I am 26 years old now, they diagnosed me with stage iii when I was 24. I had my whole stomach removed and a part of my esophagus in my first laproscopic surgery. The doctors messed up and didnt connect me well, the staples fell apart and I developed an infection in my lungs, kidney, and liver. I was in the hopspital for a total of 4 1/2 months, leaving to another hospital weighing 90 lbs and being 5 foot 8. When I transferred to mount sinai hospital, they immediately removed my whole esophagus and attached a bag to my throat to catch my saliva which went from my mouth out of a hole in my neck and into the bag. I had a tube placed in my stomach and was tube fed for 2 years, not tasting even water in my mouth or any kind of food. Furthermore, I was then diagnosed with thyroid cancer and had to get my thyroid removed. I went for chemo and the first time it didnt work. They wanted to reconnect me but when they opened me upo they saw that the cancer spread 15 inches along my intestines. I went on a stonger chemo, then they were able to connect me because most of my cancer was gone. They took a piece of my colon and used it as an esophagus. I went through a total of 9 surgeries, and it still isnt over.
So far I am missing an esophagus, a stomach, a thyroid, and apendix, and 4 1/2 feet of my intestines.
I researched just about everything about the cancers I endured (thyroid cancer too). If anyone would like to talk to me about my story or has any questions, I would love to speak to someone. Please email me or reply.
Thankyou,
evelyn

Sorry to hear everything you have gone through. My grandma just diagnosed with esophagus cancer and had the surgery to remove part of her esophagus and reattach it to her stomach 2 weeks ago. Her stomach is now behind her heart. She was suppose to be in icu on a vent for 1 week after surgery but the day after it they moved her room and had her sitting in a chair and she was never on a vent. She has now developed pneunonia and is sedated on a vent for the past 1 1/2 weeks. The cancer has also spread to her lymph nodes. We just pray everyday that she pulls out of this.

By reading everything you have gone through gives me hope that she will.
Stay well.....

Tell me about it, I was only 34 when I i got it. Tell me to aoid smoked mats or cold cuts or pickeled foos/ I barely pulled this cacer bc if my fmilay genes, my eating habbitm and smoking. Zdont smoke!!!!!
Kit
evelyn

I dont know if you are a religousman or not, nut I bout a zihar (aramaic, herewmiravle boo) he is an amaxing peron who redised in brsxil. If you want on his ifo, ill gladly sent it to yuo. His nae is john of god.

Sure send it to me..... I appreciate it. I spoke with my mom yesterday and they have my gram on a vitamin iv but you can only be on it for a couple of days and she has been on it for a week so they have to figure out how to get her nutrion. She can't have a feeding tube and there is something to give her protein but then her potasuim goes down and she has irregular heart beat. So if it is not one thing it is another.

All we can ask for is prayers.......


Thanks again

Well, ive been through the worst. First they thought through the cat scans and pet scans that the cancer only infultrated 1/3 of my stomach, but when they cut me open they saw ut was my whole stomach, all its layers, half my esophagus, and numeral lymph nodes. I thought I was going to die bc online no one ever survives stomach cancer. After they reconnected my esophagus (what was left of it) with my intestines, the staples got loose and I grew a huge infection in my liver, kidney, and lungs. Those doctors that operated on me the first time werent oncologists, yet they were gastric bypass doctors, so after spending 4.5 months in the hospital with no improvement, my oarents transferred me to another doctor at a different hospital - mount sinai. They found right away that the source of my infection was my esophagus so they cut it off. They attached a bag to my throat so everytime I spit the bag catches it. I was unable to eat or drink for 2 years, I had nothing but tube feedings, I am 5 foot 7 and I weighed 90 lbs. So, next after they removed my esophagus, they put me in for 6 months of chemo. Unfortunately, the chemo did not work and my tumore grew to 15 inches. They put me on another chemo that came feom israel, something that isnt even fda approved here, and believe it or not, my whole tumor dissapeared. It is called avastin. So they took half my colon and used it as an esophagud and closed me uo and now I am eating normally. Meanwhile, while all this was going on, they discoverev that I had thyroid cancer and had to be removen. So far, im missing an esophagus, a stomach, 4 feet of intestines, a thyroid, and an apendix.
Well, that is my story for short, right now thank g-d im in remission - not ever to be heard of of the stage my cancer was in- but I try to keep positive. I have a wonderful husband who is a doctor so he takes very good care of mr. He is an interventional pediatric neuroradiologist, in short, a brain surgeon for children. I was in my last year of law school whwn I got diagnosed, im going to finish up that year this august god willing.
Well, in short, I never really beieved in miracles, but when you are unconscious in your bed and all you can hear are the voices of loved ones crying, you wake up. It took me 4.5 months, but I came through.
If you want the number of my genius oncologist, just email me.
Thanx for caring enough enough to listen through my tedious story and I hope everthing with your mom goes better.
Pease and love always,
evelyn

My gram lost her battle..... She passed away one week ago. She had to get a trach and a feeding tube. They did the trach on tuesday and did the feeding tube on friday. I feel they waited to long for the feeding tube. She never woke up from the feeding tube surgery. She slipped into a coma and passed away the following day. From the time she was diagnosed to the time she passed away was 4 weeks.
I want to thank you for your encouraging words and I will continue to pray for you.

Im just curious, what were your symptoms?

Loss of appertite, weight loss, heartburn, integestion, acid reflux

my husband passed away 35 days ago from esophagus cancer. He was diagnosed on the 29th of may 2006 and passed away on the 19 feb 2007.
I am so sorry for your lose i know it is and will b a long hard road. we tried every thing did a lot of alternative treatments intravinius vitiman c, ukrain along with a lot of others did all the organic thing go gi berrys u name it we tried it . to no avail. He never gave up the fight was the most amazing man i have and will ever meet. my heart goes out to u

Evie your story is remarkable and your courage in talking about it is exemplary. You're in my prayers, you truly are amazing.
Love,
Richard Day Gore

Thank you Richard for your kind words.
Through out this entire battle i have met a lot of remarkable people. I am still in touch with alot of people that we met while having treatment at Fountain Of Life. I pray every day that they can achieve the miracle that Colin and i could not. And if this is not to b i hope that some of our experiences can help them through this time. Yes i am still so very lost and trying to find reason in this whole ordeal. Colin was only 44 years old and my everything. I gave up work 6 months ago to b by his side in this fight. Every day we laughted, loved and made the most of our time together. Now my days r so empty.

You have taught all that knew you what courage meant
And have shown us an example in death as you did in life
God give me strenght in my life without you.