My 28 yr. old son got chrones 2 years ago and thought remicade was his miracle drug after getting down to 104 lbs. and hospitalized twice. Then he went into remission and didn't get the remicade for 6 months. He had a flare up and got remicade. Then later found out he had C-Dif and may not have even needed the remicade. Anyway, he had a reaction from being off the remicade for six months. He broke out all over his body and his joints ached all over. He tested positive for Lupus and docters think it's all the reaction to remicade. However, he is getting a second opinion at Cleveland Clinic and we are hoping someone can get to the bottom of his problems. He's a new dad and can't even lift his own child who's 8 months now and getting pretty active. He's been on and off prednizone, but it's the only drug that helps his joint pains. It's been 2 months since the remicade infusion and docters say it's still in his system and
think the Lupus is drug induced and caused by the remicade too. I honestly think the remicade has caused him more problems than good. He can't even work with all his joint pains and breaking out all over his body. One dermotologist thought he had Psoriatic Arthritis and Psoriasis but the creams never helped him heal. He gets blisters and then red patches that never seem to get better especially on his hands and feet. Hopefully, Cleveland Clinic can find the right cure and answers for his problems. He's in the testing stage and off all drugs right now and has another week for his last test. Hopefully, he'll get through the joint pains and no flare ups until then. Time will tell. I will write back when he finds out more too.
