Joined: 01 Apr 2006 Posts: 3 Location: El Paso, Texas
How Were You Diagnosed Posted: 05-04-06 13:25pm
I am 42 yrs old, and diagnosed with a
myopathy 11 yrs ago. My question is
this.... I have had symptoms since early
teens of a muscle disorder, and now am
trying very hard to type the condition I
have.
I was told at one point it was possible
lgmd, now they are thinking it isnt, but
was told it is a form of muscular
dystrophy. How were you diagnosed, and
how long did it take, if you werent
diagnosed as a child.
I have had the emgs (5 to be exact over
the years) but only one muscle biopsy in
1995.
What did your biopsy results say was found
in muscle. Mine mentioned lipid
droplets, does that mean anything to
anyone here?
Thanks
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angie thornton
New User, Becoming EHEALTHy
Joined: 19 Mar 2006 Posts: 5 Location: Doncaster
Lgmd Posted: 05-05-06 08:42am
Hi janel it,s angie looks like only us two
contact each other no one replied to me
either only you speak again on im soon
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Bytholwyrdd
New User, Becoming EHEALTHy
Joined: 22 Oct 2007 Posts: 1 Location: , Cymru/Wales
I am 39yrs old and was diagnosed with LGMD
last year, as you I have difficulty mainly
with climbing stairs, getting up from a
chair and walking in general although the
physio which I have recently started is
begining to make a difference also
swimming twice a week is helping too. I
would pe pleased if you or anyone would
contact me as it would be nice to compare
notes with anyone who is experiencing
similar challenges!
Assumming it is LGMD that is doing its job
on me it has been advised to me to walk my
pool. Fortunately for me I have a 50 ft
lap pool with depth 3 to 5 feet.
Perfect huh?
Nope...as i also have clots in my legs
which forces me to wear heavy stocking
which are a pain to get on off...thus its
more of a pain to get ready for pool and
difficult if not dangerous for me to get
in one.
Anyone with a similar situation and can
offer advice...other than forget it and go
back to the TV.
