Hi nikki- I am confussed too after reading this. I have endometriosis, which some have told me to have a hystorectomy ( im 23 so that is not an option). But even if you are on hrt- I dont htink that it shouldnt make endo grow after your hystorectomy, I thought too that it was supposed to cure it. Is it possible that endo cells can keep growing in your body even after your operation, if they are already there and not detected?Sorry that I cant be of any real help to you

You can still grow more endo tissue even after a hysterectomy. It is less likely, but still does happen. Ibs is a pain in the ass (no pun intended). There are pills for it that do help a lot, but ultimately you just have to figure out which foods your body reacts well to and which ones you should not eat. It is different for everyone.
I also have endo and just turned 25. However, I choose to live with the pain and not have surgery. The only time that I will have surgery is when I decide that I want to have children. Then I will have the tissue cut out. They will only cut the tissue out so many times before they really pressure you into a hysterectomy. And that is just not an option for me!! Your doctor should have explained that the hysterectomy wasn't going to cure anything!!! It is possible, but not even likely.
Do not hide from the world! This has to suck big time for you. I am so sorry that you are still having problems. I would suggest getting a different doctor and taking suggestions from him/her. Good luck girls!

I had a hysterrectomy a few years ago due to heavy bleeding they left in my ovaries ....Then a year ago I staarted getting really bad pain in my left side went to the doctors and found out I had endo really bad eneded up losing my left tube and ovary since that I have terrible pain on the right side and bowel problems so to me yes it can cause the problems you are saying you have .....

I got my hysterectomy when I was 27 because I had endometriosis everywere. In my bladder, on my bowels, etc. I had everything removed. I am now 40 and have back pain that won't go away, bowel issues and a discolored discharge. Doctors won't believe it could be endo. Any suggestions?

Yes endo is NOT always cured by having a hysterectomy, I know cause I had one @ 32 but still have severe pain in right side (kept one ovary) and horrible problems with my bowels where doctors found adhesions & endo during several previous operations, so yes endo does & will come back if not treated durig the hysterectomy,all lesions have to be addressed or any little bit of estrogen will cause the eno to stay put & adhesions are hard. Good luck to all*

Anybody else still have signs of Endo after a hysterectomy?? I am still mad about losing my female organs(sans one ovary) and having terrible pelvic and bowel related pain, anybody else out there in same boat??

i was lied to as well my doctor told me just take out 1 ovary and uterus and that it would go away well my marriage is in trouble now,i developed prolapse and severe back pain wont stop hurting went back in with severe left side pain and had to have other ovary removed because of a mass the size of large baseball on ovary it was endo.im so over men doctors who say the uterus is only for birthing a child taking it out is a death sentence slowly but surly.

I couldn't agree more, men doc's don't have a clue as some lady doc's don't either, unless you have Endometriosis and suffered the pain & humiliation over the years with this God awful disease in my book you don't have a clue, a Hysterectomy is not always the answer, especially for younger woman who want babies someday....big mistake. my Hyst was at age 32 & I still regret it almost 17 years later*

Hi Ladies. First let me just say how very sorry I am that all of you have had to endure so much pain and heartache over the years. i wish I had an answer but alas I am in the same boat. I too have endo and had to have a hysterectomy at age 33 due to being riddled with endo and having what the doctor thought was a malignant tumor in one of my ovaries. Thank god it wasn't cancer but I did have to have all of my female reproductive organs removed. It is still traumatic to this day! I still have mystery pain in one side. Urinating is still painful at times. And my digestive system is incredibly sensitive. I did decide to give up red meat and gluten and it has helped a little bit but I still have back and hip pain, migraines, bowel problems, and exhaustion. It id difficult because doctors just want to put you in hrt and call it a day and I know that is not the answer. Hello? Why take estrogen if endo lives on estrogen? I wish I had the answer to help all of you and myself. All I can offer is this: be your own patient advocate when visiting the doctor and do not take them at face value. Do your own research and keep looking for the doctor that is right for you. And never give up hope. All of my best to all of your very brave ladies!

Luna, I still have pain in hip area, back and abdominal 17 years after my Hysterectomy, I don't believe there is a cure for Endo & your pain is not mystery pain, it is very real as the damamge that Endo does on our internal organs is horrendous & residual forever in my opinion, like you I am exhausted most of the time too so it can't be all in our heards being we all seem to have such similiar syptoms even after the Hysts.??? Hang in there I to wish I had some words of wisdom for all the poor ladies who have inherited this God awful disease...God Bless*
JoJo