So I am not clear from your post. It does not sound that you were diagnosed as having seizures. It is possible to have seizures even if the eeg is clear if you did not have a seizure while you had the eeg. Eeg is just a short period of time. Ct can and mri is frequently normal even with someone who has epilepsy. Epilepsy is just a term which means someone having repeated seizures which is a recurring misfiring of electrons in the brain.


Sometimes having a longer eeg like 24 hours or longer is a good idea when the tests are not helpful. Have you had a neurologist check you out since this has continued to happen? Some other things to get checked would be blood sugar issues, syncope for fainting spells or heart arythmia which sounds scary but can really be a benign thing, it all needs to be checked out since loosing consciousness is serious when it happens at the wrong time like driving, swimming, bathing or doing sports.

Please get seen by doctors and get proper care!

Good luck

Hi
i am from australia, I am like you in some ways, it does take some people who have seizures a long time to be diagnosed. Mine all started when I was 21 that is now almost 3 yrs ago. The drs didnt believe me that I had a seizure but I had people with me who saw it, who called the ambulance for me as I had 5 in a row lasting 40minutes. I was then put on a low dose of tegretol or ( cabramazapine) it didnt work, it made me have even more seizures and it made me paranoid. I had head ct scans and then an mri scan all came back normal. I also had an eeg done for 20 minutes and nothing came back on that either except for stress on the first one. The second eeg was a sleep deprived one where you have to stay awake all night and have no caffeen or any stimulants to keep you awake. That 20 minute eeg came back normal. With no signes of epilepsy. I was told that it was all in my head, and that I should seek profesional help from a shrink. So I did, nothing became of that they said I was normal, no depression. So my normal gp upped my doseage of tegretol and changed me onto the slow release tablets, tegretol cr (cabramazapine controlled release) and with that I had to take epilim (sodium valproate ) I was up to 800mg a day tegretol and 1500mg a day epilim. Still having seizures. I started seeing another neurologist after my blood wasnt taking the drugs well. It was like the more I took the lower my levels would be theraputic. So they decided to take me off the tegretol in 3 days immediatly it was making me sick and put me on keppra ( levetriacetam) I was up to 2000mg of keppra when I had to go to hospital and have a veeg done. And 2400mg a day of epilim. There in hospital they took away my keppra for the tests, 4 days I was there. Connected to a computer tv screen and microphone. I had 5 seizures all non epileptic they said, because my brain showed no epileptic charges. But my seizures were like real seizures. The drs now say after 3 yrs that I have epilepsy I am controlled on 2400mg of epilim I am no longer on keppra I also have anxiety and I also have seizures from within my deep subconsious. So I am seeing a psychologist for that about things in my past. Yes it is hard when no one understands, but atlease I know now that I am not crazy, and I hope that my story helps you out. Just keep trying I saw 3 different drs until they finally got me to a epilepsy unit. And its also helped me get my life back. I hope you find someone willing to listen to you. If you would like you may write me.

I am like youself and sami 1982 it took me about two years to get my doctor to believie me that I had epilepsy I am on a high dose of carbamazapine and sodium valproate I am also on a water pill for high blood pressure but I was never away from my doctor with the same signs and sytmons I was diagnosed as having epilepsy after two and half years loss my driving licencse for a year after being seizure free in that year you get your licencse back and than it is renewed for every three years I hope that you get to the root of the problem , please get in contact with me. Stant I can give you useful addresses for epilepsy centres and helplines as I have join them. So please get in touch with me thanks slutpaul

My Daughter died at 24 on the 27/10/08 from un-diagnosed Epilepsy. She had had it for 6 years. You must write everything down and ask for second opinons constantly. You must push the specialist and get down to the bottom of it please.
Lynn

I was told that I had seizure disorder but not epilepsy. I was told that more than once. I don't really know what that means exactly, what the difference is that is. I take Depakote, but not the ER version. What I can say is try and watch your stress level. Stress effects our physical body in a lot of ways. I personally went through issues of thinking thoughts like what healthy man is going to want to date me and so on. I'm telling you from my experiences, people will still like you and if they have an ounce of common sense they will care for you that much more. Also, I saw a website where a group of people were trying to control there seizures through yoga alone. What I do is still take the medication and do yoga. I was also told by a doctor that taking fish oil and vitamin D also help in seizure control. Take Care!

Im 20 years old and ive been having the same problem for about 2 years. Ive had EEG and MRI's and everything has come back normal. I even wore a EEG halter for a month and everything came back normal. My doctor tld me i was having complex migranes or silent seizures. i took topamax for about a year and just got off of it and they came back. so im dealing with the same thing with no diagnoses. Take care.

When I was younger sometime around elementary school I ran away from home and once I was caught I acted as if I had amnesia. I was taking to the hospital doctors ran all these test (blood work, eeg, cat scan, ect) afterwards the German doctors diagnosed me with epilepsy. I am now a grown adult and its always been in my records that I had a seizure that caused my behavior of running away. I have never talked about it until now and have always wondered if I know I never had a seizure then what exactly is my real diagnoses? If I would have been taken to the hospital before the event and doctors going over my eeg and the cat scan what would be my true diagnoses?

That sounds like my situation almost exactly. I had my first grand mal seizure while I was driving at the age of 16. My cat scan, MRI and EEG all came out normal. The neurologist put me on Lamictal, but after 3 years of being seizure free I decided that I no longer wanted to take the medication and got off of it. I am now 20 and had been off the meds for nearly a year before having another grand mal seizure 2 weeks ago while driving. I was taken to the hospital and all the tests again came out clean. This time around, my doctor wanted me to do a sleep-deprivation EEG. It turns out that I've been having petit mal seizures without even realizing it. I'm back on Lamictal, and have lost my license again for another 6 months. I feel like my wings have been clipped... being a college student (who lives at home) at not being able to drive is extremely difficult. I also just want my medication levels to get sorted out. Take care and God bless.