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Crohn's Disease

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susan wolansky

New User, Becoming EHEALTHy
Joined: 07 Jan 2004
Posts: 1
Location: michigan
Crohn's Disease
Posted: 01-07-04 15:54pm

My granddaughter lillian just turned five and has been ill for many months...We have had her to the doctors and hospital many,many,many times to find out what is the matter...They have tested her for any and all kinds of cancer and known disease's... Her doctor thought perhaps she had lupus but left state and left us with no answers..Her symptoms are as follows...

Severe headaches consistantly
constant low grade fever (99.5-102.7)
lack of appetite or constantly hungry (stomach pains)
night sweats (drenches clothing and bed)
loss of energy or high boost of energy
neck glands swollen all the time (other glands swell also at times)
liver and spleen are swollen (does not go back to normal)
loss of balance (gets light headed or dizzy)
hallucinations (speaks of death or dead people, seeing unknown family members to her that are deceased )
sensitive to bright light
urination problems (sometimes hard to urinate)
complains of body itching all the time
breaks out in hives for no apparent reason
sore throats
facial swelling (periodically)
breathing difficultys (occasionally)
constant thurst (always thirsty..Drinks at least 12 or more 8oz glasses of water,juice a day)

we were told that crohn's desease could be what the problem is??? She was a very healthy child (no heath problems) not even a common cold until 6 months ago...Does anyone out there know of any known deseases that could cause her to be so ill???? Please anyone with any kind of answer is welcome...We have been thru it all...If you have any information you can share e-mail me at belovi d1958@yahoo.Com or her mother at elb_babyluv@yahoo.Com...Thank you for your time...

Susan wolansky
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Arclight

New User, Becoming EHEALTHy
Joined: 06 Jan 2005
Posts: 3
Location: Sacramento, Ca, USA
Chrons Diease
Posted: 01-06-05 02:41am

I would have her checked by a rheumatologist to see if she has fibromyalgia.

John
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nursechick

New User, Becoming EHEALTHy
Joined: 10 Oct 2005
Posts: 31
Location: Indiana

Posted: 10-11-05 21:31pm

Tested for lymphoma yet????? These seem like a lot of random symptoms maybe nneds specialist at a university hospital
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