is determined not to let them come back, and right now she has me on Omnaris (2 sprays in each side twice daily) and budesonide, which is meant to be used with a nebulizer for asthma, but she has me use a syringe to make a solution with 2/3 part saline and 1/3 part budesonide, and then while leaning my head backwards I let it sit in the sinuses for 3-4 minutes twice daily. So far it's working, and I'm hoping for the best.
I also have nasal polyps. My ENT told me that polyps can be cured with raw quail eggs. It works for only few percents (or maybe less) of polyps suffers and it didn't work for me, but it may work for you. For the purpose you have to start with one raw quail egg on empty stomach in the first morning and you can eat your breakfast in 1,5 - 2 hours after eating the egg. The second morning eat 2 eggs, 3rd morning - 3 eggs.. Once you reach 20 eggs you begin to decrease them by 1. The whole course is 39 days. If it works for you - then repeat it after 3 months. It is also good for allergies, and I definitely can feel the difference for my allergy, but not for my polyps as I said. Don't be afraid of salmonellosis, because only quail eggs don't have it.
Another thing that he told me was for the lost of smell, because I can't smell anything even when I'm on corticosteroids (I use only sprays). You have to gargle with olive oil (pomace) - never use Virgin olive oil, cause you'll have a very bad burning sensation in your throat. You have to gargle with the olive oil for several minutes twice daily, once in the morning and once before bed time. It helps me, but when I'm treating my polyps.
This is what I found for treating polyps in a homeopathy site, and I'll try it soon and I'll post my results:
*Vitamin A, C, E, bioflavonoid, Zn and Se supplements;
*One teaspoon of castor oil everyday;
*1/4th of a teaspoon of citric acid and same amount of baking soda to be taken with warm water 2 to 3 times a day;
*Mint tea with high rosmarinic acid content (about 150 mg);
*Deep breathing exercises at least for 10 minutes each morning, afternoon and evening;
*Rinsing the nasal region regularly using a solution made by mixing a cup of lukewarm water (240ml) with half a teaspoon of Epsom salt (sodium chloride and sodium bicarbonate). This is believed to prevent the formation of nasal polyps;
*Hot baths or showers to relieve congestion and to reduce swelling of the nasal mucosa;
*Restriction of nose-blowing;
*Use of home humidifier;
*Practice of good hygiene;
*Avoidance of irritants and allergens (e.g. airborne pollutants, chemicals etc) as much as possible."
I believe that the initial cause of a massive change to my body's health and operation came from getting Glandular Fever (aka Infectious mononucleosis, EpsteinBarr virus). It is a type of Herpes virus and seems to stay in your system for life.
I believe that the sinus, tonsils and adenoids as well as my general health and allergy sensitivity were heavily affected by getting this virus but I can't find any information on a potential link.
Pre 2000: Up to age 16. Generally fit and healthy. No alcohol. Healthy lifestyle in my parents home from birth. No asthma. School athletics champion.
Late 2000: Got glandular fever and had a blood test to confirm this. Developed mild asthma and chronic fatigue. Could now barely run 100m. Began to regularly get tonsillitis. Began to get firm white "goobies" forming in my tonsils. Would occasionally cough them up and they stink really bad! Bad breath as a result. Could actually physically remove them if I could withstand gagging. Possibly related is that my Mother also gets them...My father had terrible health as a child until having his tonsils and adenoids removed, from which point his health improved markedly.
2001: Aged 17. No alcohol in my life to this point. Constant infection, fungal infections. Sample grew Staph. Totally opaque sinus on CT scan. Constant anti biotics. Constant fatigue. FESS surgery to remove polyps. Problems after. More surgery. More antiobiotics etc. Eventually got a good reult. Cleared sinus. Improved health etc
2001-2006: Poor lifestyle. Lots of alcohol and occasional smoking. Lots of sickness. Lots of tonsillitis. Chronic fatigue. Ignored most symptoms and partied like the other college students. Was sick and on peniciilin for the tonsillitis often. Sometimes up to 5 or 6 times a year. Used to just crawl to the dr and say "tonsillits! need more penicillin!"
Like lots of hippy minded people I tried everything under the sun with diet, but stupidly and naively continued to drink and occasionally smoke. Systematic diet changes seemed to have little or no noticeable effect.
2006: After lots of sinus infections and courses of antibiotics another CT scan was ordered and again showed totally opaque sinuses. Constant antibiotics caused thrush and made me very wary of taking them and the effect on my body.
