Muscular Dystrophy Forum - How Were You Diagnosed
medical questions | health forums

How Were You Diagnosed

New Topic  Reply  Ask A Doctor - Offline
Medical Questions-> Health Forums -> Muscular Dystrophy -> How Were You Diagnosed
Author Message
Jelmo

New User, Becoming EHEALTHy
Joined: 01 Apr 2006
Posts: 3
Location: El Paso, Texas
How Were You Diagnosed
Posted: 05-04-06 13:25pm

I am 42 yrs old, and diagnosed with a myopathy 11 yrs ago. My question is this.... I have had symptoms since early teens of a muscle disorder, and now am trying very hard to type the condition I have.

I was told at one point it was possible lgmd, now they are thinking it isnt, but was told it is a form of muscular dystrophy. How were you diagnosed, and how long did it take, if you werent diagnosed as a child.

I have had the emgs (5 to be exact over the years) but only one muscle biopsy in 1995.

What did your biopsy results say was found in muscle. Mine mentioned lipid droplets, does that mean anything to anyone here?

Thanks
Did you find this post useful?
|
angie thornton

New User, Becoming EHEALTHy
Joined: 19 Mar 2006
Posts: 5
Location: Doncaster
Lgmd
Posted: 05-05-06 08:42am

Hi janel it,s angie looks like only us two contact each other no one replied to me either only you speak again on im soon
Did you find this post useful?
|
Bytholwyrdd

New User, Becoming EHEALTHy
Joined: 22 Oct 2007
Posts: 1
Location: , Cymru/Wales
Limb Girdle Muscular Dystrophy
Posted: 10-22-07 09:57am

I am 39yrs old and was diagnosed with LGMD last year, as you I have difficulty mainly with climbing stairs, getting up from a chair and walking in general although the physio which I have recently started is begining to make a difference also swimming twice a week is helping too. I would pe pleased if you or anyone would contact me as it would be nice to compare notes with anyone who is experiencing similar challenges!
Did you find this post useful?
|
John2

New User, Becoming EHEALTHy
Joined: 01 Aug 2008
Posts: 3
Limb Girdle Muscular Dystrophy
Posted: 08-04-08 21:10pm

Assumming it is LGMD that is doing its job on me it has been advised to me to walk my pool. Fortunately for me I have a 50 ft lap pool with depth 3 to 5 feet.

Perfect huh?

Nope...as i also have clots in my legs which forces me to wear heavy stocking which are a pain to get on off...thus its more of a pain to get ready for pool and difficult if not dangerous for me to get in one.

Anyone with a similar situation and can offer advice...other than forget it and go back to the TV.
Did you find this post useful?
|
Related Topics
This Forum This Category All Forums
Jump to:  
New Topic   Reply



We comply with the HONcode standard for trustworthy health
information:
verify here.