Joined: 12 May 2006 Posts: 1 Location: richmond,va.
Need Some Answere's For My 9 Yo Son Getting Diff. Dxs Help Posted: 05-12-06 11:39am
Okay guys this is whats going on: around
april8th or 9th my 9yo son logan just
started passing out I mean just hitting
the ground,then a week or so later he
started jerking his legs only then he
would wet and poo ] his self.Took him to
the er 1st time the doc said it was
''normal'' don't worry about it.
Kept happening took him back to er they
set up a sleep deprived eeg came back very
abnormal but no seizure activity was seen
on eeg.Well I didn't like the 1st neuro
b/c he wasn't at all flexible but he did
say that logan had epilepsy. Went to 2nd
neuro who saw eeg and said he had epilepsy
still he knew there was no actual seizure
activity picked up on sleep deprived
eeg.
Anyway logan was started on topamax 25mg
at bedtime then 4 days later the neuro
upped it to 50mg morn and night he took
that for a week then this past sunday he
started having his tongue hang to one side
during these episodes and they got more
violent and he started spitting w/ them
and the scariest of all he was terrified
of his brothers, dogs toys etc
so from monday till late yesterday they
had him hooked up to the veeg and we'd hit
that little button everytime he'd have
one.Well now this neuro is saying he
doesn't have epilepsy,they're saying it's
more in his ''head'' type thing.They also
said that his eeg was more back to normal
than what it was a few weeks ago maybe b/c
of the topamax
I simply don't know what to believe does
anyone have any input at all?
Can you have epilepsy and not show
seizure activity on the eeg?
I don't know who or what to believe.He's
not on any meds at all right now
thanks