FESS surgery ordered again. Better immediate result this time. Was ordered to take steroid spray for the rest of my life. I asked for alternative and was told there was none and when I said I was researching neti pot nasal irrigation as an alternative the Professer cockily said "see you in 2 years"...
2006-2012: Vastly improved lifestyle. Less drinking and for the last 2 years no smoking. Alcohol is still the biggest and obvious intake that aggravates my sinus. I keep infection under control with Neti pot. High cardio excercise clears and expands the sinus. Mostly in control, but still fatigued more than general population, and alcohol always causes me to have bad sinus. Even one sip of one beer. Wine and spirits are the same. It is ANY alcohol.
2012: After 2 months of sinus, post nasal drip, sore throat on waking, restless nights, clearing throat, chest clog, tonsil goobies, fatigue etc. With Neti providing relief but no cure, I went to the dr again and ordered a CT scan. Same story again. Sinus completely opaque. Will be getting the dr's assessment and inevitable referral to ENT specialist on Monday...
I have some questions of you all please:
1) Have you had Glandular fever and if so, what age?
2) Do you believe it had a major negative affect on you and your body?
3) Do you, or did you in the past, get lots of tonsillitis?
4) Have you had your tonsils and/or adenoids removed and did it affect your health, fatigue and/or polyps?
5) It seems polyps can shrink just as they can grow, is this correct?
6) Does this mean finding a way to shrink them is an alternative to surgery?
I've suffered with polyps for 5 years. Being a winemaker it has been particularly stressful because every time I lose my sense of smell I'm either on prednisone or having surgery. I've already had three surgeries and it seemed as though the polyps grow back even faster now both after surgery and after prednisone treatment stops.
I've been irrigating the past year, which helped clear out some congestion but gradually I could feel more resistance as my nasal passages would become more restricted from the polyps.
Having just moved to a new area, I went to a new allergist who put me on a whole new set of drugs for my allergies and the asthma I've developed since getting polyps. I'm literally taking: Singulair, allegra, Qvar, albuterol, budesonide (in irrigation water to replace flonase), plus decongestants and mucus thinners as needed.
My whole life I've been active and healthy and the fact that I have to take all of these drugs depresses me, especially since none of them seemed to be controlling the polyps.
After scrounging through every website and blog on polyps (and trying many things) the thing that really seems to be working right now is TEA TREE OIL. Be careful though, I made the mistake of putting a few drops in my nose (like I'd been doing with a pine/eucalyptus oil) and it felt like my head was going to explode, especially when a little of it worked it's way into my sinus.
The key is to start slow. If you can actually see polyps dip a Q-tip in the oil and apply it directly to the polyp. If they are up farther in your nose (like mine are) add some to the irrigation water and irrigate more slowly so that there is more contact time with the oil and the polyps. I also tried adding baking soda to the irrigation water (along with sea salt) and it really helps dissolve the congestion better.
I've been doing this now for two weeks after having absolutely NO SMELL for the previous two or three weeks. My smell hasn't completely returned but I'm smelling almost constantly with my left side and my right side is on and off (still clearing out). After a few days or a week, you'll begin to blow huge chunks of dried out polyps from your nose. Sounds disgusting but for those of us who have been at battle with this, believe me, it feels like victory!!
I've also noticed I'm blowing out what looks like black fibers every once in a while. I've heard that fungus may be to blame (my polyps really started while I was doing a remodel on a house so I've always been suspicious that the mold or fungus could be a culprit). Of course the doctors have all said I don't have fungus...but since Tea Tree Oil is and anti-fungal/anti-bacteria agent, I have to think that there is something to it.
I can't say that this will work for everyone...but if you are a sufferer, it is definitely worth a try. I don't know much about the different brands of tea tree oil, but suggest getting one that is 100% and also pharmaceutical grade. I've diluted my Ponaris oil with about 1/3 of the tea tree oil and now use that at night for more direct contact and to keep my nose moist.
I've always had horrible polyps, I can see them with a flashlight up my nose, but this weekend has been horrible. I can usually breath through my right nostril, but couldn't for about three days. I tried the tea tree oil on a q-tip, and within two hours I was able to breath through my right nostril better than in the last few weeks. I'm going to apply twice a day now and see what happens.
