Joined: 13 Dec 2003 Posts: 200 Location: Australia
Being Happy & Being Sad. Posted: 01-08-04 03:51am
Ive found that with my epilepsy. I cant
show to much emotion. If I get really
happy I have a seizure. If I get sad I
have a seizure. It is so hard to teach
yourself to be on one level of emotion day
in day out. Does this have an affect on
anyone elses epilepsy because it does
mine.
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Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 02-06-04 01:21am
Hi sami, I have an emotion problem I guess
you could say. My emotions seem to be at
an up and down swing more these days. I
don't understand it. I mean sure I can
get upset but I try and pull myself out of
it. But it is hard when I have been and
independant person basically my whole
adult life. I am married but I still
have not ever had to completely rely on
anybody. I was a single parent for
years, solely supporting my kids. Now at
38 I have epilepsy and it feels like my
head is getting worse. I don't have gran
mals all the time but I don't work outside
of the home either. I do have some still
even though I have been on lamital. But
I think I have petite mals all the time
now. So what I am getting to is that
kind of depresses me and sometimes it
doesn't come out until I am emotional
about something else. Like not being
able to drive is a stab in the heart for
me and bothers me.
Weird things trigger it huh? I never
know what new thing that I try to do,
emotions that I have or whatever might
trigger it.
I am so glad that I am not completely
alone. Even though I still kind of feel
that way.
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faegirl6
New User, Becoming EHEALTHy
Joined: 02 Feb 2004 Posts: 7 Location: taiwan
Scared Too Posted: 02-07-04 00:47am
Hi, im joe. I know what u mean about the
emotion thing. I had an anuerism, avm, in
my brain. Got taken out last year sep.
Doc said that there s good chance of the
epilepsy going away. Never had it bad.
Maybe once every year or so. Well ,since
xmas, I had 3 grandmals. Not having it
before, and getting it now, is really
scary. Im on lamictal. Dos's still
trying to find my right level to control
the epilepsy. I found that if im stressed
out, really sad or angry, and tired, the
combination trigger the fits. Well, the
medicine is making me feel bad all day,
and im so scared, had been fighting with
my boyfriend a lot, it sucks. Trying to
get the anxiety under control. Going to
see a shrink on monday to help with that.
Know what's the worst thing? I've been
realy independant my whole life. Now im
dependant on other people, and not in
control of my body. Trying to find a
healthy way to deal with all this. Its so
hard but I guess one has to keep on
trying.
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faegirl6
New User, Becoming EHEALTHy
Joined: 02 Feb 2004 Posts: 7 Location: taiwan
Posted: 02-07-04 01:31am
Lo- I just read one of your old mails. U
r on tegretol , right? Well, my doc say
that its a very old drug with too many
side effects. My advice to u is, get some
new med. I was on tegretol for 10 years.
I didnt have a lot of attacts in that
time, but side effects were bad. Its very
bad for your liver. Especially if u use
it for a long time. Also it makes one
almost emotionless. I stopped taking the
drug about 2 years ago because I was epi
free for so long and it was amazing to
start having emotions again. Of course
now I started getting the attacts more
often so its on meds again. Try lamictal.
Side effects are dizzyness. Also no
tolerance to alcohol. Also im so scared
most of the time would almost like to be
emotionless again. Best thing to do
though is to try and relax. Try some
joga. Good exercise and it helps u relax.
Im starting as soon as I get the epi
under control.
Good luck
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 04-23-04 17:40pm
Hiyas.
My emotions are still playing with
me. What kind of epi are you. I am
temporal lobe epi. That plays with your
senses and your emotions. I havent been
an epi for long only about six months or
so. I am still on tegretol. And I am
also on. Epilim. I have to go see
another neuro next week. My epilepsy
pattern has changed. My grand mal
seizures now are lasting 15-25 minutes.
Thats the bad ones. I dont have petit mal
anymore well I dont think that I do
anyways. My doctor is sayin that he
thinks that I will have t o go on
lamictal. Ill keep you posted. Thankyou
for your replys.
Take care sam.
Oh btw I am 21 female and from australia.
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Emotions.... Posted: 04-23-04 19:22pm
Hi...
Yeah, i've been dealing with my seizures
for 18 years now, and I have been on just
about all the meds and med combos.
I believe between the seizures and the
meds, there is an big effect on our
emotions.
There is times that I want to cry, or
yell, or I get so flustered for no
reason... I know its a mood swing.
But if someone in my family says i'm
having one i'll get really angry...
I think that has to do with not feeling
like I have control of my body...Any more
I feel like i'm at war with myself and the
seizures are winning.....
All you can do is take one day at a
time..... And make sure you take the
meds, get enough sleep, and stay away from
anything that will trigger a seizure.
