Are These Seizures? Sorry It's Long... Posted: 05-15-06 17:19pm
Hi, sorry to be so clueless on the
subject...
I get episodes where my whole body shakes
violently - enough to throw me out of bed
(as it usually happens when I am falling
asleep). When this finally ends, I am
temporarily paralysed and completely numb
- not able to even focus my eyes or catch
my breath. One by one my limbs begin to
regain blood flow and feeling until I have
recovered, though I will still be
extremely weak for a while afterwards. I
have been getting these since I was 8 (i
am now 19). When it first happened it was
only in one leg, though soon I was getting
it in my whole body. It is horrible as I
don't lose conciousness so I can feel
everything, see everything and hear
everything but i'm completely powerless
while i'm being thrown to the floor and
bashed between furniture.
When this first happened, the doctor was
called out and I stayed in hospital for a
night where they took a lot of blood tests
and tested my muscle strength. I had
regular appointments at the hospital for
blood tests and urine samples.
When it began to happen in my whole body,
I was taken back to the doctor. He
considered epilepsy though once he found
out I didn't lose conciousness, he
completely changed his mind. (though I
know that ppl can take seizures while
concious)
this went on for years, happening quite
often, usually just as I was falling
asleep so that it would jerk me awake in
panic. I still had appointments at the
hospital for blood tests, urine samples,
eyes and ear tests, tests for muscle
strength etc - I was never tested for
epilepsy. Eventually they just stopped
testing and said i'd grow out of it.
It has now disappeared for a good few
years but I have always still been geting
jolts when i'm falling asleep as if it's
going to happen again. Last night I
nearly took a complete one but it stopped.
This is the closest I have come to one in
years... So I am worried it's coming
back.
I'm not expecting anyone to be able to
diagnose me but I was hoping someone could
at least tell me if this is what a seizure
is (to give it a name if nothing else!) -
if it gets any worse I will definately
annoy the doctor again.
Sorry for the length but thanks for any
advice.
|
shortypants19762002
New User, Becoming EHEALTHy
Joined: 21 Jun 2006 Posts: 8
Re: Are These Seizures? Sorry It's Long... Posted: 06-21-06 16:36pm
shaay
wrote:
hi, sorry to be so clueless
on the subject...
I get episodes where my whole body shakes
violently - enough to throw me out of bed
(as it usually happens when I am falling
asleep). When this finally ends, I am
temporarily paralysed and completely numb
- not able to even focus my eyes or catch
my breath. One by one my limbs begin to
regain blood flow and feeling until I have
recovered, though I will still be
extremely weak for a while afterwards. I
have been getting these since I was 8 (i
am now 19). When it first happened it
was only in one leg, though soon I was
getting it in my whole body. It is
horrible as I don't lose conciousness so I
can feel everything, see everything and
hear everything but i'm completely
powerless while i'm being thrown to the
floor and bashed between furniture.
When this first happened, the doctor was
called out and I stayed in hospital for a
night where they took a lot of blood tests
and tested my muscle strength. I had
regular appointments at the hospital for
blood tests and urine samples.
When it began to happen in my whole body,
I was taken back to the doctor. He
considered epilepsy though once he found
out I didn't lose conciousness, he
completely changed his mind. (though I
know that ppl can take seizures while
concious)
this went on for years, happening quite
often, usually just as I was falling
asleep so that it would jerk me awake in
panic. I still had appointments at the
hospital for blood tests, urine samples,
eyes and ear tests, tests for muscle
strength etc - I was never tested for
epilepsy. Eventually they just stopped
testing and said i'd grow out of it.
It has now disappeared for a good few
years but I have always still been geting
jolts when i'm falling asleep as if it's
going to happen again. Last night I
nearly took a complete one but it stopped.
This is the closest I have come to one
in years... So I am worried it's coming
back.
I'm not expecting anyone to be able to
diagnose me but I was hoping someone could
at least tell me if this is what a seizure
is (to give it a name if nothing else!) -
if it gets any worse I will definately
annoy the doctor again.
Sorry for the length but thanks for any
advice.
they may be what u want to do is talk to
your doctor about refural to a
neurologest. When you see the neurologist
ask about having an eeg done that will
test you for the seizure activity. And do
what they say to prepare for the test or
it wont come out properly to be read. But
before all that make sure your well
informed here are a few sites I no they
think im an fool but I have had this since
birth so they can think it all they want
it always comes out im right lol. Here
are the sites I look at and there are more
type epilepsy in the search and you should
get more good luck]
http://www.Epilepsy.Com/ http://www.E-epilepsy.Org.Uk/pages/arti
cles/show_article.Cfm?Id=64