Hey, I hope this helps as it really worked for me. As a kid, I went through half a box of kleenex every day. At 32, I had my first polypectomy. Again at 33. I used corticosteroid after that and it's been good. About 6 weeks ago (I'm 56 now) my left side was plugged with a huge polyp. I used the coritcosteroid twice a day since - no luck. My ent suggested a third surgery. About 2 weeks ago, I started a saline rinse twice/day. Still no luck. Four days ago I read about tea tree oil directly on the polyp. I've applied it with a q-tip right after the saline wash twice/day. After 2 days, it was half the size! After 4 days, it's all but gone. I'm amazed, can breath and my sense of smell is definitely returning. Hope this helps.
I've suffered with Nasal Polyps for about 10 years and have all the same syptoms and allergies that most of the people on this forum seem to have. I am just about to have my 4th surgery. I have just tried this Tea Tree oil thing though and initial results look hopeful.First breath through my right nostril in about a month. Can anyone who has used this oil for a few months say how they are getting on? I will keep trying it and keep everyone posted.
I guess iam relatively new to nose polyps. I am 55 and have had them bad for 5 years.
Developed aspirin intolerance when I was 40 which triggered asthma and I have allergies to house dust, cats, horses, pollen, and I am sure many other things.
Polyps have become worse each year and now i can't breath at all through my nose. Drips like hell, people think I have a cold , it's worse when I am on the phone as they always saying "oh you sound like you have a bad cold" and I am sick of explaining !!! I find it hard to sleep, and i have constant dry mouth through the night. But I guess you all know the pain it is
I had surgery booked 3 times. Twice I bottled out. I feel such a wimp !!! And third time they canceled it because of the surgeon had emergency surgery to do.
I am totally terrified of the operation ( shouldn't read so much on the Internet about it) and on the run up each time I have tried the alternative route.
Sinus rinses seem to aggravate it more along with salt washes.
Homapathic remedy seemed to really help in the run up to the 2nd scheduled opp, so that's why I canceled it but then after cancelling I continued with remedies and my blockages came back worse.
This last time before I was due to have the operation I decided to have some hypnotherapy ' 4 week leading up to the opp. I got a really bad cold 2 weeks before and sneezed for England and then I could"t believe my nose started to clear. I put it down to the hypnotherapy I religioudly was listen too every day. 4 days before the opp I was deliriously happy as in the first time in 2 years I could breath through my nose. Then they rang up and canceled my opp and I thought it was meant to be. I rushed to the hypnotherapist for some more tapes !!!! And now 3 weeks later I am back to square one!!!
I can't really work out if its the sneezing that cleared it or its all in my mind. Sme of my theory is stress. And I wondering if that can agreivate it.
Well as from tomorrow I am going to try.
Tea tree oil.
Avoiding salt and alcohol
Drink lots of water and herbal tea
2 day fasting diet to cleanse the body
Listen hymoptherpy tapes
And if that doesn't work then I am really going to have to give up and have the operation
I will keep you all updating with a weekly update.
But there are another couple of things I thought of which are interesting.
I noticed on the first page of this forum someone has made a comment about keeping your nose moist and that antihistamine can dry you up. I have noticed the too and have experimented by skipping a day or two of antihistamine and although I start sneezing a lot often the next day my nose starts to feel clearer which makes me think that most of the issues with a stuffed nose where I can't breath through it is mostly mucus.
Can I survive without any antihistamine?
I am of a certain age of hot flushes but I have noticed sometimes in the middle of a hot flush my nose will clear and I can breath through it for a few minutes.
Also, I know I talk about avoiding stress because I actually believe too much stress in your life can create illnesses to manifest themselves. But I have noticed in times where I under a little bit of pressure in a challenging way and the adrenaline flows my nose clears - sometimes totally.
Thanks for all of this interesting but confusing information. As someone posted, it would be good if all the shared wisdom on these pages could be collated to compile an advice list.
It would also be useful if those who posted suggested help could put an update on to share as the assumption may be that if you did not update how things are, the it didn't really work.
Anyway, I have always had occasional problems with my nose - more nose bleeds than normal (I am a man and tended to "dig around" more than I should). I have a deviated septum and also suffer from hayfever. I am 56 and decided to get a specialist opinion and am now getting anxious as the ENT consultant has suggested surgery as he feels that I have a possible inverted papilloma and require surgey.
My question is - has anyone used the treatments mentioned here for this?
Does the inverted nature of my polyps mean they will not be suitable?
I have bought tee tree oil and Zinc as they won't do any harm anyway.
