I recently had a growth removed from my
neck that was diagnosed as kaposi's
sarcoma. I'm 39 yrs old. I had hiv and
cd4 count blood test and the results came
back as negative for hiv and a normal cd4
count. My gp and dermatoligist both have
no experience with this cancer, maybe with
no cancer, and each of them is pointing to
the other as to responsibility for next
steps. The gp was able to set up an
appointment at a skin clinic at sunnybrook
in toronto which is suppose to be a top
clinic, mid june, its now early may. What
i'm worried about is since I also suffer
from ibs(2 years) and hemorroids(3
months), and from reading online, this
type of sarcoma may spread to lower
intenstines. Is there anyone there that
thinks that i'm going the right route
going to a skin clinic, or should I go
straight to an oncologist. I want to be
tested as soon as possible to make sure
that my stomach/hemorroid problems are not
related to the cancer. Help! Anyone with
similar situation? How was it handled?
|
talluta
New User, Becoming EHEALTHy
Joined: 13 Oct 2008 Posts: 0
I can relate... Posted: 10-13-08 18:27pm
Hi John. I constantly have lesions on my
feet and hands. Some come and go and some
have to be removed. I have seen an
oncologist and have done all the intestine
tests already. I suggest you do the same.
Everything has been negative, and it's
just something I have to live with.
