In Hell! Total Lock For Months, Please Help Im Desperate. Posted: 05-03-06 08:09am
My jaw has been completly locked up since
october. I can open it enough to put 1
and a half fingers in sideways but thats
it. I can talk but I can barely eat and I
have excruciating pain constantly and even
more when I bite or try to open my mouth.
I have gone to a physio therapist adn she
said after 5 visits that I can do the
surgery or I can try to live with it and
just work on my range. This is almost
unbearable and its changed my life because
I had to change everything to work around
the locked jaw. Some one please give me
some good news and some good advice. I
really do nto want to do the surgery but
if I have to then I will. :( :(:(
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
Posted: 05-03-06 14:38pm
I'm so sorry to hear that you are having
this problem. Have you seen a tmj
specialist and if so, what is he doing for
you? I can give you my personal opinion
but i'm not a doctor, just a tmj patient
of 25 years going through a good phase
right now, thank god.
No surgery. No surgery. It **might**
work initially but the statistics are
against surgery. All types of surgery
for tmj, i'm sorry to say. And it
usually makes matters worse.
Next - are you on a heavy dose of muscle
relaxants? Anti-depressants? Valium or
zanax? After all these years I have
found that zanaflex works the best for me.
I also take prozac for the tmj pain and
very small dose of buspar to stop any
night-time bruxism. Many people are
against taking pills and I didn't for me
years because of that attitude, but I
finally said this was ridiculous and
sought out a pain doctor. They are very
difficult to find for tmj and thankfully
the above 3 meds do not need a special
doctor to prescribe them. The pain doc
did help me find the zanaflex but now my
doc can take over.
What is your quality of life like at this
moment? That's what you have to ask
yourself when it comes to medications.
If it's barely functional, then do
anything and everything you can to find
the resources to help you. The
medications will make you feel different
at first - sleepy, not-all-there, etc.,
but give yourself time and take them at
the best time. I take zanaflex only when
i'm at home and only when needed. I take
the others at bedtime rather than in the
morning (they can make you tired).
My next advice is to go to a different
physical therapist. Any pt who gives up
after 5 sessions and mentions surgery is
not the type of pt I would want to be
seeing. Check around and see if you can
find someone more familiar with tmj. It
does help. Also therapeutic massage
therapy helps a lot. I am currently
seeing a cranial sacral mt semi-regularly.
It's true that insurance won't pay for
mt, but it's worth scraping the piggy bank
to see her. Again check around for
someone educated in tmj and especially
someone who can do intra-oral massage.
Have you had any trigger point shots or
anesthetic shot directly into the jaw
joint? They might help you. Use lots
of moist ice and/or ice. Ibuprofen or
vicoprofen tends to work better than other
pain medications, but you have to be
careful with your stomach and usually eat
something around the same time that you
take the pills.
What is your posture like? Surprisingly,
it took me this many years to really
understand the importance of good postures
especially at the computer and a desk.
Check out posture pics at
nismat.Org/ptcor/tmj the site also has
some good exercises for tmj sufferers.
I've bombarded you with a lot of
information. Check it out and if you
have any questions, please ask. I have
more resources. I will hope and pray
that something here helps. One thing -
it can be very difficult to find the right
kind of medical help. Do not give up.
No surgery and no braces until the pain is
taken care of. You may have to have a
team of doctors (primary doc, tmj dentist,
pain doc and pt/mt). It can be a
frustrating journey trying to find good
help, but it can be done.
Praying that you will feel better soon,
carol
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iebie
New User, Becoming EHEALTHy
Joined: 03 May 2006 Posts: 2
Surgery Actually Worked For Me Posted: 05-03-06 23:01pm
I actually had a similar problem about 15
years ago. My jaw out of the blue started
clicking when I chewed anything, and then
a couple of days later it just locked.
Beacuse of my age (i was 18 at the time)
the doctors were afraid to try anything
drastic. I spent a good deal of time
trying splint therapy, which did nothing.
An mri showed that the cartilage between
my top and bottom jaw was displaced.
I went to an oral surgeon who performed an
outpatient proceedure, in which he simply
went in and pulled the cartilage back into
place.
Within a month or two, the cartilage
slippled back out of place; this time
because they waited so long to do the
surgery, the tendon attached to the
cartilage had been stretched out of shape
and was no longer able to hold anything in
place. Think of a rubber band which has
lost it's elasticity.
So.... I had to go back again, this time
for a more invasive surgery, in which he
literally sewed the cartilage down to my
bone to prevent it from popping out again.
After the surgery, I also had to spend
several months in physical therapy to make
sure my jaw didn't fuse shut.
Before the surgery, I could barely open my
mouth and was having daily migraines.
Since the final surgery, my headaches
almost immediately disappeared (i had
migraines before I ever had tmj though),
and can open my mouth well enough.
The downside? I still have a very limited
jaw opening compared to most people.
Going to the dentist is nearly always an
ordeal. Eating a triple decker hamburger
would be pretty much impossible if I
actually wanted to. I've also been told
that i'm at risk for developing arthritis
in my jaw because of the operation.
So, in the end it depends on what exactly
is causing your particular tmj problem (is
it strictly muscular, or is there a
skeletal problem?). For me, surgery was
definitely a good decision. At the time I
also had differing second and third opions
from doctors. In the end, I had to pretty
much use my own intuition as to what I
think would really work.
Much luck to you!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4440 Location: post falls, id usa
Hi
my disc was also dislocated for a while
causing my jaw to lock but a
maxillo-facial surgeon was able to
manipulate my jaw and get the disc to move
back into position. It is possible but
sometimes they need to put you to sleep
first if you aren't able to relax your
jaw.
In my case it has drasticaaly reduced the
pain and symptoms. I can now eat whatever
I want, but the only problem now is spasm
and pain in the muscles which is much
better than pain in the joint and muscles.