Thanks again and good luck to all of us with this annoying condition.
wow!hearing all your stories makes me want to cry..I had only recenty understand what was actually happening to me for almost 10 years or more..I get clogged nose early in the morning and sneezes a lot also when I do the cleaning in the house I would get allergy attacks even to little dust. Every night I get blocked nose the moment I lay down thus makes me breath through my mouth the whole sleep, then I would wake up in the morning with a very dry mouth and bad breath..It suckss really I feel all dust and dirt goes in my mouth!It makes my mouth really dry, I thought it's just normal but I searched the internet and realized..yeah!that explains!I have nasal polyps...and kinda scared to go through surgery.. =(
I am 26 year old female from UK and had recurrent nasal polyps in both sides for 13 years now maybe longer coz my blocked nose started when I was 13 year old.
I have asthma, had asthma since 2 years old.
I started getting hey fever symptoms when I was 13 only at summer time though, then I had a all year round cold constant blocked and runny nose, affected my asthma more, constantly having chest and nasal infections.
When I was 17 I was diagnosed at ENT with nasal polyps in both sides and one side of my nose is narrower than the other.
They said I would need surgery but gave me steroids (prednisolone) which shrunk them down but still had the polypectomy when I was 17. They kept me on flixonase nasal spray for 4 years after the op, I was clear from polyps for 4 years then all of a sudden they took me off it they came back worse than ever to the point I could see them up my nose.
They gave me betnesol and neomycin drops they worked wonders to start my polyps were not visable anymore and I got my sense of smell back. Then they took them off the shelves temporary for a review as soon as they did that I was put back on flixonase they grew back bigger. I had another polypectomy op when I was 24, which was dreadful. I've had allergy skin prick tests for airborne allergies but that was inconclusive as they didn't tell me to stop my antihistamines before the test and they did RAST Blood test for food and drink allergies but they didn't check for everything on that like they were supposed to they only checked yeast wheat diary and nuts (all came back fine) I have no pets and I don't smoke, my polyps are worse when drinking alcohol and even going outside of to other people's houses and in my own home I can't win.
8 weeks after that polypectomy they grew back (so fast!)
They said they are baffled as to why I have them they said its either fungal or allergy related, they said asthma is usually a link with it along with a sensitivity to aspirin. At the moment I am on nasonex spray waste of time coz its not that good, they said flixonase needs a break coz your only supposed to take that at 3 month intervals coz of the prednisolone and the risks.
I still have polyps in both sides nasonex has shrunk a tiny bit my asthma has been bad coz of the polyps.
My dad had three lots of nasal polyps he had steriods sprays and drops, ended up having operation on them three times, third operation damaged his eye sight, now he is almost completely blind at 68 years old.
He got referred to a dietician because of the polyps at guys hospital in London.
They did tests on him and asked him about his polyps and the sensitivity to aspirin.
Apparently some foods have salicylates in them which is in Aspirin. This can cause Asthma related symptoms and nasal polyps. Alcohol is high in salicylates, coincidence??? My dad is giving the diet sheet to me to try. I will start this in a few days and let you know how it goes I know how you guys feel, miserable tired and always ill!!
Incredible, that this thread is still active after several years.
I am 31, living in Germany. Polyps were diagnosed about 8 years ago. Till six month ago I was almost fine with the polyps, even though they were "massively everywhere".
Currently, right side is almost completely blocked, left side allows at least breathing in and partially out.
Well, as everyone else here, I want to avoid surgery, and I strongly believe that there must be a natural way.
I agree with the inflammatory problem mentioned before.
What I will now try:
1) change my diet to paleo (I think nutrition is the most important factor), low fruit intake
2) keeping a diet log to observe patterns
3) increase intake of green tea and water
4) increase Vitamin D intake (sun)
5) at least for a while: Zn and Se supplements
6) light, aerobic outdoor activity, mostly running
7) reduce stress (had lot of stress in the past six months, suggesting a correlation) -> see 6)
Anyone who is interested in a holistic approach, please check on Phil Maffetone's ideas. I came across his work years ago, when I was an active endurance athlete. I only partly integrated his ideas in my life. But what I have learned from this thread and my own research, Maffetone's understanding of the human body (inflammatory, allergies) adresses lots of the ideas found here and in conventional medicine.
Try these things:
Bloodroot. Get a spray made up or drops.
Antifungal diet with supplements; caprylic acid, garlic, tahebo/paudearco? and candida clear products
Try elimination food diet mainly dairy, wheat, egg.
Homeopathy treatments pulsatilla and or sanguinaria.
Take magnesium for the stress also mega b and c vitamins.
Fish oil high in omega 3 to reduce inflammation.