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Conditions and Diseases > Back Pain Forum > Fusion Surgery Scheduled
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Q: Fusion Surgery Scheduled
asked by: Fluffhead on May 2nd, 2006
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I guess I just need all the reassurance I can get...

I am 39, f. I hurt my back 15 years ago lifting a box and twisting. I went to the Dr., and they found nothing wrong. The pain gradually went away, but would reappear after heavy lifting. I reinjured it 2-3 years ago, don't know how. I had an mri at that time, and in march '06, the most pain occuring during the past 9 months. The mri results stated: "two-level disc dessication at l5-s1, somewhat more prominent appearing right s1 nerve root compared to the left, desiccated disc at l4-5 with broad-based central right paracentral protruding disc of 3mm with an annular tear and high intensity signal zone, mild fluid in the facets bilaterally at l4-5 and l5-s1." my first doctor was an ortho., and didn't help me, but after I begged, he prescribed pt. The pt guy referred me to a back specialist. Pain occurs after heavy activity, coughing, sneezing, sex, getting into car, putting on shoes, picking something off floor, turning in bed, etc. It is hard to do laundry or lift anything. On good days, I can stand upright and walk ok, on bad, I hobble. Btw, I do not have leg pain, only in my buttock mildly. My current doctor determined that I do not have nerve pain, it is mechanical pain. It feels as though bones are compressing and grinding in my back, and I have much spasming. The l4-5 disc looks thin and is gray on the mri, and the l5-s1 is black. (the healty ones are white.) my Dr. Suggested fusion for the lower disc, and nothing at this time for the upper. Btw, I used to work out 6 days a week, am normal weight, thin and muscular, very active, but now I cannot run or do aerobics or rollerblade, and only work out 2 days per week, very mellow. I will not take pills, it is not for me. The most pain/stiffness occurs with movement, and I want to restore my mobility. Pt didn't do much, am already very strong. I am hoping that surgery can help me. Does it sound like a reasonable solution, or should I wait until it gets far worse?
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Jayne HE
replied on June 6th, 2006
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Re : Fusion Surgery Scheduled
Hi fluffhead

i am 39 yr old female with very similar l5/s1 problems to yourself and have recently had a spinal fusion (4 months ago). This is the third back operation i've had as i've been desperate to seek some relief for the constant pain I have had for the last 4 and half years. My advice to you about having a fusion is to see at least one other surgeon (ideally two) for another opinion.
If I was as active as you are now and could live without pain relief then I would have waited (until your back gets worse). The recovery from fusion is painful and tough emotionally (i couldn't even pick my 11 month old baby up for 3 months). Four months after the operation, my activity levels are down and my pain relief levels are up (i couldnt function without analgesia). Some people have back surgery and get a great result, so far I have just developed lots of scar tissue on my nerve roots. I'm really hoping that my fusion will be different, but i'm told the recovery is 6 months to a year.

The best thing I have ever done to help my back was to buy a pair of mbt (masai barefoot technology) trainers which really helped my mobility and pains in my legs. Its a cheaper and far less painful alternative to surgery!

Best of luck.
Jayne
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gjzh
replied on June 19th, 2006
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I think that because you write this pain is not daily and you are asking if you can wait....You should. Surgery should only be when you are in pain and on pain pills daily to survive. If you do not want to take pain pills I would not go for a fusion...

Did your surgeon suggest a fusion or a laminectomy? I would think he would start with a laminectomy....How many opinions have you gotten. I saw surgeons in the double digits before having a fusion...You should get at least three opinions...
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llyons
replied on October 8th, 2007
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Lumbar Spinal Fusion Surgery
I would like to talk to any one who has had L4, L5, S1 fusion surgery. I had my surgery September 26, 2006 and I am almost as bad as I was before I had the surgery. I am not on any meds because they do not agree with me. I basicly do nothing and I really scared that this is as good as I'm going to get. My only time not in pain is lying flat out or sleeping. Could someone give me some advise or tell me if they understand!
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gjzh
replied on October 8th, 2007
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llyons,

I was placed on heavy medications after my fusion. I take more now after the fusion than before and it is eighteen months after the surgery. I think your surgeon did not prepare you for this surgery and he should have spoken at length to you about this surgery before you signed on the dotted line. Did he tell you that you would have less pain or that there was a chance that you would not feel any better or worse? Sometimes the surgeons operate to make certain we that we do not develop bladder or bowel problems, but do not necessarily make the pain any better. I knew going into my fusion L1 to S1, that I might not feel much better and in fact might make my spinal problems much worse. I just had a revision on my surgery because I was feeling so badly and not able to walk very far without being in incredible pain. The revision has helped a little with pain, but I am not certain it has helped a lot...I am on more pain meds now, than before my fusion and feel I always will be. It is too bad that you cannot tolerate any kind of pain medication. I could not live without pain medication or move without it....I will keep you in my thoughts and prayers...Good luck!
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grinninh
replied on September 12th, 2009
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Spinal Fusion
Hi! I am a 35yr old female 3months post op of a rod placement and an anterior/posterior spinal fusion of L5 S1.I had the best surgeon out of Mass General Hospital and it was hell. My pain was never managed after my anesthetic recovery.I cried for 48 hours because of the agony and there was nothing anyone could do for me. I had been on high doses of narcotics with boluses every 15 minutes yet nothing stopped the pain.
After 48 hours it was bad but far better and I was on Oxycontin and 20mgs of Percs every 4-6 hours.
I was very disappointed in pain management as its my specialty as a certified veterinary technician caring for animals.
I was delusional to think it wouldnt be so bad...but its bad even with the best of care.
I managed to get off the pain killers as they were lulling me into a depression after 2 months.
Pain was still horrific I tried Naproxen and tramadol and believe the Naproxen was far better then the tramadol.
Ive just started PT and its painful.
I have low dose vicoden so I can continue PT otherwise I would never want to subject myself to it.
Luckily I feel in love during this time and its the only thing that has kept me focused on getting myself better.
As the pain can take over and suck the life out of you.
I believe I am in the same amount of pain I was in if not more prior to surgery.
I knew Id still be painful but I didn't expect it to be so bad.

They say everything looks excellent but it just doesnt feel that way.
Find a doctor you trust to advice you on the procedure they believe is appropriate.
Do your own thorough research as surgeons arent always clear about recovery!!!

Feel better
Heather
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