I am a male age 40 and have been diagnosed
with dish. I understand that the only
treatment is one of nsaid to lessen the
symptoms. I wonder if anyone can advise
me as to what to exspect in the future
with this condition. I was told that I
may have to have hip replacement in the
future. I just need to talk with someone
who has lived with this condition. I do
not know how long I will be able to camp,
canoe, and work. I have already had to
give up my bike riding. I am just looking
for a glimps into the future. Any help
would be wonderful. Thanks in advance for
what you may have to offer.
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Scamp1
New User, Becoming EHEALTHy
Joined: 28 Dec 2007 Posts: 5
Dish Posted: 12-28-07 20:26pm
Hi
My name is Geoff From Australia & I
was diagnosed with Diffuse idiopathic
skeletal hypertosis (DISH) about 3 years
ago.
After diagnosis I was horrified of this
disease. I am gradually coming to terms
with this disease.
I do not know of anybody or my friends
have not heard of anyone with this
disease.
It is difficult to get information on the
prognosis after 5 plus years.
As far as I know there is no treatment or
medical drugs that can be taken as it
isn't even a inflammatory disease, unlike
other forms of arthritis.
I am finding that if you can keep active
and try to do the things you were doing
before diagnosis it will help a lot (I
still play Tennis and walk 6 Km's a
night)
I can become a little stiff in the
mornings and some times there is a little
pain, at the moment I certainly can't
complain.
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Scamp1
New User, Becoming EHEALTHy
Joined: 28 Dec 2007 Posts: 5
Dish Posted: 12-28-07 20:30pm
Sorry I forgot To Mention that I am 55
years Old & foud this article very
comforting
DISH appears to be a phenomenon rather
than a disease. Double-blind controlled
evaluation (in which controls and patients
were drawn from the same population)
revealed no associated pathology.
Arthritis, bursitis, and tendinitis
appeared no more frequently in patients
with DISH than in controls. Any back pain
present was no different in character or
duration than that noted in control
subjects. A history of back injury was
actually found to be twice as frequent in
control subjects as it was in patients
with DISH. Back flexibility was no more
limited in patients with DISH than it was
in controls. In fact, patients with DISH
who had decreased lumbar spinal motion had
a lower frequency of back pain, implying
that DISH may be protective (Rothschild,
1985; Schlapbach et al, 1989).
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BfromAz
New User, Becoming EHEALTHy
Joined: 03 Feb 2008 Posts: 5
Hi Ron Posted: 02-03-08 00:43am
I too was recently diagnosed with Dish. I
am 46. I am currently also seeking
information. In my case the disease is
already pretty advanced. I have fusion
going up most of my lower and mid spine.
Range of movement in my neck is about 30%
less than normal. My right leg has
numbness and a bit of weakness due to
compression on my spine. Pain for me has
been mild to severe.
I have been to 2 doctors already and have
been told there is not much that can be
done. I have an appointment for a third in
2 weeks.
I have spent the week sifting through case
studies and any information I could find
on the subject. There is a ton of
contradictory information on the web about
DISH. Scamps post about DISH is very
inaccurate and I suggest you do your own
research. Put case studies in with your
search about the disease and be prepared
to do some reading.
There are complications associated with
dish that you should be aware of. Do
yourself a favor and start researching.
Good luck Ron
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Scamp1
New User, Becoming EHEALTHy
Joined: 28 Dec 2007 Posts: 5
Recently Diagnosed? Spent a week Sifting Throuh Case Studies? Posted: 02-03-08 18:38pm
BfromAz
I have spent years trying to come to terms
with this disease.
What I posted to Ron was accurate. And as
you suggest, do his own research.
Because you were diagnosed at such an
early age and with it being so advanced, I
would ask the doctor of the possibility of
you having Ankalosing Spondilosos as well
(Apperently this is not uncommon)
Anyway I hope things start to improve a
little and you try not let it get you down
to much.
I found the less you think about it and
how worse off other people are with
arthritis the more you can get on with
your life.
All The Best
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BfromAz
New User, Becoming EHEALTHy
Joined: 03 Feb 2008 Posts: 5
DISH Posted: 02-03-08 20:24pm
Not trying to argue with you scamp... here
are 2 links. mayo and hopkins. I have more
case studies if you need those too... As
for me... AS was the first thing that was
ruled out. My issues right now are being
caused by the Ankalosing that also occurs
with DISH.
I have been having annual xrays ever since
i was diagnosed.
They have found no more fusing other than
my original 4 Vertabrae.
In other words
(nothing has changed)
My reaumatoligist told me that 70% of 80
year olds have some form of ankalosing and
the disease is very very slow in
progression.
Please take a look at this site as I think
you are looking to much at the negatives
Had my third diagnosis last week. Went to
see an orthopedic surgeon. Third diagnosis
was Spinal Spondylosis. Surgeon stated
that it was in every vertibrea in my
spine. No surgical option. Pain
management.
So... 3 Doctors. 3 Diagnosis. Think i'm a
bit confused.
Bfromaz
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Scamp1
New User, Becoming EHEALTHy
Joined: 28 Dec 2007 Posts: 5
Dish Posted: 03-02-08 00:46am
Amazing
3 Doctors all different opinions.
Unfortunatly the surgeon sounds like he
got it right. He would have seen it before
and all the xrays.
I hope you can control the pain in some
way with the meds.
Thinking of you and all the best
Geoff
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