Hi janel it,s angie looks like only us two contact each other no one replied to me either only you speak again on im soon

I am 39yrs old and was diagnosed with LGMD last year, as you I have difficulty mainly with climbing stairs, getting up from a chair and walking in general although the physio which I have recently started is begining to make a difference also swimming twice a week is helping too. I would pe pleased if you or anyone would contact me as it would be nice to compare notes with anyone who is experiencing similar challenges!

Assumming it is LGMD that is doing its job on me it has been advised to me to walk my pool. Fortunately for me I have a 50 ft lap pool with depth 3 to 5 feet.

Perfect huh?

Nope...as i also have clots in my legs which forces me to wear heavy stocking which are a pain to get on off...thus its more of a pain to get ready for pool and difficult if not dangerous for me to get in one.

Anyone with a similar situation and can offer advice...other than forget it and go back to the TV.

Hi,
My eldest brother was recently diagnosed with MD and my youngest brother is also showing signs. They are in their 40's with childen of their own. According to the doctors at Stanford, each one of my nieces and nephews are at risk by a 50/50 chance. So far, I'm healthy. It seems I'm the fortunate one. However, knowing this is going to be a very big part of my families life, please, can someone tell me what the daily difficulties are? How is it best to help without intruding? Also, is thier anyone who has an on going diary of their daily life that is shared over the net? Desperately trying to understand how one feels and what one really needs as far as help.
Kindly,
Terri

Sorry Jeimo,

Thought I was adding a new thread. I can tell you my brother had a blood test and DNA. He found it within a few weeks. In addition, stanford took a muscle sample from his leg to determine the exact type. The news isn't ever pleasing.
However, this is how he found out, but he did suspect and deep down knew he too had the same disease my father did. You know, all the symptoms were there.
Terri

By DNA screening through blood test. It is the only way to be sure of what it is. Muscle biopsies can be inconclusive. If you have not had the DNA screening done - get it done. I am a manifesting carrier of Duchenned MD - my son has Beckers form.