My condition is a bit different to yours.I'v had epilepsy now for neally 7 years.I'v been on phenytoin for all that time.The same as you,300mg which I take at night.When I first started suffering fits I was seen by (supposedly)the best consultant in the uk.He put me on 1600mg of epillim,200mg of lamictal and 300mg of phenytoin.Obviously I trusted him and didn't question his judjement.But after 5 years I was still taking the same medication and my fits were no better either.My consultant wasn't interested in changing my medication so I went private and found someone else.This doctor was disgusted at how much medication I was on and said he wanted to change it asap,but most of all he wants me off the phenytoin.I'v came off the epillim and replaced it with keppra,which my doc is hoping will also replace my phenytoin.I tried to reduce my phenytoin about 6 months ago,taking off 100mg.It was horrible.I was scared all the time,depressed,i was suffering 2 fits a night,for a week,untill I decided to start taking mt phenytoin again.My doc thinks that taking off 100mg straight away was to much for my body to handle.Apparantly this is also one of the reasons they don't like to pescribe it now.I'm about to try again soon,reducing my phenytoin by 50mg at a time.Hopefully this will make a difference.
It won't alter the fact though,that since trying to reduce my tablets by 100mg,i have suffered panic attacks.I can't go any further than the local shop or taking my kids to school.If I go anywhere else,i have to have someone with me.I can't go in a lift anymore,i can't be in a space surrounded by strangers.It really has affected me,but im feeling better lately since learning what to do,deep breathing..Etc..!
Sorry i'v gone on,when talking about my epilepsy I do tend to go on forever.Lol.
I hope you feel well soon.In the mean time,be carefull when your on the road.And always carry a brown paper bag.Sounds daft I know but it does actually work when you start to panic. :wink:
stay safe,shell xx